I haven't been on here in a while and am still cancer-free a decade post-surgery and salvage radiation. A friend of mine works for this organization and sent me the link for this virtual summit March...
I used Cialis and Viagra early on but didn't like the side effects. I've been on Alprostadil injections for 5-6 years and am having great success. Pretty much 100% effective and dependable. It's one...
Are you also seeing any blood in your urine? Tinge of red or pink? Any pain or discomfort when urinating? If any of the above, you could have an infection (as was mentioned) or you could have some...
I've now, officially, joined the five-year club! The results from this morning's PSA test just came through and I'm still showing zeroes 60 months out from the end of salvage radiation. I'm down to...
For the past 3-4 years, I've been on Alprostadil 20mcg/ml. A local compounding pharmacy makes it up for me and the last time I bought a 20ml Rx it cost me $148.00 w/o insurance reimbursement....
No staples here as they sealed me up with surgical glue. However, I am pretty sure I've had a Hem-o-Lok clip come loose inside and migrate near my bladder and it's irritating the anastomosis. Seems...
It's not unusual to have discomfort with the catheter. Do you have a snap swivel taped to your thigh to keep that tube from sliding more than needed? Hopefully, you'll be able to get it removed soon....
I did my SRTs at 8:00 a.m. - the first appointment of the day. No matter how well they schedule, there are delays or hitches on various days and the actual times can get pushed back when you are...
Any chance you've developed obstructive sleep apnea? I didn't have a baseline T until after my first PSA test following my prostatectomy in 2011. During a recurrence of PCa, my T went down into the...
Lots of good info on this thread. I did the pills with variable results, and the usual side effects, for a couple of years and then switched over to straight Alprostadil (not bimix or trimix). Works...
Here is a case study write-up on the topic. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2963780/ https://www.hindawi.com/journals/criu/2014/397427/ .....
Back in 2013, I posted that I was going in for day surgery to remove some bladder stones that had formed about two years post-prostatectomy and one year post-SRT....
All these war stories make my Alprostadil injections seem like a cake walk. :) Although it is slightly inconvenient at times, not having the SEs like I did on the pills is a bonus. Also, way...
Welcome aboard, PCC. Great crew here to walk the journey with if you end up needing to do so. As others have said, the biopsy is not pain-free but probably not as awful as it sounds. The local...
Tim, Congratulations on the good report. Roehrborn is my urologist, too, and did my daVinci in 2011 plus follow up since. He is top shelf at UTSW and the hospital also has some of the best staff. And...
I usually slept in my recliner as it is super comfy and I don't move around. Can get up easily, too. Also slept in bed on my side a few nights. My catheter had a swivel anchor stuck to my thigh and I...
Hey, Sloop! Congratulations on your surgery and the progress post-op. Sounds like you are doing well overall. We all have different experiences as you know. I had my first uro appointment (well,...
If you have a dog, do not let him/her near your catheter or bag. (No, I did NOT have an issue with this.) .....
Welcome aboard! You'll get some replies from those who are on Trimix. I am on straight Alprostadil (PGE-1) so also doing injections. My first two questions would be: (1) Did your husband's uro give...
First of all, welcome! Trust you will find this forum helpful in the days ahead. You have had major abdominal surgery. It is not unusual at all to have the testicular pain and you may even find some...
Mikey, I would probably echo David's thoughts and suggest waiting a few more months to get some of your immediate issues with incontinence and ED addressed. Time will be somewhat of an ally for yo on...
Wally, I had similar symptoms during the past 14 months following salvage radiation. Urgency, pain, passing blood and clots periodically--sometimes a pool of blood. (Had also passed a couple small...
Update 8/16/13 Well, yesterday was day surgery and all went well with the cystoscopy and lasering of my two stones. My uro said the one stone was larger than originally estimated and both were wedged...
Full bladder from my RO for my SRT...20-ounce bottle on the trip in was the recommendation. By the end of the first week or so, you get in the rhythm of what will work for you. There were times I...
