dsmacYou need to be treated by an Oncologist, not an Uro. He has already used everything in his tool box and especially since there is very little communication from him, you need to move on very...
Worried Guy I also received the news of a high PSA from an insurance company. I had no clue what PSA stood for or what it meant. My future was pretty well predicted after visiting with a Uro. A very...
ALWAYS ask your doctor for a copy of any/all tests. If scans are taken, get a CD copy for your files. Saves time if other doctors need to look at a scan. You are responsible for your own health care,...
A Yooper said " It's a darn shame there a few angry old men here that can't keep that crap to themselves. Feel bitter about life if you want - but I see no reason for some of the posts. Nothing wrong...
Kid Congratulations to your Father....
Signature tells most of the story. Currently treatments on hold while I'm the caretaker of my wife's final phase of lung cancer. Sharing an IV stand giving dual chemo's is not in any of my plans....
Q Take care and I wish you the best with your treatments..............
Quincy Our Oncologist won't allow the port to be used for blood test. It has to do with the blood being pulled into the port and the residue not throughly being cleaned out which can clot. Most...
To anyone that may be looking at any type of multipule infusions, I would strongly recommend getting a power port implant. It is placed just under the skin, below your left or right breast bone by a...
Adblocker screwed up my IE8 and it would not work. Took a while to find the problem. It had changed my default site to an unworking address. Reset the default. Works fine now. Thanks for the info. ...
OMG, electrical probes stuck up where?????????? If you can stop urinating mid stream, pay attention to the contractions that you are using to stop the flow. These are the same muscles you should be...
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There is a chat room tonight folks. Why not take it there. You are not going to resolve anything here. Same old story from the same old folks...............
I have made purchases from off-shore for many years, I have an order pending at this time, and I will continue to purchase in the future. Its my choice and care less what anyone thinks. There are...
njs said "My understanding is that when the nodes turn out to be positive removing them is therapeutic and potentially curative." I'll have to pass this on to my wife and her Oncologist, since she is...
My Uro advised after he opened for the RRP, the first thing he did was to check for involvement of the local lymph nodes. If the lab indicated postive, he would have closed the incision and not...
Great results You advised that his first test was <0.1, which is the same as <0.10. The first test may have been <0.06 by using the ultra test, so possibly there has been no change at all....
The is a story of my first severe flash. I have always been interested in RC flying. I bought a kit, put the plane together, installed the RC equipment and had arranged to meet a RC flying instructor...
Congratulations Tony, from the Wichita UsTOO Chapter.............
A major item to consider before retirement for those younger than 65. Cost of health insurance. If you have been Dx'd with PC, there are going to be terrific expenses for treatment. Maybe the old Co...
gold horse You stated your PSA was 0.01, but your sig stats indicate 0,04 and the last one was dated 10.09. What is your current PSA and when did you start taking T?...
DGV You are going to hear from all sides of the fence. "X" is the standard, vs the "Y" people. Then the "Z" people show up and say everyone else is crazy. Do your homework, create a medical team that...
Jerry I noticed that you were treated with Avastin. Was this part of the trial you participated in? Were you infused or took a pill? How many treatments of Avastin did you have and how often? Any...
You will find a great bunch of people on this site that are here to offer their best advice derived from their own experiences. Many had high PSA's and were GS9's. You have a long life ahead of you,...
Hi Dave Very sorry to hear that you didn't discover the problem much earlier. Don't despair. Your Uro appears to have started a great beginning, but you also need to be under the guidance of an...
Congratulations to both of you. Wish you the best. /community/emoticons/smile.gif ...
Allen The abscopal effect you mentioned is an extremely rare event seen during the treatment of kidney, melanoma, and lymphoma cancer, using ipilimumab with radiation therapy. Human treatments...
Time101 If you check this link it will show you all of the UsTOO PC support groups in NC. It is a great organization that can supply you with much needed support and information and you can get...
My IE 8 worked great this time. No errors or lockout. Thanks Peter...
My Oncologist follows Dr. Stephen Strums protocol of ADT treatment. If one can maintain an undetectable (1.20. Then the treatment starts again if needed....
Gentlemen, has anyone considered why one was given Lupron shots in the first place. Lupron has a purpose that has to do with Testosterone. Have any of your doctors explained what happens when you are...
Make sure the address is correct. This is the one I use that takes me to the posts. http://www.healingwell.com/community/default.aspx?f=35 ...
Post deleted by Putt. Duplication...
He should not be concerned about anything at this stage. Curious, yes, which can be taken care of with regular (tri-monthly) PSA testing. Relax........................
Most well known Oncologist consider anything <0.05 to be classified as undetectable. Hey guys, relax and enjoy the holidays and have a great New Year....
TahoeJ I wouldn't worry too much about the 0.08. That is hardly out of the undetectable (0.05) range. Before returning to Lupron, you should recheck at 3 months intervals in order to determine the...
I also would like to know what kind of a doctor would stop HT in 7 months when the PSA was only reduced to 4????????? That is not the criteria for intermittent therapy. A nonsense...
Mel Having failed RP and SRT, I don't think I would wait until it hits 4 before starting HT. A lot of docs start HT before SRT especially when there are positive margins. Wish you the best....
Helpful hint for those getting a Lupron shot from one with lots of experience. Take the weight off your foot on the side of the injection. It relaxes the hip muscle. No pain during or afterward....
Putt Was a nickname a class mate started in the 2nd grade. Don't know to this day why it was picked. It has been my login name, on many many sites, for years. No I do not golf...................
G9's can be managed for many years. Even with trying to manage a severe case of COPD..............
My wife received a catalog that had a section that dealt with items for incontinence. It has a few items that I have not seen before and I thought others might find this info useful. The web address...
My Oncologist let me take a holiday from Lupron after I was successful in maintaining a <0.05 PSA and a T level of <40 for 24 months. I have enjoyed that holiday for over 5 1/2 years. Not...
Sorry about the news. For right now put it out of your mind and enjoy the Holidays. However, after they are over, please repost your reasons for waiting until Summer for HT. For now, that discussion...
HKdaughter You have already mentioned the basic ones and much has been written on this forum already so take a look at the links provided by Zufus. The http://www.yananow.org/ site is worth its...
Worried Guy You posted excellent advice, with one exception. "Once he begins HT treatment or radiation or ... he will not be thinking quite as clearly nor will he be as mobile." I noticed that...
Guys, keep in mind that if you go on HT, you need to monitor the levels of Testosterone. If it does not go to castrate range (<20 ng/dl) and stay there while you are on Lupron, then Lupron alone...
Any trick or treater over the age of 12 will be greeted at my door by my doberman. This is the night she loves to show her authority....
John T I tested the e-mail address that I use on this forum and it worked fine. Don't have any idea why yours failed. Disregard trying again....
Muz I agree with you. As an active member in a PC support group, I have found that most men refuse to acknowledge problems or discuss any subject that might be going on below their belt buckle....