Agent, you and I have a very similar history. 12 years without much of a problem. However, My post RP PSA persisted. Then HT and radiation. Fast forward, I aited a few years ago for my psa to rise...
Urologist in general have been using that scare tactic for years. With modern radiation, you can have salvage surgery. The statement that you cannot have surgery or that surgeons will decline to do...
This is great news. I have always held out hope with radiopharmaceutical approaches. Let's hope this leads to possible durable responses....
I am not an expert nor a doctor but the last sentence right now is the most important, "no metastasis"....
Hi JAPS! At just .2 psa level a PSMA may not show anything. So what does your MD base his radiate the prostate bed opinion on? Seems to me that he should let the PSA level rise before taking a stab...
So glad to hear you've been approved. It just didn't make sense that with your stats they would not. Good luck, hang in there....
I followed his posts for many years. We had a lot in common. RIP brother. You'll will be missed by many people....
Wow, what a loss. Growing up with his music was a blessing. So many good times with his music playing. RIP...
Thank you Todd for great inspiration and information. I forwarded your email post to someone who really needed to read this since he is very young with a very aggressive prognosis. What would we do...
Sorry to hear about your loss. Losing a pet is very hard, they are family. I remember your story well Todd. I would read your updates all the time starting in 2011 when my battle started. I remember...
Stephen S. I completely agree with focusing on obtaining a PSMA scan. However, most insurance will not cover it if this is your first time with prostate cancer. It is approved for recurrence. I think...
Just wanted to say that it took me a long time to realize that urologists are surgeons. That is why most want you to do surgery right away. But I have learned that the best approach to prostate...
Wow, I am truly humbled by your journey. Your posts are very informative and inspiring. Keep the faith, my fellow traveler....
OK, I think I understand. I have medicare plan G from Mutual of Omaha which was the best I could get when I enrolled 4 years ago. Glad I did cause now I need it....
Thanks JNF!...
Thank you Mumbo. Yes, after Northwestern, may try Mayo....
Hello fellow fighters. I got 2 questions. I've recently had a PSMA scan which showed mets in my pelvic region. 2 clusters of 4 and 1 in the middle. I had complete RALP failure with PSA 2 months after...
Thank you Sir. Stay in touch please....
Best wishes to you sir. I am back with mets and a new journey begins. Thank God I have a great caring wife by my side....
This happened to me too. Nothing to worry about as long as blood is not mixed in the urine. You will get spotting in the future if you are like me. After sex or next day for me....
Been away for awhile and think I am on the same path as you and appreciate the insight to this long journey that for me is starting all over again. Thought I had this under control. Kinda freaking...
Yep, takes a long while but you must keep working at it. Slowly but surely, It took me a couple of years to get to 90% of what I was. But it's worth the effort if you know what I mean....
Terrible Doctors and insurance plans = no plan at all. Glad for you....
Hang in there. I was worried too but things did get better....
I did ADT just one three month shot before SRT. That was when only a Canadian study supported but no one else. I begged my doctor for it and never looked back. It wasn't that bad. Plus you can always...
Thanks all for your input. Yeah, RT continues to give it blessing years after....
Hi everyone. Have not posted in ages but have always lurked. It's been a long road for me since my failed surgery. (See my profile) Given only a 22 percent chance of success I went with IGRT. Well,...
Todd, install AVAST antivirus (free version), and, spybot (free version) and run scans. Malwarebytes has a free version which I also use. Good luck...
Good Luck Jim and Marie. You guys are always in my prayers. Fellow Illinois peeps. Here doing well so far. God Bless....
First things first: 1. use a waterproof bedliner 2. I used depends and sometimes stuck in a huge pad inside 3. Don't drink after6 or 7 pm 4. Later when things get better, always be close to a...
Wampuscat Jim said it all. I was shocked with the persistent PSA. I would suggest that you read my posts regarding PSA tests to make sure you don't have a false PSA due to interference. Some men just...
GOOD LUCK! During this time try to exercise, ie treadmill, daily. It helped me alot for a guy who, until then, hardly exercised....
I only did one 4 month shot. I, like you, had to almost dictate what I wanted done. The Rad Onco could care less if I took a shot despite several studies about it helping. My Uro said it couldn't...
I did that last spring. Not fun, but with enough lube and numbing agent its not that bad. There's many things we all do now with cancer that we never thought we would ever do in a million years....
That is something I had for many months after surgery. But like all things that hurt, it passed with time and I'd almost forgotten till you posted your comment. IT WILL PASS. I know its painful, and...
Good luck Jim and Marie! Thinking of you. Your friend, Jimmy....
Cajun Jeff, I'm with you man. Open hernia surgery eight months after surgery and one month prior to radiation. Prostate surgery was a discomfort event while the hernia surgery, open of course, was a...
Thanks, my wife was Stage 4 and battled for 6.5 years. God bless her, a real fighter. If she only knew that I might be right behind her. But then again.......
He gave my good advise and was always a cheerful soul. I will miss him dearly. There are no works for this moment....
Good luck Dave. Always lurking. God bless....
Thanks for the insight and I love it. I to had to tend with my wife's cancer so no time to care for myself. And strangely, I resign myself to living with cancer and tend to be a fatalist - what comes...
Hi Alf. I found using the boxer-briefs works wonders. Those are briefs that are boxers. Still holds the pad and the Jewels and Staff breath. Good Luck...
Yes, lost my wife of 28 years a 2 years before finding out I had cancer. She had breast cancer....
My RO wanted me to go on ADT for only a short time - 4 month Lupron shot that is still working, I still get hot flashes. She said there was a canadian study indicating a long term benefit. I have to...
I'm so sorry about this. I will keep you in my prayers. God bless. Now is the time to fight....
I too had only one injection and suffered from the same things - peeing at night every 2 hours, joint pains, hot flashes. I don't intent to take another shot until the first wears off in order to...
Hi Ted, I just finished RT last week in October. HT, only one 4 month Lupron, given in July with RT starting in September. All went OK except for hot flashes and a little weight gain from the Lupron....
I just finished and must say not that bad at all. SE minimal. Go for it....
That's the spirit Todd. Our destiny, like a snowflake, unique. God Bless, Jimmy...
Thanks!...