Bololidat, I wish I was sitting in Hawaii! I am worn out from the other issues other than the cancer. I was dx in August of 2012 psa 200 and spread to bone and nodes. Been thru just about everything...
I stepped away from this forum for quite a while. I got 2 years out of Xtandi and then my psa jumped up to 150 over a couple months. Started on Zytega and after 1 month my psa dropped to 24! Doctor...
Just finished the sixth Xofigo treatment. No SE issues. I just wish the insurance companies would pay for another 6 when the mets fire up again....
Allen, my alkaline phosphatase is at 59. It's as low as it's ever been since dx....
I posted over in the elite gl9 group but for any that might not see that here's what has been going on. I've been on Xtandi now for over a year and just finished the sixth and final round of Radium...
Well, it's been a while since I last posted. Just had to step away and not focus so much on PC. I have been on Xtandi now over a year and just finished the sixth and final round of Radium 223. My...
That was the reaction I had the first infusion. The next two they gave me the benedryl thru the IV and that seemed to do the trick. Good luck...
I'm in the Provenge club, it will be 6 months mid January. Not sure if I'm benefiting from it or not but some say I've just reached the point that you do. However, I have a checkup Monday and hope to...
Sorry to hear about the short response. Your husband and I are the same age and stuck with the g9 tag although I had a mix of 8 and 9's it's still tough stuff. If you have insurance and can afford...
I had a reaction on my first infusion in which I took benedryl in pill form. My second and third they gave it to me through the IV and I breezed through. Hope you have a good experience....
I would assume that a vein check was done to see if you needed a port? I'm sure that the treatment will go smoothly. It's having to lay in that chair for 3 hours that sucks. Good luck....
Since June my psa has been climbing and after finishing provenge in mid July was going up a point a week to a high of 17 in October. To my surprise my November psa came in at 13! Could it be that the...
Fantastic...
Jerry, didn't get the email...
Andrew, not sure if a hip replacement would be something done with my Pca but boy would that take away so much of my pain.Jerry, yes it is on the scapula not in a joint that could be arthritis. I can...
Well here is the good and the bad since starting this in July of 2012. Psa started to climb around a year after starting ADT. Went thru Provenge this summer and after that went on Xtandi which I am...
Great news...
Thanks for your post and future updates. Good luck...
sr9sh, I would think that dad should have a CT and bone scan to rule out node invasion and bone involvement. Good luck....
I had a strong reaction on my first infusion. After that on the next two they gave me benedryl at a higher dose thru the IV. I didn't have any SE's that lasted more than a few hours. What are the...
Sorry to hear about your dad. I'm on Xstandi now and it doesn't seem to be working. What does his Dr. think. Has he tried Zytiga or Keto? My Dr. believes you can come back around and give a drug a...
David, If my psa test in late Oct doesn't show a slow down then I'm sure I'll start on Zytiga or Keto. I know he wanted to avoid the steroids as long as possible but if the # gets to crazy that won't...
My Onc started me on Xtandi after I finished Provenge due to my quickly rising psa. This was the drug of choice since it requires no steroid which could have a negative effect on Provenge. Three...
Glad to hear that things worked out for you....
Todd,Have the doc set you up with something, Ambien etc....
While I have the experience with provenge I didn't need the cath. Wish I could help you with that. I got some inexperienced nurses or so they seemed on my last infusion and that was no fun. After 5...
Rob, Did the Onc explain why in your case he didn't think you would benefit from provenge while they use it for other patients? I know the trials did show the best results for psa numbers below 22...
Since I had just finished provenge my Onc started me on Xtandi since it requires no steroid that could hamper the provenge results. My psa was rising and after 3 weeks on the drug it stopped the...
It's too bad that the company is facing debt issues. I'm sure that in the world of giant drug companies some company would step in and buy them out sooner or later after they go bankrupt. For those...
quincy17 Hope your treatment goes well. I lucked out and my veins held up for the three treatments. The 3 hours in the chair while they collect the cells wasn't fun. I know before they scheduled my...
Jerry, After consulting with one onc I contacted KU Medical center and asked for an apt. with the best pca doc on staff. I really like this guy but both doctors saw no benefit for me to do radiation....
adjust,I chose provenge as soon as my psa moved up for the third time while it was still low. I had insurance that paid for it and my Dr. and I felt like the time was now. I would like to think that...
I finished Provenge on 7/15 and at that time my psa was moving upward. Went off casodex and psa went up from 2.4 to 5.4 in 30 days. Went on 4 weeks triple casodex and psa went from 5.4 to 8.1, now...
John, I can so relate to your post. I have thought so many times, "will this be the last time I'll need to buy this or do that". I used to spend time thinking about retirement, will my pension and SS...
Todd,Sorry to hear this. What was your last psa number? Was this latest # much of a jump? Kurt...
I guess the way one could look at this is that the drug itself has not changed just the FDA warnings. It's been an old stand by used for many years for HRPC and just because of the FDA opinion it...
PreacherMan12 Have not read anything to indicate Xtandi works better with lower psa. Provenge studies do indicate a better result with psa lower than 20. My doc just started me on Xtandi 7/24 with a...
Interesting. But also something else to worry about....
49Packard Finished my third and final infusion on Monday. Now we will see if it pays off. Thanks...
We had my dad's funeral on Saturday. He passed away suddenly at age 88. A son could have no better role model in his life. He was so positive when we talked about my PC battle. He will be missed by...
Happy belated birthday....
Sorry that you have become part of this club. When you get the results of the CT and bone scans your options will be known. Good luck....
Todd, It is hard to imagine that I'm down to one treatment left on Provenge. My Onc had put me back on Casodex at triple dose and it will be interesting to see where my psa is when I go back to see...
David, I've seen this anti vitamin message multiple times. While I've not asked my Onc opinion I have decided to eliminate the multi vitamin from the cart load of things I take on a daily basis....
David, The KC area is like most of Missouri, flat farmland mixed with rolling hills and woods. Where I live there are no less than 4 lakes within 10 minutes of my house. Of course the Ozarks are just...
My wife and I grew up in a Kansas City MO. suburb. When we married in 77 we lived in a small rental house close to where the sports complex is for the Royals and Chiefs. In 78 we had what at the time...
Had #2 infusion today. Staff gave me the benedryl thru the IV before hand. I was able to get this treatment done in the normal time!...
49packardGreat news that gives me hope. Today I had #2 collection and Monday will be infused. Hope my SE's on the #2 infusion will be less even though what I went thru on the initial infusion didn't...