Just an update, I have just passed my 5 year anniversary since being diagnosed. My health has been generally pretty good, I feel well and my PC seems to have stabilised and on hold. I have a few...
On this day in memory of the centenary of the ANZAC landings at Gallipoli and for the soldiers of Australia and New Zealand who have fought in all the wars and made the supreme sacrifice for our...
My short term memory is now shocking, it is very frustrating to forget simple things like the milk when shopping. As someone already has stated the emotional side of ADT is very hard to take....
My urologist didn't mention ED. He just sort of glossed over the subject by saying "at your age (66) I suppose you have finished your family......" Or words to that effect. I didn't really know what...
Casper, I have been on Zolodex continuously since August 2010 and Xtandi since April 2014, I had a lot of body hair and was almost totally bald on the top of my head. Today I have very little body...
Billy I forgot one SE.......fatigue. Not sure how I could have forgotten. At night come 8.30 or so I am out to it but will wake up around midnight for an hour or so. Very frustrating for my wife....
I have been on Xtandi since April 2014. I am also on 3 monthly Zoladex, basically I find no difference in the side effects from Zoladex to when Xtandi was added. My side effects from Zoladex are Hot...
When I was on Flomatra I was told it takes some time to start to have effect and when you stop taking it there is a lag before the effects wear out of you system....
Wow , you guys were lucky. After my biopsy I had to have a catheter because of voiding problems I was sent home with no instructions or anything about maintenance. After nearly 4 weeks of agony I...
I was like Chas, Casodex for a month and have my first 3 monthly Zolodex injection at 2 weeks after starting the Casodex. My urologist said this was to stop PSA flare. I don't know if it does because...
Theresa See my post to Don "under to continue or not continue". For me Xtandi has been miraculous and except for increased fatigue and perhaps an increase in hot flushes ( this is a bit hard because...
Don I know we are all different and drugs have different effect/reactions with us, also our cancers are all different but for me Xtandi has had a miraculous result so far. March PSA 24 Xtandi April...
I am a G9 and whilst I haven't had radiation or chemo yet, my treatment has been ADT (Zoladex) and then Xtandi in April 2014. I was diagnosed in July 2010 with a PSA of 254, by April 2011 my PSA had...
Racer trace, Glad your experience was good, from my experience I would suggest wearing a man's pad for a little while to ensure accidents don't cause any embarrassment. When you are confident things...
Racertrace As almost10 and 81gyguy said it is usually no big deal on the removal, it is the going in that can hurt. But that also depends on the skill of the nurse or doctor. It is the thought that...
CADguy The Boy Scouts motto "Be Prepared" is definately the way to go. There is very good information on this forum and some very learned people who can give you very good advice. The other advice I...
CADguy Sorry to hear of your high PSA, However, you maybe jumping to conclusions a bit early, without a biopsy and scans it is very difficult to know what is going on, I would get a retest on the PSA...
As the others have said with the lidocaine there is no real pain just a bit of discomfort and a little embarrassment with a team of females looking on. But make sure they wait a bit for the lidocaine...
Chask, I suggest you get a second opinion, Google Raji second opinion Sydney, this could be a good avenue for you. I am sure you can get a urodynamic test quicker than you indicated. Hope all goes...
I find I go to sleep around 8.30pm (much to my wife's frustration), get up 2 x for a toilet break and get up at 6am but then find at about 8.30am at work I am struggling for an hour or so if I am...
Hi ShineyTop, The ultrasound is easy, I don't understand the 2 greenlight Turps, when I had mine done I had Holmium laser and needed a second minor redo 4 months later because of some scar tissue...
Hi Barrry, I cannot imagine having a prostate biopsy awake, and from what I gather you guys in the US have your biopsy in the doctor's surgery ! Over here in OZ it is done under general anaesthetic...
I am nearly 4 years (August) and still get hot flushes. You get used to them a bit and work around them....
I have been on Xtandi just 2 months now, plus I am still on Zoladex (ADT). There is really no change to prior to commencing Xtandi, maybe a little more fatigue. But this is hard to measure because...
Mrsmarty In August I will have been on Zoladex for 4 years and still get hot flushes and also perspire with any exertion, obviously much more in summer but also in winter. My clothes give the washing...
