Nick, I hope you get to 6 years of undetectable and beyond! I felt the same as you did just after my surgery, unsure of just what the future held for me. I was hopeful, of course, but one never knows...
Nick, my primary purpose in posting my PSA results here on HealingWell.com is to give guys who are more recently dealing with PCa some hope that it can be beat. There are no assurances for any of us,...
Thank you, randrball1! I too am hoping for many more such test results and my demise someday is attributable to some other unrelated cause - many years off in the future! Mike...
Thanks to all you folks! Yes, I'm buying drinks for all of you. Every anniversary of "undetectable" is cause for celebration! Right you are, NKinney! My uro told me that, considering my Gleason score...
Thank you, Andrew! I'm keeping my fingers crossed....
I just heard from my doctor that my PSA test result was again "undetectable" (<0.1). This is the 6th year past my RALP that I've had this outcome; so, I'm pretty happy about it! This was the main...
Thank you all! This is the outcome we all hope for when we get the dreaded diagnosis: treatment that keeps away the beast for at least 5 years ... and hopefully longer. I wish the best for all of...
This week is the fifth anniversary of my prostatectomy and I just had a PSA test. My doctor gave me the news today: "undetectable <0.1." Since I've had nothing but undetectable results for five...
I leaked really badly following my RALP almost five years ago. The incontinence improved only a little in the two years following surgery; so my urologist referred me to pelvic floor rehab. The rehab...
I've been taking 80Mg of Lipitor daily since last August when a cardiologist discovered I had a 80-85% blockage in my right coronary artery (had angioplasty plus stent implanted). I've suffered no...
Just got my latest PSA results: undetectable (<0.1). All results since surgery have been undetectable - 4 years now! But still keeping my fingers crossed. Mike...
Didn't change things for me either. I sometimes had climacturia during orgasm before the AUS was activated and I still sometimes have it now. I suspect the cuff around the urethra only slightly...
Rigby, I'm like Big Mac and Peter DisAbelard, I feel normal urgency to go - just like I did before my RALP 4 years ago. When my urologist activated my AUS last year, he advised me to be sure to empty...
You're welcome, Northern Lights. Chances are that you're going to get a lot of your ability back, especially if you're already feeling "something" there. You're younger than I was when I had my...
Northern Lights, as you did, I also had partial nerve sparing but the reverse of yours: full sparing on the right and partial sparing on the left. The truth is that I have had NO success bouncing...
I alternate every other day between the VED and tri-mix. I read somewhere on this forum when I started out that the VED draws in venous blood and the tri-mix brings in arterial blood - with the...
It's been 4 years for me (along with tri-mix) and I assume I'm going to need the VED as long as I want to get an erection. Pills (Levitra and sildenafil) never worked for me; so it's the VED (and...
Sophie, I've carried tri-mix vials in an insulin bag with ice pack through TSA security checkpoints many times with not one problem. But I didn't have my syringes filled with the tri-mix - they were...
Congratulations, Paul! Isn't it great to recapture some of your life before surgery? One thing that my urologist told me on the day my AMS 800 was activated: "make sure you empty your bladder every...
Jess, good luck to you on the sling! The goal is to become as dry as possible and I hope the sling gets you to absolutely dry. Let us know how your surgery and recovery go! And please keep us...
Way to go, Bill! Life is sweet with news like that. :turn:...
I'm using the Trimix double strength formula. With a 30-guage insulin syringe, I get a pretty good erection with 40 units and it lasts about an hour or hour and a half. Of course, that's IF I hit the...
Paul, you're going to love it. It's not perfect - but for me it was a HUGE improvement over what I was going through before. You'll get used to the four steps in no time: - locate, stabilize, aim and...
Paul, for a while (weeks?) after my AUS surgery, I felt a lump under the upper incision but it wasn't tender or sore. I assumed it was where the surgeon placed the reservoir for the device and...
Paul, You're almost there now! This was the hardest stretch when I got my AUS - that final 1-2 weeks before activation. The pain was gone and the healing was almost done and nothing left but the...
