I seemed to have my PSA on a jet course? PSA has jumped to 72! Oncology wants to take harsh measure and Chemo?? I thought Chemo was not an option? is there life during chemo. Is radation better for...
voiding difficult periodic bleeding, some mild pain. overall exhaustion, low back pain, neck pain. I'm afraid casodex worked for a spell and completely stopped working and the PC took off. getting a...
I have avoided a gastro doc as they want to go in and look around. being on multiple blood thinners it is extra dangerous? and these fly by night quickly labs don't have the resources for a problem...
Casadex + finasteride has worked for me. But I trust dr Rodney Davis at UAMS. so this it for now. Turns out I have a massive bad reaction to an antibiotic!(from my GP) I'll never take it again. I had...
I have not had a bad run on the disease. PSA in May 1.5 now PSA 5.67, which means I restart Casodex. I have never had symptoms except a life with Diarrhea. Now pelvic pain, voiding blood, massive...
MDA is great, just too far. as the aging process takes over with my bad neck and tumor UAMS is focusing on my neck. I think the casadex/finisteride should be a last resort for a mets situation. stats...
MDA Anderson is an awsome cancer treatment center. the Genitourinary center is world reknown. The pet scan indicated no mets. But it did show a very large brain tumor which kinda limits what I can do...
If you read my history you will find casadex lupron 2 years, proton radiation 4 weeks, conformal 3d radiation 5 weeks, and after 6.5 years now biochemical failure. after pet scan, cancer is still in...
prescribed bicalutamide 100 and finesteride 5....
does anyone have any advice. My psa is slowly rising 5.4. my testosterone is very low 117. will this chemo help? will I have no strength and no quality of life left? I have serious comorbidities,...
In jan 2018 my psa was 1.294 and it has been steadily rising and now in 2019 quite quickly to 3.6 taken at MD Anderson. a Pet scan has revealed a lesion on my frontal lobe. this is not good. I have...
its called combined, others call it trimodal. casadex,lupron,protons, and photons. my doc called it everything but the kitchen sink. I was gleason 9, psa 10, all cores positive, and tiny lympf...
before my biopsy and cancer diag I used many labs to track my psa, where ever I was at the time. Arkansa, Texas or california. for the most part they were always close to each other and rising. but...
My psa has been slowly creeping up since nadir in feb of 2014. psa 12/1/12 9, protons till july 2,2013, 8/8/2013 .072, 2/18/14 .015 8/11/14 .023 , 2/17/15 .037. stop lupron, 6/22/15 .063, 1117/15...
I guess 2.015. But my URO said there are no rules, every patient is different. I do send my results to Loma Linda, but they have not responded....
I was trying to shorten the biopsy report, I had it looked at by MDA, Johns Hopkins and Column Carney. Column said I was a 7, 4+3, MDA said I had 2 cores that were 9's 4+5 and johns hopkins had one...
thanks, when I had the bone scan, I lit up like a christmas tree, and all 3 med facilities said arthritus. I can get another psa, they are just $12 at my local hosp....
I am plodding along with prostate cancer. I am falling off Loma Lindas med center chart for recording my PSA values.after 64 months this is my biggest jump from 1.469 6 months ago to 2.262. My...
I agree, and will continue on my downward sugar trend until normal. I will not be happy with the recommended middle roads....
I'm sorry you have such a rough time, Diab seems to be a very graduated disease, some are effected marginally and diet controls work wonders, others are off to type 1 regions and don't do so well....
thanks for the info, and yes I am getting better at it every week. more nd more I am trying to keep below 180. Unfortunately I am on meds which an't the best thing. sounds like you have the diet...
I looked at the web site, it like many shows what sugar level should be. but it does not focus on a diabetic. I like articles that address a long term diabetic needs on many meds and what to do when...
yes, I agree bread, potatoe, pasta was one of the many things I had to get rid of. I have a long list of nono's. exercise and weight loss would be wonderful, unfortunately my leg has given up, sharp...
docs have prescribed a night time 1/2 dose of glimer for my dawn phenonim. My morning sugars are getting better by avoid eating after 5. but morning bp is increasing? 145. i take a catapress for any...
I'm good on diab diet, I've just has a second 7 week diab class at the hospital. my a1c has gone from 7 to 6.7, so I am getting there. that 45-60 carbs is a biggy. I am working on the salt limit of...
thanks for the info. I see no reduction in bp from my lasix. I take 1/2 a tab. doc said I can stop. and my sugar and bp are sure related. and salt is a real kicker....