Izzy, I would scan, both bone and CT. You then know what you are dealing with. Also you have a baseline for later to compare. Geoff...
How are you guys on MDV3100 going and how long have you been on MDV ?...
Jstars, As far as I am aware all Turps are done using an instrument which is inserted through the penis and sort of "roto-routs" the urethra(inside the prostate) and part of the inside of the...
After having monthly tests for over 2 years and then bi monthly for nearly 2 years I am really not that fussed with the actual blood test, but I am a bit on tender hooks waiting on the results and do...
Shiny, I have had Holmium Laser (HoLep) in October 2012, this was for urgency and frequency. I was voiding up to 16 times a day. The procedure went well except I had an issue with some scar tissue...
I was on Flomaxtra (tamsulosin) at night for urinary frequency and Vesicare 5mg in the morning for urinary urgency. Both seemed to work for me, but it is a bit hard to tell because they take some...
F8, You are taking JohnT's comments the wrong way, he said "laid back" which to us Aussies means more relaxed/casual/informal. He wasn't criticizing Californian's work ethic. If anything JohnT was...
Jaxum, I would love a fix, I find that my short term memory is now absolutely hopeless, You can tell me something and in less than 5 minutes I have completely forgotten. My long term memory is not...
grandpaof4, I too was diagnosed with the beast far too late, I was diagnosed July 2010 with PSA 254 and Gleason 9. With PC metastised to by pelvis, ribs, legs and shoulders. Last week my PSA was 22...
It is very hard to separate the shock of the diagnosis and the mental issues. I believe the mental issues are on going and with you all the time, whereas after a time the initial shock of your...
Redwing, Tonight I get my 13th 1/4ly Zoladex jab, I don't believe my hot flushes are related in anyway to the timing of the injection. I get 4-5 a day of various intensities. Mine are mostly related...
Halliday, I can recommend TURP to fix the urinary, I had holmium laser and the recovery was very quick. My first in October 2012 was reasonably successful for a couple of months. But after that I was...
How did I find out ; On 1st July 2010 I went to my Doctor because of urinary frequency and because periodically I would momentarily be short of breath. Until then I would rarely need to see a doctor...
I have been on ADT for almost 3 1/2 years, the hot flushes haven't got any better, I still have 3-4 a day in winter, or more if it is really hot or I am rushing about. I hate summer and we are about...
I am in the reverse situation, my blood pressure has been high and I am on BP medication to keep it down. However, I was on Flowmaxtra ( tamsulosin) for my urinary with the bonus of helping lower my...
After reading the side effects and the regime of medication etc with the infusion of Taxotere,I wonder is the quality of life versus the survival benefit worth it ? Maybe making the best of your time...
* But at the end of the day there are still too many men and women dying from Prostate and Breast cancers. * * I live in Australia and here are our statistics :- * * Each year in Australia, close to...
Guys, I have penile shrinkage and my treatment has been only ADT. My urologist didn't mention anything about this and when I asked him about it, his only comment was it was my imagination. Also he...
Find a new Doctor or Urologist, make sure you follow the don't do list, horse riding, bicycle ride, motor bike riding, or sex/********** for 3-4 days before the PSA test. Ask for DRE at the same...
Hi Randy,Sorry you have joined us, I am Gleason 9 with PSA 200 at diagnosis in July 2010 and still around. Make sure your daughter goes with you to the doctors, you are told so much stuff it is hard...
My scores are against the trend of the examples above. At dx my PSA was 200, 7 days later was 254 (different labs, so there could be a little variance) my gleason was 50% 4+5 and 40% 4+4. Interesting...
Hi Canuck77, I work full time and usually have a fairly hectic day, I am at work around 7am but have a 45 minute drive to work, lunch is usually eaten on the go and I finish around 5.30pm, the drive...
Hi Canuck77 I have been getting my Lupron (Zoladex) every 3 months since July 2010. My doctor injects me with a small amount of anesethetic first, he gives me the injection in my stomach about 75mm...
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Giants Fan, I went to our PC support group meeting last night and the talk by the guest Doctors was on ED and incontinance, both Doctors said that both could be done at the same time and that they...