Our fathers PSA has now jumped up 25 points to 92. He has decided to not take Jevtana. We are wondering what to look for and expect. All meds have been exhausted and supplements and diet have failed...
Great comments! Thank you all! Dads Dr does not think much of the Vit C overload - I tend to agree. The desperation when nothing else remains often leads one to paths with little reinforcement of...
Thanks for the info. He has had taxotere (docetaxel) twice. He has declined Jevtana and his Dr is in agreement. He has had all others plus several trials....
This is a question with multiple follow up questions. Anyone on here here or have experience with IV Vitamin C as a treatment for PC? It seems to be fad oriented and pops up frequently mainly via...
Beth n Gary, Sorry to hear you are at this point also. We have searched clinical trials finding little for this phase of progression. Prayers your way! Hang in there!...
My father has been on every treatment available in his 15 year journey with PC. The final was a 2ND failure of taxotere. His PSA is at 71. A MRI of brain showed all clear. A body scan will be done...
My father benefited from Xtandi for about 6 months and then PSA went crazy. Our Dr in the USA says the same about Jevtana. After researching and actually speaking with men who took it, we have opted...
Sal, My father has been recommended to begin the Radium 223. Can you share the journey your husband experienced with the drug. His only other option appears to be Jevtana which has said he does not...
NKinney, So are you saying it is high dose or low?...
Got it - thank you! Now to see if it is effective on a 2nd go around! Dr is not expecting much but thinks it is the best and only option now....
Allen, My father and his Dr have ruled out Jevtana for quality of life reasons. Taxotere hit him hard last time and seems to be doing that this time already - 2ND treatment today. Here is his actual...
My father has begun taking Taxotere again. He was on it in 2008 and then it stopped working. His Dr is trying it again since he has had all other meds and failed those. He is keeping him on Xtandi...
My father has been on Xtandi for 5 months. PSA started rising in fourth month and now has tripled in 5TH. Hope you guys see better results. He has zero side effects other than some fatigue....
Pat, Thank you for sharing from your experience. I know that is not easy! You have answered much of our concerns. Your words have provided a map for our questions and for this we say THANK YOU! I am...
Special Lady, Yes, he has been through all the HT and even some that failed in trials - 2 or 3 trials that we know of. His not wanting Jevtana is due to QOL issues. Our mother passed away several...
Thank you both for your thoughts and help! It is a tough road we travel. The children are at peace with palliative care - more so than dad. Our main issue is making sure he realizes that this is the...
Dads PSA is doubling on Xtandi and tumor activity is starting. Dr has hinted at going back to Taxotere at a smaller dose. Anyone have experience with this approach. We children are wondering if Dr is...
Thank you Alan - I will dig into that info!...
Thank you all for your thoughts! This battle is so complex! Just thankful there is a battle!...
Currently on Xtandi with Xgeva and Lupron, our father seems to be experiencing some mental lapses etc. Difficulty formulating a thought and voicing it with proper order - starts in middle, goes to...
EagleKeeper, Thank you for your thoughts and prayers. This disease along with treatments has a way of taking its toll on the body....
On my fathers last labs his kidney numbers changed for the worse on all except the BUN category. And this change was within a three week period. Does anyone have any experience with this? According...
tednsal, You guys have been through a lot! This journey is so up and down and constantly uncertain. My father seems to be delaying the Xtandi for some unknown reason. We have decided to not push. we...
Pat, Thank you for the info. The "another bullet" is one of the things we children have been wondering about. Dads Dr does not seem to think that another exists other than Jevtana once Xtandi fails....
Wonderful news! Indeed WELL DONE!...
My father has been on Lupron for 12 years - during chemo, three different Radiation regimes, Zytiga, Provenge, and now Xtandi and Xgeva. Not sure why they are waiting....
After radiation the Dr has now decided to go the route of Xgeva combined with Xtandi. The statement was made that Xtandi was similar to Zytiga so Dr was not expecting much with the Xtandi. Has anyone...
Rob, Are you able to drive etc.? You mentioned treadmill needed-are you confident in ability to get in decent workout and know limits of body without getting into trouble? Keep on trucking! TG...
Curious if anyone has experience with side effects etc of radiating two seperate tumors? Wondering if side effects are increased and what they be like. My father will begin this process later in the...
These posts are so helpful! You are prayed for daily!...
10 months out from Provenge and we now have tumor activity in neck (MRI found it) and escalating PSA-14.7. Will begin radiation next week on tumor and then move to Xtandi. Dr thinks the progression...
Sorry to hear of the PSA rise. My father took Zytiga and the shots and did not have the rise. I am limited in knowledge on Lupron but have not seen info as you suggested....
Thank you for providing info as you travel this road. Prayers are with you!...
As is noted below, my father will probably begin Xtandi soon. The long term benefit appears short at best. Question, since the only remaining med appears to be Jevtana, which father does not want,...
Smurfine, My father had bone mets in 2011 and took radiation. He had other activity way back in 2001 and also did radiation. As of now, nothing new. We are on the wait and see expect for the move to...
SmurfineMy father did well on Zytiga-14months. He then did Provenge and now 10 months later is facing Xtandi. We will know in 2 weeks if indeed he begins treatment. His PSA is now 11, up from 2 since...
tednsal, Wow-the journeys are similiar! My father did extremely well on Zytiga. Actually worked longer on him than norms according to the trials. The Provenge appears to be a zero read. With all the...
Dave, Keep charging forward!...
LupronJim, Dad will be 74 in November. We think the signs he showing are too early for normal aging difficulties. There is zero family history with such which leaves us to think that it must be med...
Thank you all! Dad failed the therapy years ago but his Dr was of the mindset that it could be slowing things down, so keep on. Grantedthis decision was 7 years ago. His new Dr seems to think the...
Anyone been on or know of others with longstanding Lupron treatments? Seeing some things from father and trying to determine what side effects it may be causing. Seems to be a long time and there is...
tednsal, How are you doing on Xtandi. My father is set to begin in about 4 weeks. Can you share about the side effects and how you offset them? His Dr does not want to lower the dose should they set...
adjust, My father had Provenge back in Nov/Dec and PSA went down for three months, held for two, then started taking off. Xtandi is now on deck for Oct. You are correct about the Provenge info and...
Bertb, Now that is too funny! Thank you for that one!...
Passages, So sorry. May you be comforted and strengthened. Uou cared for your man well! Prayers for the whole family!...
CMA, We were told that Zytiga eventually fails due to the disease overcoming it. The time varies, but the norm we have heard was 8 months. Dad got 14! Even when the PSA started up-it had gone down...
Dreamer44, Thank you for that info-what a journey. We see the Dr this week. We have many questions and also know much of them are probably extremely subjective....
HOPENEVERDIE, Thank you for the input. As for Provenge, we are not convinced of much on it yet. I see the same repeated info reposted all over the internet but I struggle to find more than a few who...
CMA, Dad did really well on Zytiga. I think the steriod also benefited him more than we realized. We his next appointment on Wednesday and fully expect Xtandi to be proposed. His Dr stated at the...
Provenge question: It has been 9 months since father completed provenge treatment. Past three PSA tests show consistent rise. Prior PSA were down and went lower than starting point of Provenge. So...