To my sisters in this battle who have lost their dearest ones, I have just crossed the two year mark. If I can be of any assistance to you, please send me your email and I will be in touch. I hate...
Hi Susan, My sympathies for your loss. I still visit here but don't or can't have anything of value to say usually but to you if you need someone who is walking this path, I am here. You can email me...
Nancy, my email is available too if you want to email and I can send you my phone number. I can not do anything to change what has happened but I hold out my hand to you to help steady you in this...
Please hold Zimac (Chris) in your thoughts and prayers as she lost her Bob on Friday, May 23. That was a fight that pulled no punches - she and Bob fought long and hard. So saddened to see another go...
I join Pat in being available by email and then phone if anyone needs to talk. We are here for you, having walked your path just moments ago...it feels like that sometimes....
I hope I am not overstepping myself but please hold Zimac and her Bob in your thoughts. Tough days in that household....
I join Pat in her thoughts and prayers for those of you on this PC journey. While not going to a sunrise service, I will hold you close in a later one. Pat, totally understand the parallel, thanks....
He was my hero and my guiding light until the end. I think of you a lot, Bud....
So very sorry and sad, Pat. My biggest advice to you right now is be good and kind to yourself. The numbness will be with you for a while. Reach out to people. They want to help. Let me know if I can...
It so saddens me that more Warrior Women on this thread are going through this. Peaceful prayerful thoughts to tednsal, zimac, Pat, others. It has been 6 months almost for me. All I can say is you...
Pat, I so agree with Jitters. You are doing the right with having hospice. I wish we had brought them in sooner. Do read the publication I think they give to all hospice patients. It's a little blue...
And I just want to add that Hospice allows you to be the wife and only that. They do the caregiving. It is a huge difference....
Holding you close, Pat. These are hard precious days for you and Mark. Thinking of Hospice now is wise and your doctor's words even wiser. I wish someone had said them to me earlier. One thing for...
I join Jitters in her wise words. It doesn't do me any good to think that if we had actually stopped treatments earlier, he might have had the QOL that Jitters' husband had. I'm getting thru the...
I did get through Thanksgiving, not without a lot of tears. I actually really melted down Wednesday night. Thanksgiving with family was good. My brother paid homage to Ed in the grace he offered - so...
I haven't posted lately but have been reading. I haven't thought I had anything of value to contribute actually. But I do feel like I have turned a corner. I'm not sure what it means. I don't feel as...
I answered Sal on the other thread. LuAn, so sorry for all of this grief. I can't imagine having so much to endure. It's enough to have to deal with the grief for my husband. I do remember that when...
Jevtana was offered to my husband after everything else failed. But by that time, he was in no shape physically to endure it. Had he been, I think he would have gone that path. Because that path...
The Memorial was perfect. The weather was quintessential October. There were 70 family members, friends, neighbors, and coworkers present. My sister, brother, 2 neighbors, and 1 longtime...
Today is the memorial for Ed. My sister has been here since Friday and we have cleaned, neatened, found treasures of Ed to share (pictures), and now have just a few more things to do before 11:00...
I too have let posting slide here. I do visit. LIke Jitters, it is a roller coaster ride to read everyone's stories. Like Jitters, it's strange to have time to call my own. The memorial for Ed is...
I do still come here and read this thread. I am feeling for everyone still on this journey, one which seems to be receding quickly for me. Dreamer and Zimac, hold onto those precious men of yours....
Jitters, I'm glad Jim's birthday went well. I am beginning to understand that everyone has a different journey and story when it comes to this: losing one's husband to this disease. I am doing ok....
I can relate to the keeping busy. It felt good to go to work yesterday - we had a good time. Coming home was hard - had the most tears so far. Just think it's getting to the one week point and I am...
Hi Cathy, welcome to HW. You are already discovering the wonderful support and information that HW holds and offers. Your path sounds difficult. I wish you the best - I keep thinking there is help...
