Sorry to hear of your ongoing troubles. If you haven't already, you should have a thyroid study TSH, FT4 and thyroid ultrasound to rule out a thyroid-pituitary endocrine problem, which is the cause...
There is very new science on the phenomenon of "acquired resistence" where adenocarcinoma actually transforms from one variety to another. It has been studied fairly extensively in the context of...
Sounds like the doctor may be on the right track and hopefully the surgeon will be able to clarify things a bit because, although cervical stenosis and disc herniations typically cause upper...
A 2012 article written by H. Ballentine Carter, M.D. of Hokpins entitled Gleason Score 6 Adenocarcinoma: Should It Be Labeled As Cancer? raises the question this thread began with. His insight is...
Hi David - I don't post much these days but read your posts and the posts of others fairly regularly. I have followed your posts for years and have given considerable thought to the cause or causes...
Dr. Menon has an excellent model and team of people to support him. He is the hallmark physician at Henry Ford as people all over the world seek his services. This is not a plug for him as I know...
Indeed, it was his first day back from a long overseas trip to India for me too! I don't know where you're from but if you must stay in a hotel, I highly recommend The Henry. You will be treated like...
Hi Donald. I wish you the best of luck with your upcoming surgery. I certainly like the day of the month you selected and hope it brings you the luck I thus far have experienced. If you have any...
Greetings to all! I have been away from the site for a long time but decided to take a look today and saw this post near the top. I had my robotic prostatectomy on August 8, 2010 and have been in the...
I'm wondering to myself (out loud) how many on this list tested out "high" on the neuroticism trait. If I were to hazard an unscientific guess, I would think it would be a sizable percentage. If...
Is there a way to take a second look at the comments offered at the end of the study after you leave the site? I completed the survey last night and was interested in rereading the...
As part of my postoperative care, I met with a dietician who vehemently told me to stay away from flaxseed oil as studies have shown it promotes prostate cancer and increased psa. She said the seeds...
I certainly would get a second opinion on this because my reading over the past two years suggests that it really doesn't matter how close the Pca gets to the margin as long as it's margin negative....
In the past month, my urine flow has become weak and intermittant despite removal of my prostate. It was flowing like a firehose post prostetectomy. What could be the cause of this now? Lots of...
47. Had symptoms for eight years and PSA jump well before the "big one" that resulted in biopsies. My mantra to friends and family: "get your numbers and pay attention to them."...
Some surgeons leave bits of surrounding tissue including tips of seminal vesicles behind in an attempt to spare nerves and help with erectile dystfunction. Any idea whether retained SVs or...
Just take a look at your Midwestern options before you start flying all over the country. Some of the best are in your backyard. I'm partial to Mani Menon. All I can say is I was walking in four...
Welcome. As much as I would like to suggest and hope your cancer is low volume low risk, those biopsy results could be unreliable. I had a similar biopsy result as my bio reflects. First 12 core with...
Here's what Walsh writes in his book that may help to answer your question (Page 366 of 2nd ed.: "What are Surgical Margins Anyway? This is a confusing point for many men. When the prostate is...
This article published just a month or more ago in the Journal Cancer is perhaps the most comprehensive to date on the subject of adjuvant radiation treament (before a PSA rise post RP). The writers...
Mine goes from 94.06% without to 94.98% with???...
I still have my doubts about this namogram. When someone can explain why the stats with EPE are better than without it, then maybe I'll be more impressed. Right now, the results leave me doubtful...
I too saw a change in semen consistency but mine was very watery and there were times when the ejaculate went retrograde. I mentioned this to my urologist a year before biopsy and he justed shrugged...
I've had three hernia repairs and have burning pain that comes and goes. A "neuroma" may develop from the cutting of microscopic nerves during surgeries. Envision a nerve bundle that is cut and the...
Well, some good news for some and not so good news for others including me. My announcement seems a little premature. Junior is having good days and not so good ones. So, the saga continues. I'm...
