Problem is that we are in Canada and don't have insurance that would cover it....and government is not yet paying for it. It is otherwise rather expensive. Ann...
It is a Study of Cabozantinib (XL184) Versus Mitoxantrone Plus Prednisone in Men With Previously Treated Symptomatic Castration-resistant Prostate Cancer (COMET-2). I will try to see what Hg needs to...
Good question. I don't know. I just asked about whether he would be accepted if Hg was artificially raised. Oncologist said he would look into it but didn't think so. Will ask again in 2 weeks. And...
Hi, I'm back again. Unfortunately the trials are out of the question as John's hemoglobin has fallen. It was 7.2 and he received 2 units of blood Feb 8. It was 8.4 Feb 27. Oncologist will find out if...
Zimac: I am sorry to hear just how difficult yours and Bob's journey has been. I noticed that Bob was on Cometriq. We are hoping to get John on a trial for that but his hemoglobin had dropped to 72...
Hi El, I am sorry to hear of your medical problems. Is this because you don't have insurance? I know there are many fine oncologists in the LA area. We too went the alternative route for many years...
Hi Susan, I totally understand. I had a hard time getting John to drink water for a long time and ended up taking him to Emerge 3 times in sad shape. He had an IV and perked right up again. His...
Many thanks, as always, Tall Allen, for all the information. Thanks especially for the comparison of the studies being done here in Toronto and in London, ON. You have helped clarify that choice in...
We are in Canada and Xofigo has now been approved here for PC. However, it will be a few months until it is actually in use. Trick is to keep my husband alive and relatively well until he can access...
Hi, I have not posted for awhile but am looking for information now on XL184. My husband has advanced HRPC with PSA @600. He has been on Xtandi and now Zytiga. Although they may have slowed the...
Thanks LuAn for posting this information during this difficult time for you. Glad that you are keeping busy and it sounds like a great celebration. I think a lot will depend on what the scans say. We...
Hi Pat, Very interesting what you said... "I think that when Mark had the scope and the urologist scraped out a lot of the bladder mets that it helped relieve the blockage to the ureters and kidneys...
Hi Everyone, I have only occasionally been following these threads for the last little while. I am so sorry to hear of all the losses. My heart goes out to you all. I was living in Lala land there...
Passages: I am so sorry to hear the news about the PSA rise. You are amazing in how you manage it all with the little girls. I see that you love them dearly and know from my own experience that...
I am so sorry, Passages. We know a fellow, age 89, CRPC, with lots of bone mets. He almost died when they first put him on Prednisone and now cannot take any treatment which includes...
Passages: We got to chemo on Monday and it occurred to me that John had not taken Dexamethasone pills like he did the first time. They were not too concerned about that...someone forgot to give him...
Thanks Southern Comfort for your encouragement. John says he feels a bit better today but still very fatigued of course. He had chemo Monday and started feeling the chemo on Tuesday night. I am...
Hi All, Just wondering if you have any suggestions... John had a bad night...couldn't sleep for any length of time and so is feeling pretty bad today. I read that the nervous system is badly affected...
Nhwife: I am glad to hear that the pain is gone. No wonder you are exhausted. I am too and we have not endured all that you two have. I did not well for a couple of nights and got totally whipped....
Nancy: There are other indications of growth of bone mets I believe. LH (lactate dehydrogenase) and Alkaline phosphatase. John's had a huge increase in both in the month before starting chemo. It is...
Hi Nancy (littlenm), Glad to see a fellow Canadian. We have such a different set-up and system here. Where are you located? We are in Toronto. Perhaps we can compare notes? What kind of a scan are...
Hi Passages, I will seek out a suitable group. I am planning to go this Thursday to a Healing Journey group for learning coping skills, developing spiritually etc. It will mostly be patients although...
Hi again, Passages. Yes, John had his chemo today. Hemoglobin was low but not low enough to warrant a transfusion but contributing to the fatigue. White cells good. He is not feeling too bad this...
Hi Passages, Your name immediately makes me think of the Gail Sheehy book "Passages in Caregiving". Some interesting thoughts but certainly her experience and options were far from what most of us...
Hi to All you Wonderful Women, I just came across this thread and am inspired by the strength you show. Not easy, I know although my husband is well off compared to some of the reports here. But we...
Many thanks Special Lady, Kbota and MsWorryWart. Its so nice to have the support. I am concerned about exposure to the little ones but also know it is important for my husband to see and be with his...
Hi, My husband, John, started Taxotere on April 5 after trying prednisone and keto and various other things. PSA: April 11/13 - 539 Mar 14 - 425 Feb 26 - 350 He had brachytherapy in 2000 and PSA...
Very helpful information. Thanks so much! Oci...
Hi All and many thanks for your replies. I see that we are entering a whole new "land" with much to know....or try to know! Thanks Tall Allen for the links. At the moment John has good white cell...
Hi, Many thanks for the moral support! We are in Toronto. And you? John just had the bone scan a few days ago. I sure he could get the results if he wanted to but really what matters more is the CT...
Hi All, I just returned to HW after an absence. What a great group! I see there are others with high PSAs. We are anxious as always about my husband's deteriorating condition. He had a bone scan last...
We have discovered the same thing. John has his PSA done at the hospital and also at an outside lab. The outside lab is way higher consistently. so, we compare apples to apples! Last week we were...
Hi Special Lady, Thanks for the very good advice. Yes, we need accurate scans!!! Now, where to find them at a reasonable price? Yes, John did very well for 8 years and I wonder at times if he might...
Hi Robert, Thanks for the information. Much of it I am aware of but not all and will follow up on. The link you sent should be very helpful. John has started Metformin. He found Celebrex very helpful...
Thanks Magaboo and Robertcool for your replies and best wishes. I am hoping that some of the guys will have suggestions. Perhaps about their experience with second line therapies or alternative...
Hi Everyone, I am new to this group but not to Prostate Cancer. My husband, John, 72, has Advanced PC now with a PSA of 59 last week. We are looking for advice and ideas! A bit of history...He had...