I tried AdBlock (thanks Halbert) and it works great on a lot of sites!! Data...
Ken, The HDR was done in two fractions spaced about two weeks apart. Each fraction was 14 gray. As far as doing anything differently - I don't know. It may just be a slight chance and I happened to...
One other comment on this study by Dr. Mikkael Sekeres. The brachytherapy he was comparing was "interstitial brachytherapy", e.g. seeds. In my case I had high dose rate brachytherapy which uses much...
The study states "The study found less than 1 percent of prostate cancer patients developed MDS following their treatment." I may have been in that less than 1 percent. I guess I just got lucky. Data...
Here is a link to a document from the American Cancer Society that references "second cancers" and MDS (see page 2. http://www.cancer.org/acs/groups/cid/documents/webcontent/002043-pdf.pdf The...
Ken, As far as I know there is not a genetic test to determine if you are at a higher risk for developing MDS after radiation. I believe the risk is small but then it really doesn't matter if you are...
Michael, I am sorry for you loss. MDS sucks. Hope you have pleasant memories of you family. Cheers Data...
From my research and what the docs have told me about 80% of the MDS cases are denovo. They others are termed therapy related or secondary MDS. No one can definitively say what caused a single case...
I was treated in early 2013 for PC. At the time I was advised of all the risks including the risk of the radiation causing a second cancer. I didn't think too much of it at the time. I should have...
Karen and The Happy Turtle, Thanks. I don't think either my wife or I would ever see a therapist. She believes in God but I don't. We have both recently retired and it is a huge adjustment. You no...
My wife and I have both literally said "I just wish I could die". I have MDS and probably will. I wish I could help her her but I can't even held myself let alone someone else. I just don't know what...
Thanks you to everyone who responded and wished me well. I agree I may be scared in the future but right now I am not. I hope that continues. I think the main reason I am not scared is when you are...
I am a survivor of prostate cancer but have recently been diagnosed with MDS. My MDS gives me a median survival time of around 5 years. Strangely enough that doesn't scare me. I spent almost all of...
Pratoman, I was diagnosed in 1999 and was on watchful waiting until February of 2013. At that time my Gleason score was 7 (3+4) and my PSA was 11.1. I was treated with High Dose Rate (HDR)...
jym62 ,I did have my both of my HDR Brachytherapy treatments. It went very well. I had a slight problem with a urinary blockage but a catheter fixed that. I am not having and side effects as of now....
Thanks everyone for your input. As one of you stated I was just asking a question. I tend to like to have as much data as I can before I make a decision. Thanks again....
I understand that after radiation there is a possibility of a PSA bounce. How how is the bounce and how long does it stay high typically? Thanks David...
Thanks all. I am off to my appointment and will give the guy a few bucks. Don't want to seem like a cheapskate. Ha Ha. David...
Sonny, Thanks for that input. I appreciate it. I had some experince with Moffitt from my wife's cancer also. She had a pretty good experience (as good as you can have given the circuumstances). When...
JNF, I agree. I always put Datolli in the same class as Cancer Centers of America. David...
Now are we talking chronilogical age or how old we feel??? Ha Ha. I am in bad shape either way (62 years old and feel 82). David...
It is absolutely appropriate and I am sure there will be many prayers for him!!! Best of luck!!!! David...
Ed, Ha Ha. It used to be when you got prostate cancer, you were officially old but with the advent of PSA testing that is no longer true. Thanks!! David...
I did a little research (should have done it before I posted) and I think I found my answer. The parking at the cancer center where I go is run by Healthcare Parking Systems. In an interview with the...
The cancer center I go to has "Complimentary Valet Parking". I have read some hospitals directions and they specifically say "no tipping". Also there is complimentary valet parking at the VA Hospital...
I searched on the web for high dose rate . . . and found this. In my opinion they are wrong about being "virtually identical to HDR fom the 1960s" but I thought I would post it for everyone to judge...
Steve, The person I spoke to on the phone yesterday said they do Brachytherapy but only the low dose rate. ??? David...
Jav, Awesome news!! Congrats!! David...
David, I just called and they said they do not do the HDR Brachytherapy. Thanks, thought!!! David...
Has anyone been to the Moffitt Cancer Center in Tampa, FL. Would like to hear about your experiences - good or bad. Thanks. David...
Terrified, This is just my opinion but I would not be terribly worried over an increase of 6 hundredths of a point (0.01 to 0.07). I typically look for consecutive increases that are significant and...
While doing my research on PCa I read many reports that used the Common Terminology Criteria for Adverse Events and described adverse events as grade 1 thru 5. If you run across this reference you...
A, I needed that. Thought I would return the favor. I am not religious but I love Gospel music. You just gotta love Patsy Cline singing Life's Railway to Heaven ! Kind of applies to all of us...
Berdoo Man , Most of my research has been focused on Brachytherapy High Dose Rate (HDR) so I will only comments on that. I think a lot of the improvements that have occurred in the past few years in...
Clocknut, No problem. If that was my biggest problem I would sing and dance!! David...
clocknut said... OK, I must be missing something here. Are you saying that because an MRI showed no cancer that you are "cured" of the prostate cancer that was found in more than half the cores taken...
I will have to have one of each and I'll get back to you on that....
Healer, While I am happy for you and hope you truly have cured yourself but an MRI is not proof of a cure. In fact even a biopsy would not prove you do not have cancer. Time may tell if you do. But...
MauiViv and Harold, Good luck!!! I hope the phone consult gives you valuable information and if you go with the procedure I hope it is very successful! I would be interested in the results of both...
I received quite a few positive remarks when I originally posted this so I thought I would keep up with my trek thru Brachyland (not associated with or to be confused with Disneyland). I started a...
Jack, They said this procedure would be done on a Friday and I would be discharged the same day. Do you think I could reasonably expect to be back to work on Monday. I have a desk job and have to...
The main advantage of proton radiation is the "bragg peak". When the radiation goes thru the healthy tissue it is at a much lower intensity. When it gets to the prostate, if they have planned...
This is just an update on what I already posted earlier. The radiation oncologist I saw today had done some studies I had read about. They use hyaluronan gel to add space between your rectum and your...
My wife and I saw the radiation oncologist today at Moffitt Cancer Center in Tampa, FL. I had in my mind pretty much what I wanted to do – High Dose Rate (HDR) Brachytherapy. The advantages of HDR...
I think this was suggested in Dr. Walsh's book....
Hoorah!!...
Yes...
iSpark, I just happen to be reading something about HDR Brachytherapy and the article mentioned "secondar radiation-induced cancer" and said it was "uncommon (0.6%). I personally wouldn't worry about...
Toyoung, First of all good luck!!! When I was first diagnosed I was adamantly opposed to treatment. I took a lot of flak for my decision but I stuck with it. In all honesty I am not sure I am doing...
I just got my lab results from my PSA test last Thursday. PSA was up to 9.4 (was 7.2 in Sept of last year). The Free/Total was 10. I guess that kind of kicks my Active Surveilance out the window. I...