First, the sad reality: This is a business, a PR campaign and believe me when I tell you that the docs look for posts like this knowing they have patients coming their way. So let's not fool...
Mel: It was August of 2010 and it was soooo hot and the AC wasn't working well at all. My wife was miserable and once we left the hospital we just wanted to get away from that place until cath...
Oh, I forgot one important thing on the list: Ducolax stool softner. An absolute must (clear with doc first but they'll probably prescribe some colace-like substance). It's not the surgery that...
I travelled from Baltimore to Detroit and stayed at the Henry (old Ritz) for 8 days. (I respectfully disagree with Mel about the hotel on Ford's campus--for use in August it was one night of misery)....
I'll preface my response with the "I'm not a doctor but..." I believe that last number of 20 is perhaps too high of a dose of the prostaglandin for you and which causes the pain in most patients who...
Please tell us exactly what the ratio of ingredients is on the bottle. There will be three numbers ___/___/___. The amount of each drug can be increased. You should also try the injection standing up...
It's a very funny and not so funny issue. I analogize disclosing cancer to friends to getting divorced. You lose some in the process. I have found that people, unfortunately, don't want the burden of...
Stevie Nicks' "Landslide" gets me every time....
I've experienced the same thing at various times in my life. It seems for me that the "grounding" events like having children, having relatives die, and recognizing one's own mortality cause emotions...
Well, this is better than nothing but it's pretty old. AJ47 Clarksville, Maryland...
Those concerned with identity disclosure can well enough pick a user name and limit their profile material to avoid the scammers and discriminators. One similar prostate cancer site has a whole page...
I'd like to make a suggestion. I know in the profile section it asks what state you live in, but am wondering why that's not posted under the person's screen name. I personally think it would be nice...
I was wondering how to find local support groups for prostate cancer. My urologist surprisingly didn't know of any. Is there a site or organization that I can contact? I live in Howard County,...
Hernias at the surgical sites (whether open or robotic) are fairly common. Typically, they are classified as incisional hernias. The bulge should be reducible (can be pushed back into place with some...
Today marks a milestone for me and I couldn't help but share. For the first time since my surgery I obtained a natural and full blown erection without using an injection! I'm thrilled to death!...
Lots of debate but the bottom line is: If it's available and affordable (insurance or not), why not do it? It's just more information and we all desire that as is reflected in nearly all the posts...
It's very tough to have the big "C" Although you tell family and friends the outlook is good, they consider cancer to be cancer and ultimately it will take your life. We too may believe that to be...
Hello and Welcome -- I too was 46 (last year) when I learned of my cancer. My doctors also explained that, based on my age, it needed to come out. I asked all the questions after reading Patrick...
All of the comments and opinions about doctors and approaches have been great, as usual , with a full range of opinions. I too was faced with the same choices as you, both as to physicians (I chose...
You should also ask whether and to what extent the seminal vesicles and lymph nodes will be evaluated by pathology intraoperatively, and issues that may present during surgery where they may elect...
I too used Dr. Menon, having abandoned the Hopkins option in my home town. I echo the comments that he is highly skilled and compassionate. I stayed in Detroit for 8 days and agree the suprapubic...
I used the nomogram and it rather oddly increased my odds of survival from 94 to 95% when answering "yes" to EPE versus "no." My stats are 3.2; 29 gm; 30% Grade 4; EPE+ and "no" to the rest. Very...
Add this article to the list of studies indicating favorable statistics from preemptive ART from The Journal Urology (2009) (sorry I can't find a full text link at this time): Adjuvant Radiotherapy...
I have the same problem during "attempted" sexual activity. Lots of urine. Otherwise, no incontinence at all. Only three months out. I guess I should be thrilled....
I'm with you on the failure to prepare. I had two biopsies totalling 25 cores, two of which were Gleason 6 with less than 5% in each core positive. I was told by the best of the best, "take your...