Randy Joe, I just sent you an email with my email and contact telephone number. Look forward to discussing HBOT with you, Sonny...
Michael T, yes I had vision changes. About half way through I had an exam and got new glasses. Now things are changing again. I don't need them at all. Just waiting for more changes at this time. I...
JNF, Cajun Jeff is going to send me your tel. number in a few minutes. I will call you with my contact number....
The short and sweet of it, is that after 60 HBOT sessions, the bleeding in my bladder is no longer an issue and I still have my bladder. I wore a SP cath for the entire time and still have it while I...
I have been away for a while and just saw this thread. A number of months ago I started seeing blood in my urine and it only increased over time. 2 trips to the hospital as blood clots blocked my...
This is an update on my journey through Hyperbaric Oxygen Therapy. I began this course of action after being diagnosed with Radiation Cystitis of the bladder. At first the Uro thought I would need to...
Cali, how much did the HBOT help with your RC and dysuria? Tomorrow I start a 5 days a week treatment. So far insurance only approved 30 treatments. Sonny...
Well, I successfully completed the first dive today in the HBOT chamber. No problems at all. The tubes in the ears made all the difference. Now only time will tell if all of this will help save my...
Mumbo, the plan calls for diving to 2.5. If I understand it correctly that is about 75 below sea level. In my first try we only got to about 15 feet qhen my ears really started to hurt. The ENT that...
Delay in getting HBOT because ears won't take the pressure. I am at the ENT doc office right now waiting to have tubes put in the ears. Jeez, nothing is ever easy battling this crud. Sonny...
There has certainly been a lot going on since I was diagnosed with RC back in Feb. In in previous update thread I posted that for the first time in my life I was equipped with a Foley Cath because of...
I already knew I had a stricture, but I was urinating fine with just a slightly diminished stream. That is why the scope procedure had to be done at an Out-Patient facility under anesthesia. They...
On January 15th, I posted a long overdue update on my journey. It included bladder damage that had finally showed up after 10+ years following radiation. The urinary bleeding has gotten worse and...
Onco said that we may add another drug to the mix, however we are going to wait for my next appt in 3 months to see how things are going with Lupron alone. I am on the 3 month injection schedule with...
So I realize that it has been a long time since I last posted, that's my bad. Just been busy trying to live life, even with this crud. Thought I would throw out an update. It has been 10.5 years...
First time I have logged in for months and this was a great post to find with fantastic news. Congrats Grand Pa. Sonny...
Jim, my email is active. Could not find one for you. I have the same node involvement. Shoot me an email. Sonny...
GaryGwifeRN, please send me an email so we can discuss what you had to say. I would like to share with you my Onco's take on Radiation and lymph nodes. Just don't want to do that here and hi-jack...
Sherry and I are committed to being in Baton Rouge for the April gathering. It has been a minute since we have been able to attend. We have missed the last two gatherings in NY because of family...
NKinney, feel free to email me direct....
Now that right there is some good news to start the day with. Thanks for letting us know. Hope you continue to pull those zeroes....
Thank you one and all for the words of support. To me that is what this place is all about. And thank you all for taking my post in the spirit that it was written. Michael T, I haven't been here much...
Prato, I second all of those who have said continuing to see the surgeon is not required. I had my surgery in Detroit by Dr. Mani Menon. I have never been back. They send me a questionnaire once a...
Fairwind, I went through 2 rounds of Docetaxil (Taxotere) in 2016. Each round consisted of 4 treatments. First one started in May and the 2nd in October. It was doable and really didn't destroy my...
lifeguyd, I just wanted to pop in to provide a little moral support. As a 70 yr old who had both surgery and radiation, I am probably not the best to discuss further treatment with. I let my PSA get...
Prato, thanks for the kind words. I just sent you an email with links to just a few of the websites that I found and CBDs and their effect on Pca. Wilderness, thanks for the support. And yes my Onco...
Andrew, good to hear from you. While I miss being here more often, I also try to put this crud on the back burner till I need to address it. I just give it the due diligence when it is required....
First and foremost, MY journey and approach to living with Pca is mine and mine alone. I do not intend to suggest or try to persuade anyone on how they should approach their own battle and journey...
First, let me apologize for being away sooo long. Secondly, thanks for remembering me and asking to see if I am okay. I have not had a lot to add to the forum for quite a while. I have just been...
Congrats on the milestone. Sherry and I look forward to seeing you guys in Baton Rouge, I am buying the first round. I don't have your 1 year milestone to celebrate, but my Onco just gave me 6 months...
This is really great news to hear. Thanks so much for keeping us all in the loop. Tell Mel that Sherry and I are keeping you both in our prayers. We look forward to a full recovery and another visit...
I have been away far too long. Congrats on making the offer and moving on with living life. Florida living is great for sure and Sherry and I look forward to being able to visit with you guys next...
Woody, I am kind of late coming into this discussion, but I can offer you the following from my experience. My PSA had been rising over 3 years following surgery and SRT. And during that 3 years I...
Don, if I am not mistaken the core was from the Right External iliac node. They went in through the back, on my side, just above the waist line. Conscious sedation was used. I still don't remember...
Thanks for the continued support folks. Allen, no scans since completing round four of the 1st schedule. I do them about every six months. Doc thought since I tolerated it so well, I should try...
Sorry I haven't been around much, but I have just been out choking the life out of every "Bonus Day" I am given. A brief recap is in order for the new folks (and there are many) and all of the rest...
Hello back at you from Florida Todd....
"Life isn't about waiting for the storm to pass, It's about learning to dance in the rain." My own; "Every Day is A Bonus in My World and my only job is to choke the life out of it". Not a saying,...
I honestly haven't had mine yet. I suppose it will happen if/when my Oncologist looks me in the eye and says something to the effect of "There isn't anything else we can do for you and you have less...
I met with my Onco today and the Match Trial Team. First I had a discussion with my Onco about his decision to halt (suspend) my Taxotere treatment as I only have two left. He said that he felt that...
Andrew, thanks brother. As always I will post what I am doing so that others may gain from the knowledge/experience. JamesE, to date I have been involved in 4 different clinical trials at the NIH....
Steve, you have received some good responses to your questions and there have been a number of references to the Chemo Side Effects thread. So I thought I would provide the link for you to make it...
I mentioned in another thread yesterday that my Oncologist suggested that I think about entering the NIH Match Clinical trial. Today I received email, paperwork and a phone call scheduling me for an...
I have had a lot of good meetings with my Oncologist, but yesterday's has to rank right up there with one of the best. There have been times when I thought about following the lead of some other HW...
Todd, thanks for the link and the great article. In 2014 when I went on ADT at about 6 months I had a rise. My Onco and I talked about Provenge and he referred me to a Dr. here in Orlando that had...
Not Pca but related to Centers of Excellence. My late wife needed to undergo a Stem Cell transplant. There were two cancer centers in Central Florida that did them. The insurance carrier requested...
Jerry, I had scans done at MD Anderson , Orlando just before I started HT and Chemo. Just everyday run of the mill CT scans that showed the 5 lymph nodes that I already knew about. I have not been...
Jeff, Sherry and I have put this on the calendar, IN INK!. Sadly, we will miss the event in September, so there is no way I am going to miss two in a row. Can't wait to see you guys again. Sonny...
Infohound2, thanks for the very detailed and encouraging post. I am not quite ready to throw in the towel on this, just dealing with a perceived little set-back, that's all. I am accustomed to my...
Since we can't post pics here, I posted the pics of my "Get Over It" meal on the cooking site I belong to. Here is a link for those that may have interest of the meal I talked about cooking to find...