Does he have bone pain? HT doesn't work for everyone, but it works for most, for some time, and it delivers a great deal of bone pain relief within two weeks for most people. And it'll clear a lot of...
Poor you, poor your whole crew! "Month from hell" is no exaggeration. Sorry you've been going through this, and I hope for less eventful days ahead. I can't improve on the advice everyone else has...
I am so sorry to read this, and so impressed by his phenomenal attitude and your strength. How lucky you are to have such a positive, fun and funny man; how lucky he is to have you! I hope some of...
OK the "multiple" part is scary, they need to figure out what's going on to stop the damage. But as far as damage he's already suffered, don't despair! The brain is an amazing thing, amazingly adept...
My husband is the patient Dr. Myers talked about in that video. The original poster mentioned someone asking about the zytiga needing to be reduced...I think Dr. Myers just meant the drugs were dosed...
Wow, what a tough spot to be in. I don't know enough about this PARP to give you an informed opinion, but from an uninformed position, I lean toward the guaranteed PARP. Remember when we used to...
Sport at its best...
Wow I'm shocked and sorry to read your post. Crummy news, but you're handling it amazingly well. I hope you and your team figure out a great response, that turns this around and gives you some pain...
MsWorryWart -- I'll send you an email tomorrow evening if that's ok. We're in Orlando at Sand Lake Imaging and they're keeping us an extra day due to their computers going down today (yesterday they...
Terry -- I'm so sorry for your loss. Bud is a loss to all of us, but especially for you and a few others fortunate and good enough to have gotten really close to Bud. I think your...
To Bud's family: many people have written eloquently about what a phenomenal life force your Bud was, and I couldn't agree more. I can't improve on what they've written -- the very fact that so many,...
I'm in also. I agree about actions being the way to honor Bud but I'm equally motivated to do something for a family that is feeling a huge loss. I know it will comfort them to know how much their...
Depending on how aggressive your cancer is/was, or how well it was controlled, you might want to reduce biking a little. Have you ever read how most of the riders technically have osteoporosis...
Linda -- more hugs and prayers for your Rad Dad, and for your family. Your dad should be so proud of how amazingly beloved he is on this forum. He always radiates optimism and perspective and caring....
I can imagine exactly how you feel. I can't say anything wiser than others already have, but I'll throw another encouraging voice out there. You're reaction is totally normal, but very likely not...
I've heard that the study showing an advantage for continuous over intermittent was very flawed, in that they compared continuous to a terrible, irresponsible, no-one-does-it-that-way version of...
Who would have thought this would be an anniversary to celebrate, but with five years of victory, it is woo-hoo worthy! Here's to many more zeros......
I like your thread topic/title....
Raddad I'm on a PCa mailing list and by chance someone just emailed about their experience with xtandi. I share it here in case it's helpful to you: "I have been taking Xtandi for 5 1/2 months now, I...
Crap. I'm so sorry to read your update. We haven't gotten to Xtandi yet, so I can't give you personal experience, but wow the stats are impressive. Over a 50% drop in PSA for the majority of men,...
That isn't complacency, that's progress! That's adapting to what life throws at you and not letting it get in your way. I'm hoping for the day my husband gets to where you are. PS like the line about...
Your cancer is aggressive but fortunately so are you! You've been really proactive about researching this, understanding your case and now that's paying off in this eligibility for this cutting edge...
Congratulations!...
I don't have anything smart and helpful to offer (which makes you wonder why I'm still typing...), but I just now read this posting for the first time, and am so sad to hear how much pain you're all...
Bud -- I'm sorry to read this, but it will just be a blip. I like Special Lady's thought. Regardless, we knew this wasn't going to be easy, but fortunately you are made of some hellaciously strong...
that is a bummer -- sorry to hear it. I hope some rest and pain relievers help until you get a pro to weigh in on things. Longer term, you might want to try out an elliptical. I was having more and...
I hope the cat survives and the sandpaper is obtained....
Great post -- what a good writer you are. That one character, the real ignorant guy, Mr81GyGuy -- how funny and true to life he is! You really got into his head. :) Optimism isn't sugarcoating. Your...
Hi Dam (I bet you didn't think about that becoming your first name when you typed in a user name!) Many other people have given you great advice on the medical questions, so I'll speak to the one...
Hi 1othersimon -- my partner's PSA was also in the 40's and for what it's worth, a urologist we spoke to early on, before more conclusive testing, said it was more common that a PSA that spiked up...
Thanks Peter - I'm so glad you fixed this. I really thought what happened to moonlitnight was out of character for our board, and am so glad you proved that right. Moonlitnight -- terrible...
Hi Jojo so I think the thing that caused you to post now is the lack of progress, or even the little blip up in his PSA on Zytiga? If so, know that there is something called a zytiga bounce, that...
Tednsal -- glad to have caused a new wrinkle in your brain...I usually make other, less useful wrinkles! And having the fear but pressing on and acting so brave (if you don't have to act, it isn't...
My husband wears one and has had few side effects. His doctor wasn't touting it so much for hot flashes -- the rationale was all about bone rebuilding. Which has been amazing. He had "innumberable"...
Fantastic news! thanks for spreading the happy...
I'm not sure quite where this came from, but I was driving home tonight and it struck me that you are all so admirable and courageous, and you ought to hear it from someone. You guys are dealing with...
I hope it went well. And that as is often the case, no matter how bad the news is, being there for the people you love often makes you feel better, reminds you of all that you value in life....
Wow! that is one impressive man, going through that and then having the great attitude, love and willpower to truly enjoy his son's wedding. I hope you both love every minute of the well-deserved...
During my last pregnancy, I had terrible nausea, and eventually I was desperate enough that I found a Chinese oncologist who did acupuncture. He did it in the infusion room -- some patients were...
Thrilled (but not surprised) to read such an upbeat report from you! How very Raddad to be such a trooper (not everyone suffering through chemo notices so much to be grateful for) in his own odyssey,...
Grinnell86 -- thanks for posting this. We all knew this was coming, and his silence says a lot, but it feels better to know, and to know what an amazing man he was. He suffered too much and died too...
Fantastic news!...
Do ask the doctor treating your cancer about what you need to do if anything in preparation. My husband is on ADT and some other stuff for his PCa, and has a hernia. His doctor said he'd need to come...
cb21 -- you asked if HT will help with pain. Not everyone responds to it, but most do. If your dad is one who does, he should get pain relief within 2 weeks. My husband was in severe pain from bone...
Not crazy at all. I give you points for courage. You can't force yourself to make a huge decision any faster -- you have to wait until you're comfortable. Your moment of clarity about having that...
It seems opinions vary on the frequency of scanning. We went to Kwan at Mayo initially, and I got the feeling they believed in scanning at regular intervals to track progress (whether it's the...
My husband's cancer diagnosis was triggered by persistant lower back pain. He wasted months going to a chiropracter (he'd fallen on the ice, and assumed that was the cause -- previously he hadn't had...
For what its worth, Dr. Myers tells patients not to juice carrots. Eating them is fine, juicing is not. He said you could not eat enough carrots in a short amount of time for it to be problematic,...
Craig - thinking about you and hoping the best for you...
what a relief! For her, him, and all who have been worrying. thanks for the good news!...