I have attended the howard county diabit class, 7 weeks, 2 hours per week. it has been an excellent training tool. I have had diab for 20 years, started out on 1 metformin, a1c 7.4 then 2 metformin...
My BP has been going up. from 135 to 160 on average. my sugar a1c has been stable going from 6.9 down to 6.7. but my sugar readings are very high, from morning 225 then to 145 during the day. I take...
sorry to mention, here I am after completing combined therapy in july of 2013, I reached an NDIR of .017 5/2014 with a testos of 58. stopped lupron at 1 year, 3/2014. psa creep .037 .063 .112 .210...
thanks sailor. I have seen that number, 2+ndir. also considerations are waiting too long and ending up with too many bad guys to fight. and too early may lead to a shorter time to Lupron failure....
after 4.5 years and combined treatments of (casadex, Lupron, protons, and Photons) my psa has now doubled in 6 months from .624 to 1.294. My urologist has recommended going to an Intermittant Lupron?...
all cores positive some 100%. not good. but after 4 years after completion of protons/3d conformal/lupron/casadex in july or 2013 I am now at psa .417. it has been steadily increasing as been my...
thanks Allen for the newsy info. I'll trust my docs right now, and tuff it out for a while. I do worry about side effects like heart failure? It is a muscle. But then T replacement seems to cause...
My PSA after 3 years is doing quite well 0.2. Thank you Dr Jabolla (LL). My Testosterone is not so good at 187. and all the side effects, lethergy, hot flashes, insomnia, body aches, back aches,...
I talked to loma Linda and they said there is no such thing as radiation proctitis? very strange because it's all over the internet. but I don't believe google either. But what about MDA and Johns...
thanks for the tips. yes I tried probionics but it increased painful gas. I tried vitamin C and E, and ended up bleeding. Imodium and its cousins do nothing once a wave starts. I have a wave...
thanks folks, I guess it's a live and learn and deal with. The good news is I am fighting a gleason 9 full blown cancer. and I am doing pretty durn good. My Lord is watching over me for sure. I was...
welco is real expensive but If it works I'll have to get it. I don't have much of a prescription drug plan. Problem is once the runs start nothing stops it, I completely empty down to brown water. My...
I guess they call it proctitis. I been 1.5 years now since the end of my 79.2 grays protons/photons. My diarrhea is actually increasing in frequency to very 3 days. I don't have a radiation...
thanks guys. I'll see my gastro doc Monday, 6 days. during radiation I had daily diarrhea, and then on the weekend. this was after about 7 weeks protons/photons. total 9 weeks, 79.2 gray. the protons...
well it's been 18 months and psa .034, I'm happy with that. awful Diarrhea and stomach ramps. But that has been a family characteristic too. I was getting the runs once a week after 1 year but now...
chicago prostate center, world renowned. Dr. Brian Moran and Dr. Michael Stutz,...
thanks for the notes guys. I stay in the email loop with my 9 brothers from loma linda. I am on the 2 year ADT. BUT with my low white cells Dr Jabolla thought it wise to take a break from the Lupron...
when I was told here I was a 7, I was estatic! I thought there was hope!!! then when I went to MDA they said I was a full blown 9 with 2 100% cores! gads. so shocked was I that I sent slides to...
well my psa continues to stay low, .034 probably an ADT Lupron effect. My white count is climbing ever so slowly. July of 13 1.3, oct 2013 1.6 and now 1.7. so the is hope. The words of my rep in Loma...
yupper, I had ADT, plus protons(4 wk) and photon (5 wk) and post treatment ADT and some days I am paralyzed. Lupron is the culprit in most cases. Recovery from radiation takes on average 3 months....
these guys are hitting the nail on the head. you can study HT till you are brain exhausted, and no one agrees. all the studies disagree or are suspect. I am a extreme local 9. ALL my doctors want 2...
These guys sure know their stuff, and are nailing it on the head. I recommend Tough it out. But I not a doctor. I would trust your doc the most, he deals with this thing everyday and hopefully, if he...
My gleason was 4+5 (2 samples) MDA, 1 sample 4+5 Johns Hopkins, extra capsule invasion (buldge) possible seminole.(weak signal). psa 9.5. radiation 79.2 rads. Protons+photons+Lupron.Lupron 2 months...
I have an oncologist that is proposing alternating lupron shots, like 3 months on and 3 months off. or 1 month on and 1 month off? I have heard of intermittent but not this approach. And I am aware...