Congratulations on your continued good numbers and other positive progress! On the pain issue, you might want to do some searching on "dysorgasmia." Mulhall talks about this briefly in his book,...
As the others noted, the dots are for alignment only...and the molds keep you from moving around. There may also be some imaging alignment as the techs take a radiologic shot of you and fine tune...
I had daVinci in April 2011 and SRT in Spring 2012 following recurrence. For much of the past year, I have had fairly regular discomfort during urination, ranging from mild to painful. Also have had...
Congratulations, neighbor! Great news! .....
I already have an iPad. Perhaps I could use a pPad. .....
I have CIGNA and my copay is $35/month for 12 pills regardless of which ones. Within a brand like Cialis, I cannot quite understand the logic of approving the same number of pills regardless of the...
Are you talking about size in the soft or flaccid state or do you mean your erections are smaller? .....
And whether you do tea, coffee or whatever, it is very helpful to drink a lot of water such as the usual "8 glasses a day" regimen. It will not only dilute and neutralize some of the other things you...
Franco, just so you have a reply in words on here... The injection goes into the Corpera Cavernosa which are on either side of the penile shaft. I inject about an inch up from the base at around the...
That is a good update, Chief! Relax and enjoy the news as you have a positive track record going. I have heard it said that worry is "interest paid in advance on a debt that never comes due." If...
Out of my 39 treatments on the Varian, I probably got canceled 4-5 times due to various issues. The Radiation Oncology Center at UT Southwestern had two of the machines (more at other sites on the...
At the recommendation of several others around here, I am reading through John Mulhall's "Saving Your Sex Life" book that was written specifically for guys with PC. Wish I had read it two years...
Hey Chief, You may want to pull up your signature block and edit the dates for your post-surgery PSA tests to 2013. Trust your re-test will put your mind at ease. Too early and too little data to...
Peter mentioned the cost of Alprostadil so let me just add that my compounding pharmacy does not bill insurance for my script...I have to file the claim from home. The cost at the register for a 10ml...
I am using straight, compounded 20mcg Alprostadil and injecting with an insulin syringe (have used 5/16" and 1/2" needles). I have a 10ml vial and just draw the amount I want to use each time. Real...
Good word, Melissa! Glad you had better responsiveness today! I have some radiation cystitis and am currently on Elmiron which seems to be helping. It appears to provide some protective coating to...
After having mixed results with both Cialis and Viagra the past couple years, my uro suggested trying injections when I saw him recently for my one-year post-rad visit. (Undetectable PSA, btw, so...
I had a mammogram about 20-25 years ago. Turned out it was an inflamed lymph node and some antibiotics nailed it. Your biggest adventure will be going through various gyrations to get your flat boob...
Nick, Like you, I was carrying some extra pounds...About 215-220 on a six-foot frame. While I was actually diagnosed with PCa at age 54, I was having similar pain in my lower back, right hip and...
demtap, I was in the middle of typing a reply that was very similar to that of njs except my kids are 20 years older than his...and maybe yours, too. His counsel on making contact with an advanced...
I was the opposite of Allen in that the SEs (headache, stuffy sinuses) from Cialis 20mg hit me harder and lasted longer than the Viagra 100s I have been using more recently. Seem to have slightly...
I was at 3.6 when diagnosed and I went to the Uro on my own initiative, not on the advice of my regular doc who was not overly concerned since I was "under 4.0." (I have helped her with a better...
You'll get some replies from MUSE users, I expect, but I was wondering if there would be some value in checking with any of the compounding pharmacies mentioned in other threads related to Bimix or...
Keep in mind this is initial staging and a best estimate of where you stand at the moment. To get to T2, you typically need to be at a point where the doctor can feel it on a DRE or else it shows up...
Drum, at 12 weeks, you may be ready to graduate soon anyhow and make this all moot. After initial surgery in 2011, I used half a bag of pads and was done--at the time, anyhow. Hawk is right about the...
Hey, all... DaVinci two years ago and salvage IMRT last spring after recurrence. Since around Christmas I have been having intermittent rectal bleeding with bloody stools and, once in a while,...