Hi cigafred , My husband just started Medicare, at our dr visit yesterday zytiga was brought up. He is still hormone sensitive, had a met radiated in January. PSA < 0.064, been on HT for 1 yr, then 1...
Thank you all for your help and knowledge. We do have a Medicare ins specialist helping us, and l think re are going w/ plan N . Drugs are still up in the air? The cost for the specialty drugs is...
Hi all, My husband will be applying for Medicare next month. Right now he is on 3 mo shots oF Zolodex. I know that the 2nd line drugs will mostly likely be in his future. Can anyone give me some...
Hi Bob, Yes the you are correct about the OSPREY trial ,scan corroborating scan? I don't know anything about the PSMA gallium 68 scan. Sorry no help . Good luck to you, whatever's you decide....
Hi break 60, My husband had the dcfpyl at Yale a month ago . He is currently on adt and has a vey low PSA . The original plan was for intermittent adt. But after the 1 spot on his sternum became more...
GREAT ...When he had the scan that was the only place, and there were only 2 people enrolled....
FYI, This is the only place now recruiting for 18 FDCPyl the pet/scan. It is the OSPREY trial I will give NCT # later. My husband had the scan at Yale New Haven Hospital in CT, 2 weeks ago. He was in...
I'm not sure of cost. I am under the impression it is part of the osprey trial, it is not scheduled yet . The RO is aswatha Naryana, and MO Dan Petrylak . We have not met with the RO yet, so...
My husband MRI had identified a spot on the Sternum, as metastatic . he is still HT sensitive, with a PSA at 0.3 and instead of iADT the MO will keep him on HT for now. The MO has suggested spot...
I'm sorry I wasn't clear. He is on his 2nd round of intermittent HT. He has been on zolodez for 8 months. His PSA continues to go down . Latest reading 0.5. The Mo has him have a CT And Bone scan...
Thank you Tallallen for your reply. His PSA has not risen it has continued to go down since he started his 2nd round of HT in May . We were hoping for <0.1 at the next test. What concerns me is the...
Hi All, We are do to see Onc in a week, but I am doing my research, and hoping for clarification before we go. We just received the results of my husbands latest Bone scan. He is on HT and has a Psa...
Thanks Tall Allen I thought it was there when I posted.i have added the signature....
Hi all, Looking for a bit of help . My husband is about to start HT again, second round, after a 15 mo vacation.His scans came back negative, which is good so far. But PSA on the rise,7.3 do to the...
Biker & Mel, Thanks for your replies.we have not spoken to the onc as of yet. The routine PSA just had it's first rise 10 months after his last shot of zolzodex. T level is rising currently at 298,...
I thought it was already there here it is...
Hi All, My husband has had a year off from his 1st Ht therapy. which was 8 months. Of course his T level is starting to rise and along with it the PSA. Such a double edged sword ! He is still at a...
Enter me ...T3a G 7 4+3 On HT break for now. Hope the <0.1 lasts!...
My husband diagnosed T3a RP...SRT...8 months of Ht. Currently on Ht break....
Thank You TallAllen and tarhoosier, that is what I thought....
JNF Isn't DHT is a by product of Testosterone? The amount of dihydrotestosterone present in the body from day to day depends on the amount of testosterone present. When levels of testosterone...
Are other oncologists likely to go along with the avodart , or is it considered off label. I know when I mentioned it to the oncologist during the HT treatment, his reply was since T level was so low...
BB Fan I have been looking into the Avodart for my Husband for his HT vacation, and posted recently. Thanks JNF, and Jerry, you seem to be having good results from it. The preference for Avodart over...
JNF, I see from your signature , ht , Imrt,and seeds.has your testosterone level ever recovered, or are you still at 3. Is that an effect of the avodart? I thought it effected the conversion, not...
Thank you for your replays, Jerryl, glad to know you have been undetectable for 2 yrs. JNF, why do you need the fomax, do you thing that adds to the effect if the avodart, or is that you need both n...
