Thanks everyone. Kind words do seem to soften the hurt. Luckily(???) I am too busy to let myself get too low. My husband had sold his business and the new owners take possession this weekend. He had...
It has taken me a couple of weeks to bring myself to write this. His PSA had climbed to 10 and we were booked for a bone scan and an oncology consult to determine next plan of attack as...
Wow!!!! Congrats...
Couldn't be happier for the first person to welcome me here. You were such a great calming influence for me at the beginning when I was all flustered and crazy like. Lift one from me... Nancy...
Actually it looks to me that the study at Science Daily says that there is no proof that soy helps to PREVENT cancer which is consistent with #8. Dr Catalona seems to suggest that it might reduce the...
Welcome?????? Doug and Lisa. Lisa - you and I are in the exact same spot. Signatures looks very very similar (although we are about 1 1/2 years farther in) and I too have a technology challenged guy...
Pat......My heart goes out to you. So sorry for your loss Nancy...
So sorry for your latest frustrations. Here's hoping for a better experience today...
Wow!!!!! Way to go!...
Barb. So sorry to read this. I am afraid that I can not offer any advice as I am another who needs advice from all of the wisdom of this site. Some day I may be able to offer something to others but...
Gee Zufus - sorry to hear what you are going through. No wonder you have experiences with our relatively minor issues. All my best Nancy...
How nice for you! Enjoy...
Yes Zufus. I think I agree with you. I honestly think we will be looking at other options in the near future but I guess you at least TRY Casodex. I don't want to seem like a pessimist...I like to...
Thanks you guys. I was looking at it that way myself and then stared second guessing myself. "Not up" is good...
My husbands PSA was going up fairly rapidly while on Lupron and in early December we added Casodex. Just got the first PSA done since and it has gone up to 6.5 from 6.0. It took about 3 weeks from...
No discussions as of yet but haven't had a follow up since adding the Casodex. Why do you ask? Is there a benefit to Zytiga? The pain was evident before the Casodex too...just not quite so pronounced...
Hi Buffalo. Our signatures look very similar. My husband has been experiencing a lot of pain....not sure if it is joint or muscle......in his legs/groin/butt. It seems to be getting progressively...
Sorry Jaxum.....don't know af anything that helps. I know my husband would love to hear of something if there is anything. He too is finding his mental acuity to be less than it was prior to...
Pat. What can I say? What can anyone say? My heart bleeds for you. Life is not eternal, we all know that but I don't think anyone ever thinks they will be talking about hospice with their love. May...
We have just recently added Casodex. PSA test in early February to see if it is doing he job. If not, I expect next steps will be discussed then. Not looking forward to that discussion very...
Hi there. I am certainly no expert but can tell you our experiences. My husband is tired and has a general overall achy feeling. He finds that his upper legs hurt. He ususally ends up having a nap at...
Thanks Tall Allen. I thought the bone mets were an issue. Sorry for hijacking the thread for a bit there...
Tall Allen.... Can you tell me any more about the sunnybrook trial. Does the presence of bone mets eliminate you from this treatment? I have been hearing a bit about SBRT for advanced cases but I...
Beautiful spot!...
Hi Ashley....fellow Canadian here. I am categorically not an expert in any of this but I thought I would try to put some of your fears at rest. It feels like everything is going so fast right now but...
Couldn't agree more...
Sally. My heart goes out to you. Your "journey" seems to be uphill right now and I am so sorry to hear your struggles. Peace to you and your family Nancy...
Yayyyyyyyyyyyy...
Merry Merry Merry Merry Christmas...
My husband has pain in the injection site for a good few days. No matter which nurse has administered it....
Sorry to hear about your latest struggles. Let's hope it get resolved soon Nancy...
Good morning Barb. I tend not to post much on HW but felt a connection to you. Our husbands journey seems quite similar. He started Casodex last week after Lupron failed in 6months. My husband is G9...
Wow. What fabulous news! As Canadians wintering in the US, we celebrate Thanksgiving in Canada and then again when we get to AZ. I have always said that we do that because we have twice as much to be...
Congrats! We'll take some of what you are having..........
Hallelulah! What more can I say....
Thanks Peter.....I have been telling him that but he is having trouble believing me...
Latest PSA came back...Up again...Dang. I guess it is time for second line hormone therapy. Hubby is so depressed. Lupron alone only worked for about 5 months. Lowest PSA 1.2. I hope and pray that...
Doesn't sound like that is a procedure you would want to stand in line for. Let's hope that you get some significant relief from it Nancy...
Hello all. I apologize for not commenting over the last while. I have been reading but just could not get myself to reply. I can't really explain why. Reading your updates, I feel completely...
Not too happy about being a part of this crew but am thankful for the help and support I have received in the past. We found my husbands cancer after they discovered blood in his urine when getting...
Thanks for all the comments. We are heading to AZ in 2 weeks and will have another PSA done as soon as we get there. As I understand, using 2 different labs has issues associated with it so we may...
:shakehead: I had made a conscious decision to not pop in here as much....live for the day and not think about PCa. Seems like a great idea until I have any sort of a hiccup. Ct scan showed some...
Passages..... Had decided to take a break for HW (we are focusing on the now) but still check in periodically. This check in was so very sad when I read your news. My heartfelt condolences. Peace be...
Jitters......my deepest sympathies. Remember that love is eternal so you have your beloved eternally Nancy...
Redwing....I don't suppose it matters much but we were diagnosed in 2012 not 2006 as stated in your list I am pretty sure that there are more of our "club" that are not on the list as well. Jerry L....
Jitters - I will add some Canadian hugs and prayers your way. No words can express..........
Much the same here. No progression that we know of - thank the lord - but the SEs seem to be getting a bit more pronounced. Leg pain is starting to make him walk with a bit of a limp even with...
Just a quick pop in to tell everyone that I am thinking of them and hoping for the best.......whatever that is. Nancy...
Holy Jitters. That is all i can say. Holy! Nancy...
I already posted on Passages other thread. I have been long absent from HW and am so sad to hear that so many are having more issues to deal with not fewer. I have no words of wisdom to impart....