Since it is bothering you (as it would me) just have a retest. I would also ask for an ultra sensitive test. Still one blood draw and you get 2 #'s back. 2 digit and 3 digit. You will feel better. No...
I travel 5 days a week about 3-4 hours round trip. It gets tedious. Many of the folks at Scripps (San Diego) stay at hotels/motels close buy. It is pricey but many are from outside California or from...
That is a good point. If you're pretty sure you are going to do it, then the earlier the better. The advice I was given was .2. If it leveled off before that and did not rise anymore, there would be...
Agree with all comments. I am having SRT now after PSA hit .23. Literature seems to indicate .2 is the decision time. Going to .4 can be an issue as I understand it. I have always had two results....
Hi, Your profile says: Contact Info E-Mail Address : Unavailable I'm more then happy to talk to you. If I can have your e mail I will send you a telephone # Scott...
I am going through SRT right now. It sounds like our cases are almost exact. GL 7, 1/2 involved. Rise in PSA about the same. I did not find your e mail address in your profile. Id be glad to talk if...
Stay closer to the bathroom :). Mine was taken out 11/2010. I still have very minor leakage every once in a great while. I guess it is just one of the cross's we must bare. ALSO how about trying a...
Exactly my status now: # 7 today. Things feel fine. Had a 2nd CT at #5. Meaning I have had 7 treatments and had a 2nd CT after # 5 treatment. All is well....
You come here for knowledge, experience and compassion. When you're dealing with your life it is tough to hear you are doing the wrong thing. I did not think there were many doctors on this board but...
No, I posted this as it is a reply for my oncologist. He is the Director of Scripps in San Diego which is one of the foremost hospitals in the country. I think it is best if I don't continue on this...
This is now my understanding: In post-op treatment, goal is to treat a specific volume. You define this volume anatomically. Than you choose which tool to use treat this volume. With IMPT, you treat...
I think is has to do with proper alignment and distribution. I meet with the director on Wednesday and can ask. The other thing Proton does is not involve other organs or areas the Dr. does NOT want...
After seeing some incredible prices on the internet, I had a meeting with Scripps insurance rep. We called blue Shield of CA together (on speakerphone). We were told Medicare gets billed. They pay...
Thanks everyone. I'm on treatment # 3 today. It is totally painless and very quick. Kind of like a star wars atmosphere. All white rounded treatment area with whirling machines and table. When it...
Thanks for the kind words. My understanding from working with the Director's of Cedars Sinai and Scripps that Proton Therapy is a very good tool for SRT. It is used at the Mayo Clinic, Loma Linda and...
Going to Scripps starting tomorrow 4 2/3 years after my RP (11/2010) . I just had my MRI and CT and they were clear but it helps in Dr. Rossi (director of proton therapy at Scripps) design my...
Thanks to all. Leaving shortly for the CT and MRI (and the balloon)....
65 medicare and a full supplemental by Blue Shield of California. I should not see a billing. It started with a full review of records of the last 5 years. The director of Scripts Proton department...
Hi all, I had a my RD in 11/10. Now my PSA is .230. It has been going up .04 every 3 months for 18 months. So now I will do Proton at Scripps. Has anyone else had this? Thoughts? Thanks for any...
Going to see Dr. Carl Rossi the director at Scripps soon. I plan to mention some of your thoughts. Any others PLEASE post and thanks!!...
Good morning, I had a full radical prostectomy in November 2010. Since then my Ultra sensitive PSA #'s have been rising. In over 4 1/2 years it is now 0.23. It seems 0.20 is the decision point to do...
Get the re test as your Dr. indicates. That will give you more good information to make your decision. My 1st one was higher and the next 5 were much better to better. I had a rise last week to .137...
Our very best wishes to you and your family. All will be fine!! Please let us know details when your up and around! Good football coming up during your recovery period. Hope your a fan :)...
Next week I will get the GP on board. I will go to the same facility as I usually go to for the blood draw (I went to one close to my GP which was the .137). So the draw will go to the same lab that...
Consult completed with my Surgeon. He was surprised that the USPSA was .137 , since all margins and lymph nodes were clean at time of surgery in 11/10. His recommendations are: 1) repeat test in 2-3...
Thanks to everyone. Great questions. Hopefully I will have the conf. call in the next few hours. I will report back. Scott...
I just got all my PSA tests since surgery. They are: 11/10 Robotic RP 3/29/11 .1 REGULAR PSA TEST 9/2/11 .01 ULTRA SENSITIVE PSA 10/25/11 .01 UPSA 11/27/12 .085 UPSA 3/15/13 .059 UPSA 12/11/13 .137...
Certainly no longer then 3 months. Ask your surgeon. Hope all went well and welcome to the forum. I just joined yesterday and have already learned a lot. There are many threads here that will help...
Thanks again to everyone. I forgot to mention, as I didn’t think it was germane to the question, that I had 2 lymphaseals (spelling I’m sure) after the robotic procedure. The one on the right grew...
Thanks for the comments. All the PSA tests were of the ultra sensitive nature. These #’s were sent to me on a card with all other blood test results. I will call tomorrow to get the so very important...
Hi, I’m new to this type of forum. It’s hard to put yourself out there with medical issues but here goes! I am 3 years post surgical. In October 2010 I had a divinci robotic RP. I was a 3+4 after 2...