You also Tar. Delighted to see that you're still kickin'. Only an occasional visitor to this board lately so I've fallen behind in the who's who department. It's still an outstanding tool for guys in...
I had bone mets with a PSA of 3.5. There are no absolutes with PCa. I am certain however that I represent a very small minority. The big takeaway is that I am still battling the beast six years...
Been a roller coaster for me but it's now eight years since my Gleason 9 diagnosis. Overcame node involvement and widespread bone mets. Still kicking. Only advice is live in the present and don't...
Info Had an appointment with Snuffy last week. Moving a tad slower but not noticeably impaired in any way. As brilliant and articulate as ever. Jim...
Greenred, I agree with the consensus here. I've had Provenge, Xofigo, and most other treatments available. Firstly get a second opinion from an oncologist that is well immersed in the current options...
Vaportrail, I'm a patient of Charles Myers and I have visited many treatment modalities. After my salvage radiation I was whacked with a bout of rad proctitis and suffered pretty significant bleeding...
I guess in the grand scheme of things it doesn't matter which bullet did the deed. In the cancer community we are all connected by the heart. Bowie truly was the 'starman" and he's gone home....
A Brit tabloid is reporting PCa. Lung cancer seems more feasible given the brevity of the battle. Family is not saying. Whatever the case, a real talent.. a real loss....
Looks like we lost another vastly talented celebrity to PCa. Thanks for the privilege of growing up with your art Major Tom. Jim...
To Jerry's point .... warm Heineken might be the only indistinguishable placebo. I have heard that the insurance providers are desperately trying to figure out a way to attach copays to these...
Special Lady, Congratulations to your dad on both of these wonderful milestones. He is a warrior and lover of life to be sure. My paths have paralleled his on many fronts and I join you in...
142 Reach down deep. There is a reserve of strength and courage down there that can be drawn from at times like this. Our thoughts are with you. Jim...
As I approach the 7th anniversary of my diagnosis, I find myself straining this morning to recall what life was like before the scourge of cancer presented itself and forever changed the face of who...
May your memories lighten your heavy heart Todd. Jim...
Fair, For future reference. If your insurance for any reason denies a med such as Xtandi have your onc appeal the decision. Once you have secured a second denial, submit this to the manufacturer's...
Been on Xtandi for nearly two and a half years. Never had any discernable side effects. Hard to judge it's impact on the cancer as I have used many more tools in the box than the allotted space for...
Cancer certainly offers us a bully pulpit to philosophize on this subject but Redwing knocked it out of the park. "It's not being dead I'm concerned about, it's the gettin' dead part!". I have...
Allen, As Trump would advise, "success requires two components, confidence and talent." You've obviously got the talent. Shine the other shoe and this book will be HUUUGE! We'll miss your sage input....
We all share in your tragic loss. He has escaped the tethers of this madness now and his peace is eternal. Do not hesitate to come to this well for companionship and comfort. Jim...
Giving up is certainly not your style David ... I'm surprised those words are even in your vocabulary. Best of luck in beating back those upcoming challenges. Jim...
Life has nothing to do with percentages Mel. If you flip a coin nine times and all nine come up heads, the tenth toss is still a 50/50 chance. Other people's outcomes have absolutely nothing to do...
Diana, Presenting as metastatic right out of the gate is a real psychological train wreck for both of you. My situation was a bit worse than yours but quite similar. It's not how long you can remain...
Cancer is the Elvis of all maladies. You're sure that he's long gone and buried. Then one day you decide to visit Vegas. Jim...
Life is good Jim. Jim...
I had a sound piece of advice about that, but I don't recall what it was. Jim...
Miki, Cancer most assuredly leaves a footprint. Like all footprints it eventually fades away. But it's healing time is as different and individualized as the sinister affliction itself. Try this...
Pratoman is spot on. Without the details of the post surgery findings our ability to help is pretty limited. Why is radiation even being suggested? Jim...
I consulted with and was very impressed with Dr. Dana Rathkopf at Sloan in NYC. Her research is well respected in the PCa arena and she has engineered several innovative clinical trials....
Bob, Perhaps you feel that this is the appropriate time to pass through the portal. Perhaps you continue the fight. If you have chosen to hold firmly on to life and cherish each morning you must be...
Great post Tony .. lifts all ships...
I don't think that any of us view ADT3 as a cure for prostate cancer. It is one of the tools we use to try and induce a complete remission. Nor do I believe that the PCa cells that survive the...
So great to hear Ray ... Jim...
Mel, I think that immunotherapy once refined will prove to be the key in defeating this disease. The durability of my remission is anyone's guess but it offers proof that no obstacles are...
Quincy, I've been metastatic since my RRP in 2009. Widespread bone mets since 2011. Did a round of Xofigo in 2013. No side effects at all from the treatments although my bloodwork jumped around a bit...
Prat, As usual Allen, our science officer, has superbly addressed your concerns with Vulcanesque precision and logic. We are fortunate to have this guy in the house although the pointed ears are a...
Litigation may well be an option for you, but that should be left to a malpractice attorney to ascertain. I know that subject is not your priority right now Andy. I remember what that first wave of...
Ironically today is my birthday so the news of the remission had some added sentiment attached to it. I don't mean to belabor this thread with my personal celebrations but there are things that need...
Cyclone, I'm a patient of Dr. Myers. He switched me from Zoladex to Firmagon about a year ago. The studies dramatically illustrate the superiority of Firmagon in suppressing testosterone and...
Update Saw Dr. Myers yesterday. He greeted me with the jaw dropping interpretation of my diagnostics. I am in complete remission. Lesions have disappeared. I have no words. Jim...
Thanks again for the replies and messages of encouragement. This disease is ancient and we do not have a cure ... but we are exquisitely close. If you only entertain conventional treatment plans you...
Many thanks all ... Don, I suspect the Xtandi has been instrumental in curtailing any nodal or soft tissue spread. Been on it for 18 months....
I've been battling a very aggressive PCa which went metastatic to the bone over three years ago. It's an insidious adversary which produces almost no PSA. My oncologist (Charles Myers ) continues to...
Just a bump to wake up the niners. I'm still standing ... how bout a roll call....
This thread sounds like it's wofting out of a reefer mart in Denver....
Fame is just as addictive as cash to some. For that reason I believe a cures will surface....
youtube's lead page tonight ... https://www.youtube.com/watch?v=OsR52uJmGsI...
Mel, As I see it, the phrase"don't worry" is not like an obligatory knee jerk condolence from a stranger in the protocol of this room. It's a fist bump from a brother that's wearing the same badge....
The generosity which you've exhibited in sharing your tireless research has lifted morale and calmed anxiety for so many in this room. Be well my friend. Jim...
Jerry's not kidding. He even tips at toll booths....
Liking what I'm hearing Sonny. You've shed blood sweat and tears on your war plan and I see some great returns for your efforts. Best of luck. Jim...