I’m just back on ADT with Lupron and the hot flashes are back in full force. I had been taking Oxybutin on my last ADT session and at first it seemed to calm them down quite a bit. Is there any new...
I had, in my mind, an unusual thing happen to me. I have metastatic prostate cancer and I recently had my usual three month check in with my oncologist. I’ve been on a Lupron vacation for the past 18...
Good luck,Swan. I can agree about the low T. My T is much higher than yours when I’m not on ADT. Roughly in the 300 ng/dL range. But on ADT, I’m undetectable. So, as long as you can avoid ADT, you...
Fran, I’m not sure if I can add too much to the discussion, but here are my thoughts. The first 30 day injection had zero side effects for me too. It wasn’t until the second three month injection...
My dad was a doppelgänger for the actor who played Auric Goldfinger. Of course we had to go see the movie. My ten year old brain nearly exploded. What a movie!...
I meant do do a search for this before I posted, but here we go anyway. I am on my second round of ADT since my chemical breakthrough and this time my hot flashes were epic, especially at 3 AM. I...
Motown, I agree with the others, find a good medical oncologist and discuss whether you need to continue the Lupron or not. Your RO and urologist are done with you....
Mumbles, The urgency issue is one that seemed to appear with a little time, say about a year later I think. And it is because my bladder is full. I’ve had recent incontinence issues, but I think it...
Mumbles, I had ART six months pos surgery. I worked through my therapy, but took the last couple of Fridays off from work due to fatigue. That being said, I did train for and complete a 50 mile bike...
I am hoping some unconventional treatments help also. My diet, while not fanatical, is fairly clean. Exercise happens as fatigue allows, but 30 minutes 5X a week is fairly common. After reading and...
I’ve been a woodturner for years, but there was already a turner on the forum. So, I became turner2....
Mattam, I do have a chemical recurrence that was detected in 2015 or thereabouts and the timing of the testing makes it look like the number is all over the place. At first my oncologist was treating...
I had RALP in 2012 and was mostly dry in eight weeks. In the last six to eight weeks, I have experienced small leakage three to five times a day. I haven’t done any kegels since the end of my...
I’m now four weeks post surgery for my penile prosthetic. The recovery was not so bad. There was pain, but not unbearable though. I’m still a little sore and my scrotum hasn’t returned to normal...
Me too. It is never too big a problem and the infrequent larger leaks are so unpredictable that I cannot see wearing a pad. Especially now that I’m recovering from penile implant surgery for Ed....
I asked my oncologist the exact same question and she saw no problem in receiving the shingles vaccine....
Billy Bob, My decision to get it done was based upon a few things. One, I can’t take the little blue pill. I have an eye condition that it would really mess with. Two, I tried just about everything...
It was a penile implant done by Dr. James Sinham at Albert Einstein Hospital in East Norriton, PA. The hospital and staff are phenomenal. Dr. Sinham specializes in implant and reconstructive surgery...
I was having difficulty coping with my recurring PCa last year and started seeing a therapist. But the one thing that really changed my outlook on this was a comment my oncologist made. She said that...
I didn’t receive the advice about the empty colon either, but the full bladder was a must. I went to work everyday after radiation and the SE were not so bad that I couldn’t get out to ride my bike...
Hi, I just want to posy a quick message on how my pump installation went. Got to the hospital around 7AM on Thursday and was in the OR by 9:30 and into my room by 1:00. The report from the surgeon...
Thanks to all for the advice. I will be asking my Oncologist some very pointed questions come late November....
Need some advice. If you take a look at my signature, you'll see what my journey has been like so far. After my recurrence was detected, I was on Casodex intermittently and it brought my PSA down...
Ron, My recurrence happened. As others have said, HT is not a cure, but it is better than letting the cancer go wild. As with all treatments for this disease, there are trade offs. The side effects...
Okay, over one week post Lupron injection and the headaches continue. I contacted my oncologist and she says it is unusual, but not unheard of. Has anyone else experienced this? Also, my BP is...
