Just dropping - not sure I can express all my feelings for all of you and your continued journey with this disease and those of us that are done with that piece of the journey. Right now I'm finding...
LuAn, just want to send hugs. You've had more losses than your body can handle. Something to consider is that we are at the very beginning of this journey, as painful as our other journey was; we...
Dreamers44, well said and great that you recognize that in each other. It's been over two months and reality is hitting hard at times. Of course didn't have energy to do much in past and this week...
Just flashed on here and that's the first thing I saw. Wonderful!!!...
Tednsal, sorry for the slipping away. It is so hard. Mike did try Jevtana. It was so much easier then the Taxotere. His hot flashes were bad and he started re losing his hair. I think we were past...
Sorry, just checked in yesterday ..... so much so many thoughts. I really don't remember when I last posted - I could check, but just getting energy back, just know I have thought of all of you;...
Sounds great LuAnn. It will be a good, but difficult trip. Even just going to one of the civil war events where all his long time bestest buddies was really hard. My youngest said he just couldn't do...
So many wonder comments and do appreciate updates. Just had another procedure. Surgery 3 Fridays ago, something last Friday and this Friday. Puny, weak and not particularly comfortable and constant...
My mom always said the hardest thing was to come home to an empty house - that was much later after my sister had grown up and out. As I said earlier, I tried to text him to let him know I was in the...
Tednsal. Thanks wasn't sure I was allowed to post slide show. That's neat you watched it. Today is first day I've seen it. At viewing and funeral was too busy and I think my son has had an issue...
Radsgrrl and dreamer 44 so sorry how things are going, just kep up the fight as long as possible. I'm not sure if I can do this. It' sling, but a few minutes gives an idea of our journey. It' said a...
Welcome enjoylife, to where none us wanted to be. You are right, every person's journey is so different; yet there are some similarities and this site can be so helpful in exploring the different...
Nhwife - It certainly is a process and glad you have a friend to help you with a memorial and you don't have to rush it. It probably helps to have job and stuff. Jitters and others, it is surprising...
Can you appeal? It's ridiculous. And hearing about your pain is so descriptive and real, it hurts. It's like it never ends. But the kayak sounded great, even with the after effects....
Thanks 142. Hoping and praying you will still be around, even if you can't make it. Still fighting kidney issues. Another procedure Friday. It was hard being in the hospital without him. painful...
Tednsal - thanks, name is Jane. Too many losses lately it seems. Thanks all for your support. Jane...
Nhwife/Susan, I'm so sorry, but glad you were with him and you are right he's/their at peace. An unbelievable toll our Pca warriors and we women warriors have had. Take care, my thoughts and prayers...
Nicely said tednsal - thanks so much. Still working on paperwork. Sunday ended up with a kidney stone, which the next day turned into an infection. So many minor bumps, but frustrating right now with...
Back at you Jitters....
Thoughts for you nhwife - ((hugs))...
I bet you are exhausted. Hospice was great when I had him at home. Hang in there. Hugs!!...
Jitters, thanks for the positive and the words. Nhwife - praying it all works. The at home hospice was extremely helpful for us, just thought it would be for longer. Everyone else - keep going and...
JNF - go IU, Boilermakers. I'm a Big Ten person, doesn't always count much in football lately though. I grew up a Purdue fan - grandfather, dad were math profs; but went to IU - where I met my...
Thanks ALL for thoughts and prayers, Asia made it Wed in time for viewing after quite a battle, but had to leave Thursday night after funeral be back for Friday classes and then the long Labor Day...
Friends, Mike won his race and is in a better place. He passed early Saturday morning just as the private plan landed to get me back. Made ring ceremony. He was fine when I left. The biggest hurt...
Just very quick update. After getting fluids and a unit of blood on Tuesday, Mike ended up in inpatient hospice to monitor Him. his body couldn't process all those fluids. After conferencing with...
Retreat sounds wonderful. Enjoy! Everyone have a good weekend....
Actually Tony, you jiggled a memory and I believe when I saw this I found that out, but loved the wording and sentiment so kept. I am surprised I didn't make a note - still like the sentiment....
Jitter, I wish we were closer. Hoping to be in West Point next weekend, that's closer....
We also have the Lifeline which calls me first, my daughter, my son-in-law, than 911 if we don't answer. I'm also on speed dial on his phone. I have 3 of my children nearby and mostly they would come...
Thank you Gunfighter and Southern comfort. Gunfighter what a wonderful summery. When talking with hospice nurse whether it's feasible to have him fly in the private plane, I thought and mentioned...
Dreamer44,I get it, as you know. You might check out Palliative Care agency. Similar to hospice - pre-hospice, but you can continue treatments and stay with your Dr....
Not sure where I got this (may have been on here), but it is a reminder to all. Slow Dance This poem was written by a terminally ill young girl in a New York Hospital. It was sent by a medical doctor...
Thanks Tednsal - have missed you - well said....
Jitters, it's definitely on him. Just told him this morning about it and as I said He kept saying neat, neat; but he got worse and worse and hasn't talked about it. I know I'm over thinking and the...
Welcome Runner Lady, Agree with the advice above, but note too that there is lots hope and positive in your future. I like how many call it being on the offense. Keep us updated. You will get support...
Dreamer44, good but not good. So sorry. Zytiga was a piece of cake for my husband, except for the hot flashes were pretty strong. Thoughts and definitely prayers. Nhwife - we continue to walk this...
Another poignant reminder. Will share this one tomorrow on Facebook. Don't think my sons have ever been checked, but they are 36, 38, and 42. The oncologist suggested 40 with the genetic connection...
Just posted to my Facebook page too. Needs more exposure....
Smo1, Thanks for asking. Had a good day and a half after transfusion took effect and then crashed last night, except he couldn't sleep. Up and down. It's been rough. Some of his buddies have just...
Jitters - hope it all went and is going well with sister's visit. Will try to send some pictures. It's shocking to see how he's changed in two years. Welcome to HW Mandy. Nhwife - sounds as if we're...
Welcome Mandy, Welcome to HW, there are quite a few of us Warrior ladies and many of the guys on here who us on here and all of us will try to support you through this journey....
Thanks smo1, pictures went :-). They're really nice. He was just so tired. Going to blood counts tomorrow and check fluid retention issue....
What an awesome honor and opportunity. You'll do great. Anything to get the message out....
Thanks MsWW and Southern Comfort for hanging in with us. Jitters - hope your daughter gets engrossed and calmed by her training. Also hope things go well with your sister. Nice she cares so much...
Wow, that is a lot. I dont know i would have balanced all that now. it's hard enough with the kids, but work and your husband too ... phew. I was primary caregiver for mom for her last eight years. I...
Nhwife, any step forward is hopeful - hope is what has to keep us going. We have a neighbor like that. He is so upset about Mike, but they continue to kid around. If mike goes out front to sit, he'll...
Zytiga side effects for my husband were minimal to nothing except increased hot flashes. Everyone is so different....
Just another female warrior sending thoughts. It's a difficult road you are on with your dad and you will receive support and information on here. Take care....