Hi all, Happy New Year. My question, how many of you have used the Avodart or Proscar when going on HT vacation ? What were your experiences with it ? Did it help keep the PSA low , side effects ? I...
Sorry I thought his signature would post. here it is Does Avodart have the same side effects as HT ? ------------------------------------------------------------------------------ Dx Jan 2011 PSA4.4...
My husband started HT in June. His PSA has gone from 3.4 to 0.3. In 7 mos. The oncologist wants to do intermittent hormonal therapy and thinks that the seven months of HT will be enough, and he can...
Sonny, I have been keeping up with all your posts. Good Luck with the Provenge. That will be our next step when the PSA starts to rise again. Stay well and happy...
Thank LupronJim. It's a good thing then...
Hi all, My husband started his HT last mo with Degarelix, and his T went from 600 to 9 after one month his PSa dropped from 3.5 to 0.8. His 2nd injection was a 3 mo injection of Zolodex. He has had...
Testosterone level was about 350 pre radiation, so I don't think it's that. What are the normal causes for testosterone spikes ?...
Any thoughts on why a testosterone level would double in 6 wks. Went for Blood work and Testosterone went from 390 to 636 in 6 wks. I'm wondering if the inc in the testosterone level has something to...
Happy to hear your good news. Have fun this week. Hope to meet you all soon....
Sorry Jenny. I reread post. It's your father, not husband...
Hi Jenny, My husband was also offered this trial. What is your husbands PSA. In the trial we were offered , PSA had to be at least 1 and no previous HT . It is a 3 arm trial with degarelix and...
Hi Burgess, I was reading some of your previous posts. My husband had the same surgeon. Although he did have a ,02 PSA, post surgery, It steadily rose and had SRT . Still rising and He is about to...
Hi Sonny 3, Peterdisablerd referred me to this post. Is this your 1st course of Ht? and where is the trial you are enrolled in Thanks Lin...
Hi All Has anyone started HT with anything other than Lupron / Casodex , Avodart. I know these are the norm. But there are some trials out there that start w/ others . If anyone has any results with...
I'm a novice on all these scans, my question. If the Pet scans are suppose to pick up mets better than a CT or Bone scan. Why are they not ordered before starting HT. Thanks for the info Lin...
Was wondering if anyone has been treated with degarelix as a 1st line of Ht.. If so, how are your results. From what I've been reading it sounds as if it has better results., and no T flare. If this...
Hi All, My husband had RP and SRT 17 months later. Unfortunately both treatments have failed and again has a rising PSA. Although his PSA is still low the doubling time is 3 months . When we see the...
My husband will be starting SRT soon. We have been to radiation onc (not at sloan) and a med onc at SLoan Kettering. The med onc wants to do a bone scan, and an endorectal MRI of the prostate bed....
Congatulatons on the good news. Thanks for all your help. Hope my husband can have the same after his srt Lin...
My hus band is about to start SRT. Can anyone give me some insight into either of these radiation ma chines Is one better, more precise,less side effects We have 2 consults w/ RO and each has...
BB.Fan and Newspaperlover your Stats are very similar to my husbands. We are meeting with 2 RO this week. one does Tomotherapy, and one Varian. Do you have any insight on either. And as far as HT the...
NewspaperLover, Thanks for your help. I think we will end up going the MSK route. We live about 40 mi North of NYC so probably the Daily commute. I still have 1 more PSA test before I will have to...
to newspaperLover. Thank you, I wanted someone who had a personal experiance w/MKS. Did you have your surgery ther also ? I am a bit confused though. Are the radiation onc. the ones that do the...
Thank You Keeping faith for the recommendations. I will look up both those oncologists.We also have Mem Sloan Kettering. Good Luck to you,I wish you the best....
Hi BBFan, Dana FArber is in Boston , correct ? Did you make that trip every day for SRT. I'm new to the SRT and HT so I really don't know what's involved. Do they start HT first than IMRT ? Had RP in...