Have not posted out here for a while. Since I was last here there have been a couple of changes in my life (retired as of January 6) and my disease. My PSA had crept up to 7.5 after a vacation form...
Sophie, I've had full ED since my surgery. Because of an eye condition, I cannot use the pills to help. So, instead I use Trimix. Once you get past the idea of injecting your penis, it works! It...
Casper, I went the route of RALP. I chose this route because with my high Gleason score, I wanted a full pathology on my prostate. Also, BRT was not an option for me. So my choice was radiation or...
Just a quick update. Saw my MO yesterday and as I thought it is stay the course for now. We will revisit in January and maybe take a short Casidex vacation. Thanks to all for your support....
My PSA had been climbing for the first eight mons of 2014 which resulted in my MO starting me on Casodex in August. Well between starting Casodex and my latest blood test, I had a rather serious...
Carolyn, Sorry you have to be here. I had Dr. Alexander Kutikov for my RALP, Dr. Eric Horwitz for Adjuvant RT and Dr. Marjio Bilusec as my Medical Oncologist, all at Fox Chase. All excellent doctors....
One quick question, were all the tests done at the same lab?...
Asian Man, Sometimes the worst answer is "I don't know." Given you low prostae volume and nearly normal PSA, I would get a second opinion before I submitted to another biopsy. My first and only...
Compiler, That will be decided in mid September when I go back. Hate the idea of it, but part of me wants to hit this hard. But I guess you don't want to kill a fly with a sledge hammer....
Excellent post. I need this today....
Hi all, Here is the latest follow up to this thread. Saw my medical oncologist today. My PSA has risen to 1.1 and my calculated doubling time is 3.7 months. Not encouraging news. Trying to keep...
In addition to the long thin fingers, I would look for short fingernails! :smilewinkgrin:...
Dmlvt, First, I want to say that this is a conversation between you, your endocrinologist and your urologist. Second is that my opinion may be highly influenced by my high Gleason score. So,...
Devasted1, I am at the 2 1/2 year point and I feel great! My situation is that my PSA has been gradually climbing and I go to see the medical oncologist next week to find out where the next branch in...
Okay, the Trimix is working well, so now I have the used syringes to deal with. I know the Stericycle sells a returnable container, but it seems pricey. What do you guys do?...
Rugby, Don't freak out. A little bounce where you are is not a big deal. I'm sure there are a lot of guys here who would trade places with you....
Harm, I think the issue is how sick are you. I think one of the curses of this disease is that you don't get really sick until the disease has progressed dramatically. I had my RALP and spent 8 weeks...
Hatter, Welcome to the other side. Don't have any post-op recommendations that haven't already been said. Be patient and do your exercises. I hope your recovery is short and painless. George...
Okay, after two years plus of ED issues, I had my first injection of trimix on friday--Wow. It worked almost too well. A little ache but tolerable. I can't wait to get m script filled....
T, My recurrence was after 30 months and the initial feeling was like a kick in the balls. After talking to the med onc, I felt better. The radiation for me was not so bad. It was a grind, but...
Decisions, I couldn't wait to get back on the bike after RARP. I waited two months and a day. No problems so far 2 1/2 years post op. I would get it checked out. Could be nothing, but... Good luck on...
David, I wish you well on you journey. You never know if our paths will cross here or elsewhere, but before you go, I want to thank you for all of the help you have supplied to me and many others. Be...
Jenny, You sure landed in the right place. IMHO, I think the doc made the right call. Why do something more invasive when you already know at least some of the answers. The HT should bring down your...
Congrats on a great report. My Med Onc says he wants me to die of something else. I guess I'm in for that after all, as jim Morrison said, no one gets out of here alive....
MomE, That is an incredible story. I wish your dad well. I am completely shocked about the 25 pounds of piss. Okay a pints a pound the world around, so that translates to three plus gallons....