Hi All: I has been a long time since I last posted. Also lots of water over the dam. I looks like Xtandi can not keep up to the Prostate cancer. PSA is 199.1 Looks like I will get about one year out...
Hello LUPRON JIM: Spent two days at Johns Hopkins this week. Got some good news and got some bad. This stated with Wednesday 10am and going till two at JH with providing information on where I am in...
Hi All: Just got back from NIH (10/21/2014) doing three different scan, with the PET being the last. PSA is up & down. Up this cycle from 155.1 to 168.7 The Pet detected bilateral skull metastatic. I...
Hi All: Have been very busy THIS YEAR, between Johns Hopkins and my Urology plus going to NIH every 28 days. I am now stage four with few options left. Right now my PSA is bobbling up one month down...
Hi All: Just returned from NIH in Bethesda, Md. It was a long day as I am doing a second test trial for sodium PET. The other one is XTANDI. The good news is my PSA went down 15.7 points in the last...
Lupron Jim: Glad some body is reading my posts!!!!!!!!!!!!!!!!!!!!!!!! Looking over your PSA It looks like Lupron is working for you,. You have a very large prostate. I think the average one is some...
Hi All: Good news . Bad news. Got my PSA at NIH for April and they may be looking at the wrong month. It went down the same # as it went up February 2014 37.5 Will have to wait till May to get next...
Hi All from 49 Packard: New video of prostate support. http://youtu.be/aGgXcMSEliQ Still waiting for Xtandi to start working. PSA went up to 184.5 from 147.0 Also started XGEVA for bone help. Feel...
http://gumdroptrials.org/ I am a (specify first) Healthcare Professional Patient/Family Member Cancer Diagnosis (specify second) Bladder Kidney Prostate Just answer a few questions after you are in...
Hi All: Sept is going to be here before you know it. September is Prostate cancer month. Just getting ready for our next Wheels for Prostate Cancer Research event. Here’s a link to my video...
Hey Mr. wampuscat Check this web site out. As you answer the 5 or so questions the trial for you are present.(I LOVE It) I am very early in my search right now. My Urologist does not know about my...
Hi All: Not so good of report from Georgetown University. You cannot have any tumors, and it looks like I have three. I have two on the pelvis and one on rib cage. This was enough to keep me out of...
This is 49 PACKARD Been fighting prostate cancer for 8 full years. Have done my share of test trials over the years. This test trial is a combination of drug called j591+Ketoconazole is being offered...
LupronJim From PROSTATE CANCER FOUNDATION latest post. https://bay173.mail.live.com/default.aspx?id=64855&rru=inbox#n=1795792093&rru=inbox&fid=1&cid=13377603-b222-38fe-a62b-3c873b13adc3&fv=1 I WILL...
Hi ALL: Well it is time to seek out new treatment options. I got 20 months of GREAT life from PROVENGE. My PSA has done nothing but go up for the last month. 9-24-2013 PSA=94.80 UP 15.30...
HOPENEVERDIE [b]Great article in your last past. [/blue] The Dr. Madan is the same Dr. that is running the test trial at NIH-Bethesda Md. that I am trying to get in. Small world. The trial is a...
Hay All: Yes you are correct with the frame of mine I got. It has been a da* long time fighting this cancer.(9 years) I guess I am a control freak and the cancer is in control at this time in my...
samham55 Looking back just the last 20 month have been the best of my cancer journey(PROVENGE) 49 PACKARD Good luck...
WAMPUSCAT: Read you post on the Provenge site. I sure have a boat load of questions about NIH and test trials. Could you e-mail me at [email protected] Also check out my web side President Wheels...
Wampuscat: This is 49 Packard. 9 years of Prostate cancer PSA at 123.8 I also am trying to get into this test trial. BUT they said I had to stay on Lupron. Looks like I am trying to get into same...
Hi all : Just back from NIH. What a day. First with accident on beltway putting me a hour late the setting 1 1/2 hours in admissions did not start my day off to a great start. start. Just got my...
Wampuscat: Looks like I am trying to get into same trial. Could you send me a e-mail to [email protected]. Check out my web site. President Wheels for Prostate Cancer Research, Inc. Fighting PROSTATE...
Hi All: Just spent all of Monday 1/13/2014 at NIH ( National Institute of Health)Bethesda, Md. checking into a new test trial that contains Prostvac and Enzalutamide (Xtandy). On October 18, 2013 PSA...
Hopeneverdie: It only took me 2 seconds to fire off a e-mail to my Provenge Dr. after I read the that maybe a booster shot was waiting for me. No such luck. Here is the reply I received back. 49...