I guess this is the beginning of Day 4. I am doing ok. I got lots of little things done on Monday, like arranging for the cremation. In the evening I received lots of phone calls, all good. Yesterday...
Thank you all. All of your words mean a lot. I am just beginning this new journey and already so many people, here and in other places, have expressed their sorrow. My neighbors who were for the most...
Thank you, Sal, for this post. Ed was the warrior in this battle and he fought hard until the end. Bud absolutely brought us together in such a special meaningful way that will continue to ripple...
He is finally at peace. Around 6 this am. I am still with him. He is finally not in pain....
My husband's journey is winding down. He is in Hospice House, indication of just days now. Going thru a lot of adjustments. His mom and sister were up from Florida for a few days and it was perfect...
Thank you,tednsal. I agree, nicely said. I write this in the hospice room - he is sound asleep in his bed, I'm in the pullout sofa. It's the first night I have felt really ready to stay. Tomorrow his...
Hi Kathy, Of course your head is spinning. Take a deep breath and ask questions, take notes, ask the questions again, and take notes again. Be sure to understand everything and don't let the doctors...
Day two and much better. I worked for half the day and arrived late afternoon. He says nurses and aides have atttended him well. I was here when an aide gave him a shower. Very efficient and he was...
My husband went to the local hospice house to "kick start" this pain management. What a day. I went to work in the morning, came back at 11:30, ambulance took him so that he arrived at the house at...
We signed up Hospice today. His pain is just too much - it was an awful weekend. All doctors in support. Hospice promises to help the pain - he is wanting to be pain free so bad. Details to work out:...
Mixed feelings here! so glad the PSA is down but the SEs sound brutal. Hope the doctors can resolve that. I have seen some of the others guys on zytiga go down in the dosage a bit (or was that the...
Have to agree with Water Guy. I have had pneumonia and you HAVE to stay home to get better. Otherwise it will drag on for weeks. In my case, a couple of months as I refused to stay home in the...
Loretta, my walking partner's husband had testicular cancer back in the 80s. A few years ago he was diagnosed with prostate cancer and so far so good. He survived the first against all odds and...
So many to hold in my heart now. So many to still give me strength for each day because I really don't feel alone. The days are never the same - some up, some down, and I never know which until I am...
Passages, I am sad for you but he is now at peace at long last. I write those words, really knowing what they mean. You have yet another normal to adjust to, another new path. I hold you in my...
Hi acsd, welcome to this Forum. I have found it wonderful for both support and information. And the connections it makes amongst us. I was in your shoes in November of 2002. That should tell you that...
Yes thinking about Passages a lot - hoping for peaceful days for her and hers. I had my physical last week and I am fine but when my doctor asked how I was, I burst into tears. It has led my husband...
I have to say that currently I feel we have an excellent oncology team. The Dana Farber onc and the local onc even went to school together! They seem to work well with each other, communicating. And...
Jitters, I used to keep a journal every day and haven't been for years. But I have been thinking about starting up again! My husband's second blood test came back stable with the liver enzymes so the...
Hi Percy, my husband is on lupron shots. We asked at last appt if this needed to be continued. She said the lupron does provide a "braking" to the cancer. It doesn't cure nor stop it but I guess...
smo1, glad he is doing well. Enjoy enjoy! Jitters, NH isn't all that far from CT in the grand scheme of life.Well depends on which end you live on. I have a friend in Manchester area. tednsal, good...
Thank you, Gunfighter! and Southern Comfort. It helps so much to have you "visit" us and give us a quick "hug". Least, that's how it feels! Passages is right, Dreamer - we have palliative care. We...
Yes, thanks for sharing....
Oh Passages, so hard. But try to feel us all by your side. It helps me to know I am not alone in this journey. Smo1, you always ask about US but don't tell us about YOU. We care. Jitters, always on...
Welcome, RunnerLady. I'm another wife on the Forum. You have received excellent advice. I'm definitely in the school of let's get on the offensive with this beast. I would hope you do this so you are...