Jess, with your level of incontinence (100-200ml per day), I'm not sure why a sling is out of the question. I didn't get a sling myself but only because it probably wouldn't help get me totally dry...
Good luck to you, Jess, in your discussion with your doctor, on your decision and on your procedure if you choose to go forward with the AUS. You may want to check in with PeterDisAbelard, who as I...
Jess, I wouldn't worry too much about recurrence until you have more PSAs done and see increases from one to the next. There's a threshold PSA above which one is supposed to start worrying about BCR...
Rainman, I used a Cunningham clamp too. It was the first thing post-surgery that gave me a high degree of control over my leaking. I gave it up when I got an AUS, which does essentially the same...
You're welcome, Jess. If you decide to go ahead with the AUS, I hope it works out as well for you as it did for me. If you want to know what the pre- and post-surgery experience is like from those...
Jess, I had the AMS 800 implanted in me almost a year ago. It wasn't a decision I took lightly as I tried the easy things before reaching it: Kegel exercises and pelvic floor rehab. After everything,...
Paul, I'll echo what Big Mac said. He was a few months ahead of me but we both had the AMS 800 implanted last year. It was not a trivial decision for me because I realized it would be in me for the...
Jonathan, I will post here if I find a solution. This is not a situation where misery loves company and I hope you can find the cause of yours and fix it. For me, this recent development of urgency...
Thank you, Knotreel, but a UTI isn't causing this infrequent urgency. I've had three UTIs since my prostatectomy and I know what those feel like. A UTI doesn't give me intermittent urgency but a...
I started out, right after the RALP, wearing the Depends underwear. Initially, I went through as many as 7-8 per day but eventually got that number down to 3-4 per day by doing my kegels. When my...
Congratulations! That's a key milestone and I know you're thrilled with the outcome. May you have lots more "undetectables" in your future! Mike...
Oh, and by the way, good luck on your AUS. I hope it eventually brings you the control you were hoping for!...
I'm sorry your experience since the activation of your AUS hasn't met your expectations. We all at least hope that we can recover as much post-treatment urinary function as possible with our new...
Bill, I use a VED and of course I just had my AUS activated a couple of weeks ago. I didn't use the VED while I was healing and waiting for activation. After activation, I decided to use the VED...
Carl, I'm not sure I completely understand your posting but I probably will after I get my order and put on the Jockey shorts. Thank you! Dry so far and that's what I was aiming for! Mike...
Bill, I agree totally with you! Mike...
Carl, Thanks to your earlier advice, I went on-line to Jockey.com and ordered a 2-pack of the Microfiber Performance Box Brief. When I get my order and start wearing them, I'll let you know how they...
Bill and Neo, Boy, I'm glad to find out that I'm not the only one with bad aim! When I started to wear a penis clamp, I spread paper towels on the floor around the toilet. I never knew where the...
Carl, thank you for the detailed suggestions! I like to know what's worked for other men that could help me deal with my situation. I've long been a boxer guy and haven't worn tighty-whiteys since I...
Thank you, Tallguy! I'm very happy to be in this club! I've already learned in less than a week of having an activated AMS 800 that there are limitations with it. I try to empty my bladder every...
Bill, I went to A's games in those days too. The team at that time was pretty incredible. And if Charlie Finley had deep pockets, he could have kept the team together for more titles. The A's haven't...
Neo, Yeah, water goes through me too. It just takes longer to do it. Beer and any warm beverage like coffee or tea works faster in getting through me. So, now that I'm not wearing the big, absorbent...
Right, Neo - I'll be using the stall. I'm not gonna rely on the unwritten rule that you don't check out your neighbor when you're standing at the urinal. Pulling out my scrotum and groping it at the...
Bill, From reading here about the experiences of men who've had the AUS implanted, I never expected that the AUS would take me back to my pre-RALP situation. I suppose the cuff must loosen a bit with...
Thank you, Neo! Yeah, it does look a bit pervy when I pee now: both hands on my scrotum, fumbling around to find the bulb and then stabilizing it to squeeze. First time ever that I've had to use both...