Kate...I did notice some pain relief while on 223...especially in my back. It was almost immediate after my first infusion. I also did a clinical study where I was gonna get another 6 rounds on 223...
Well Kate...I really didn't notice any SEs at all from the Xofigo....I finished that up a couple years ago. Don...I tried Xgeva for 3 years....and now I have osteonecrosis....where my lower jaw is...
Ziggy...I was using Olaparib just last month....I too sent my DNA test off to a lab and found out I was BRCA 2 as well. I had good results with the chemo Olaparib...went from a 1000 PSA to 300....
Bottom line is Medicare Likes to scare people. I always get sent a huge bill that says I have to pay huge amounts and then when I call them up....they say don't worry about it....I don't have to pay...
Thanks all and TA for finding that link. And yes, I do need to update the sig... :turn:...
Thanks for the feedback guys.....always appreciated. And Tall Allen....I think I do recall a poster about that but couldn't find the post. I hope youre right and the 66% drop is legit. This is...
Haven't posted in a long time...thought I'd send an update. As you can see by my profile, I've done IMRT, HT for last 5 years, Xofigo for 9 cycles, and 1 year of taxotere. My Insurance qualified me...
agree that the clinicaltrials.gov is the best site to look...and the one thing Ive found about trials is that having done chemo will disqualify you for many of them. If anything...I would get...
My Radiation Oncologist...Dr. Neil Mariados has been my favorite. He genuinely cares about my well being and has even gone over the top and gotten into nutrition and psycho. well being. Hes also...
This is a very good list...Ive been on it for the last 18 months every 3 weeks. I also get the nausea, mouth thrush and also gunk in my eyes every morning. Its like my eyes are glued shut until I...
You guys have good insurance plans as mine wont cover the CT Pet scan. I had 2 of them anyways as part of a clinical study but other than that I have to get the traditional bone scan....
Zytiga worked for me for 13 months....my PSA went from a 381 to a zero and stayed there below 1 for 13 months before slowly creeping up. The Xtandi however was only good for 3-4 months....
Hi Madagascar...I was a gleason 9 and am going on 5 years...will be 5 years in February. I was told by my first Dr. (Urologist) that I had a 30% chance to live 5 years so I guess I'm doing good. My...
I'm on medicare and get tested every 3 weeks along with chemo treatment...while on Zytiga I was tested every month. My Onc. wants one for every appointment I'm on but as carlos said....has to do with...
clocknut pretty much sums up my feeling as well...I still read here and there but I'm at the point where I like keeping my mind off of cancer and posting here just reminds me more....I applaud guys...
My doctor has no problem with me asking him stuff Ive found on the internet...and he encourages it...but telling a surgeon where to cut I believe is going a little too far. No matter how you slice...
I would think a GP would be a must....in my case I have no choice as Im automatically assigned one but only see him as needed or once a year...he does a great job of following my cancer and has...
Tommy...I was told by my Oncologist that in some cases...taxotere can increase bone pain...and in my case that's exactly what happened. I ended up having to boost my Oxycontin to 30MGs from 20....but...
Todd....first off...you are very lucky after 9 years of HT to be able to function sexually without ED Meds...I was good for 2 years of HT but after that I lost most of my function in that area...but...
ISU...Like Allen...I am amazed you can still continue to work while undergoing all that....as for me....in no way can I do my last job because mostly back/bone pain. But after being on chemo the last...
You havent really done anything wrong Laila....your father just has an aggressive cancer. Looking at your profile...it seems you were treated right for a Gleason 8 aggressive cancer. Im in the same...
Klc...I was on Zytiga for 4 months and started Xofigo during that time....The Zytiga worked great for my PSA and it appears the Xofigo took care of most of the bone mets.....only real side effect I...
great results Todd....I got 18 months on HT before it stopped working and 13 months on Zytiga. Xtandi only gave me 3-4 months and now on chemo which has my PSA stable at 46....its actually gone down...
Kukagoo...I only had bone mets...and no other organs and still qualified in less than 3 weeks from applying. Ive never heard about just visceral mets....especially since disability is based off of...
Well....heres something I found on the web: The following types of prostate cancer qualify automatically for disability benefits: •Prostate cancer that progresses despite hormonal treatment....
1-3 months to see an eye doctor.....this seems inexcusable to me. That's even slow for the VA....
Faust...yes....I tried Xtandi after the Zytiga failed me...along with Xofigo AND HT. My PSA went down just 2 from a 23 to a 21 and then stayed at 21 for 2 months so in reality Xtandi did stall it and...
LOL...oh dear, oh dear...
I was getting them every 3 months after my first treatment of IMRT/HT....however...from one PSA to the next in a 3 month window...my PSA went from a .96 to a 234....so Id say as much as...
I was denied the scan while on Tricare...which is a government plan similar to Medicare...they tried twice to put the paperwork through and was denied both times. I now have medicare first and...
well....I had the same experience with the active duty military pharmacy on post here at Fort Drum....they were very hesitant to give me Oxycodone or Oxycontin....I suspect because a lot of soldiers...
same here prato....we missed all the action! :turn:...
Sorry you have to be back GFM but on a positive note.....1 core at G6 is very curable....maybe not even need to treat but possibly AS....
so very sad stories here...I commend all you brave spouses who continue to stand by your man...your courage is inspiring. Sometimes I feel as though my wife doesn't want to hear me talk about it...
sounds like you have a great plan sonny...Believe me...I wish I could take a HT break myself just to remember what it feels like....best of luck to you....
Looks like our spammer is back... :shakehead:...
sorry to hear of your wife leaving you Shaba.....seems to me she broke her marriage vows....til death do us part and in sickness and in health.....I would never leave my spouse with something like...
After being on it for almost 4 years now...I still cannot accept it as a pleasant change....Ive learned to live with it..because I have to. Ive learned to fake my libido...or maybe tricking myself...
so far my chemo has knocked my PSA from a 109 to a 49 in one month or 1 round of chemo.....but has really thrown my blood counts for a loop....
I cant say for sure but I received an initial 6 rounds of Xofigo and then 6 months later started a clinical study to do another 6....unfortunaltely I only got 3 in for a total of 9 because my PSA...
Don't believe there are any secrets....he just happened to fall in the 5 or 10 percent like fairwind stated. Some peoples immune systems find a way to cure and many don't.....which is why in the end...
great news tattman....it appears SRT has done you well and has been quite the success story. with so much negativity about SRT here lately....this kind of throws that theory out the window....hope...
Rooting for the patriots..as I believe in Brady and believe hes a class act....last I checked in this country you are innocent until proven guilty. and as david said...they scored 28-0 in the second...
probably the North Koreans...
Vince....as many others have said...you have options. Only thing you can do is learn as much about each, pick one and run with it. I heard you mention Dr. Joseph on a post...in case you did surgery....
No doubt the OPs statement of "SRT is bad...period" was probably not the best wording and TA himself backpedaled and stated each case is different and SRT might be good in that case... And david....I...
adding my status...after 45 days of IMRT and HT...cancer came back 18 months later....then tried Zytiga and PSA went from 342 to a .6 and stayed there for 13 months... Then PSA started creeping...
Theresa...I had very little success on Xtandi and only took 4 months worth....but then again I was coming from 13 months of Zytiga which worked very well for that time. My PSA leveled at 20 and...
Cant agree with this enough....to include provenge at an earlier stage instead of me where I already had painful Mets and the narcotics disqualified me for it. No doubt it seems immunotherapy is the...
Thanks for that link max.....first time Ive seen that one....seems like a very user friendly site and especially valuable to a new patient who doesn't care to spend hours on the web researching....or...