Hi You All: You guys are a blessing to me, so post whatever is the best for prostate cancer patients to read and stay up dated. I am looking forward to June 1, 2014 as this will put me at the two...
samham55 Look up my web site and send me a e-mail. Great to hear from you. Wheels for Prostate Cancer Research, Inc. Fighting PROSTATE CANCER With PROVENGE www.WfPCR.org/...
samham55 I hope you do as well on Provenge as I am doing. It will be two years the first of May. I just have to put up with my Lupron side effects. (Hot flashes) In my case I had no side effects from...
Merry Christmas to all: Update 10-17-2013: I could not have waited for two months to pass before another PSA test. This PSA result was 90.6. Although a drop of only 4.2 points from my September labs...
Jerry L. No other drugs except Provenge. For 17 months. Plus Lupron (that is a given) 49Packard...
Baptista: I have been battling prostate for 8 very long years. I use to hope for a cure. Now it is just buy a block of life. It has been 17 months with Provenge. It has been the easiest to take as a...
Jerry L. Have been on casodex three different times. It and I do not get along very well. Do not tell me that Provenge is expenses.$92,000 Is just a drop in a bucket when compared to Zytiga.$6000 a...
Yes been and still on Lupron now 8 years....
Hi all out there in Provenge world: Just finished my Oct 2013 PSA and Dr. visit. /community/emoticons/yeah.gif Had some bounce in PSA /community/emoticons/smhair.gif 6/14/2013 down 2.3 to 79.50...
Hi all:Just waiting for my Oct Dr. visit. President Wheels for Prostate Cancer Research, Inc. Fighting PROSTATE CANCER With PROVENGE www.WfPCR.org/...
Hi Mr. pepsiguy: /community/emoticons/idea.gif Have not heard from you lately? /community/emoticons/nono.gif How is the Provenge going? /community/emoticons/smhair.gif You know to give it 6 months...
Hi all in Provenge LAND: You can look back on my postings to see it took six(6) months for my Provenge to turn around my PSA. /community/emoticons/nono.gif When I started Provenge my PSA was 9.26. It...
Hi Provenge world: /community/emoticons/turn.gif Just a short report with what is going on in my life. /community/emoticons/cool.gif At this juncture with blood tests, bone scans and Dr. Visits I get...
HopenEVERDIE: Thanks for the comeback. /community/emoticons/yeah.gif Looked up the test trial of NCT01338012 for Provenge booster at Virginia Beach. Talked to a wonder young lady Jennifer and she...
Devasted1: [img]/community/emoticons/yeah.gif Do you know or anybody else that got a booster shot of Provenge after PSA has stop dropping? What are the rules or out line to get the booster shot of...
gunfighter : Please do not give up so quick. Make many calls. Keep asking to go up ladder to the next highest person. ( I was told by two Doctors I would not get into the PET ( test trial )scan but...
Hi All: /community/emoticons/smilewinkgrin.gif Just got all reports form Johns Hopkins, after doing their Test Trial. They are great . /community/emoticons/yeah.gif No bone tumors anywhere....
Hi pepsiguy : Vein assessment is very important before you start Provenge. I went as far as to go to the Red Cross and have them check my veins. The side effects are almost none. (three hours is a...
Mr. Bill:As far as I know (I'm using The Blues) the vets have the program but only one patient has been put on Provenge. But call there hot line and ask. 1-877-336-3736 Best of luck 49packard...
Hi All: /community/emoticons/yeah.gif www.WfPSR.Org/ ...
Hi all: Just got my result from my 3/19/2013 Tests at Johns Hopkins I feel great. PSA is slowing down Doubling time is taking longer Provenge is working 1. PSA a. 9-07-12 21.5 to 58.9 =37.4 b....
Hi All: I am getting much closer to getting into the test trial at Johns Hopkins called 18F-DCFBC PET scan. I spent about one hour on 3/7/2013 at JH with my first interview for the trial. Today I got...
Check my Packard out on my web site. www.WfPCR.org Mine is the black on on the top left side. /community/emoticons/devil.gif 49Packard...
49 PACKARD [img]/community/emoticons/yeah.gif ...
Hi All: Just working around house (chief house *****) and enjoying my Provenge. I just pasted my 8 th month of being on Provenge. My Lupron shot that I got Feb 1, 2013 has had its two weeks to kick...
Hi all:This is something near and Dear to my heart. All on Provenge might take time to view vido. After my provenge things started turning around.(feel GREAT) /community/emoticons/yeah.gif I have...