By second generation meds, do you mean hormone therapy?...
Anyone had or heard of anyone having a PSMA pet scan with low PSA - less than 0.4 - finding bone lesions. What were next steps?...
I guess I was surprised to hear that there are oncologists that are recommending ADT with a stable .2 - .3 PSA. I just wanted to make sure I was reading that correctly. That there wasn't more to it...
AK - he takes metformin strictly because of prostate cancer and has not gone to ADT yet. He is young and healthy except, of course, for the prostate cancer. The doctor wasn't opposed to it as it has...
Just reread what I wrote and realized I may not have been clear that his PSA dropped after the radiation before rising again to the .2...
Allen - My husband had surgery and then salvage radiation about 8 months later when PSA was up to .17 or so. PSA rose after a couple of years to .2 but has remained between .25 and .35 for the last 3...
Sorry for your loss :-(...
Good to hear!...
Thank you for sharing this information. I hope the same for my husband. Happy holidays!!...
Great news. I am curious. Why does she not think the PSA will rise? What does she think is causing the PSA? My husband is in a similar place (but has not been stable as long) and his doctor seems to...
My husband did not do ADT with salvage radiation so this doesn't exactly address your question. But he was < .1 for a year and half after salvage radiation before PSA started moving up. It may have...
It depends a lot on the individual and circumstances. My husband was very young and had surgery within months of being diagnosed. All data indicated AS could be appropriate - low gleason and only the...
I also have appreciated his well thought out information that includes scientific backup. It has helped with ideas of what to ask the doctor. Thank you!...
My reply was going to be similar to Beth's but probably not as well written. Although I understand where you are coming from, I would be devastated if my husband chose to take a risk against doctor...
Thank you Allen. The pathology report reviewed at one well known hospital where surgery took place indicated gleason 3+3. After SRT failed, we had it looked at by another hospital and it was read to...
Allen - now you are worrying me with this statement: is the treatment that is thought to control the cancer actually making it harder to control? Is there any evidence of that? My husband is taking...
The oncologist at Dana Farber was willing to prescribe as there were no harmful effects and possibly could be helpful....
My husband had rising PSA after surgery and did SRT. PSA was < .1 for about a year and half after SRT and then started rising. It rose from .11 to .25 or so in the next year and we asked the...
Tall Allen - thank you for the information and your thoughts!...
So are you saying you would not take pomi-t?...
Are there studies that show the effectiveness of Avodart after failed prostatectomy? Are there many doctors besides Dr. Myers that recommend its use? When I asked the doctor, he said it artificially...
Thank you Jerry. I appreciate your thoughts....
Jerry - that is correct. He has not been on any hormone therapy ever and has not had a scan showing mets. In addition, the psa is still low - only .23 Clearly something is going on as it went down...
Revisiting this topic - not sure if there are updates. My husband (currently only 44) has biochemical recurrence after salvage radiation - psa still low but trending upwards. When I asked the doctor...
Do they use hormone therapy with the radiation? Some studies have shown it helps the effectiveness of the radiation. Some hospitals will do it and some it is not protocol. You may not want it but it...
Great news!...
Thanks for the feedback Mel and Jerry. It's tricky to know how aggressive to be. On the one hand, if it is not a desperate situation, one is inclined to not be aggressive. But it seems like the...
Good update. You wrote, "He does NOT advocate a chemo/HT COMBINATION in my situation, since I am a G7. He feels when my PSA goes up, we can knock it down again with HT." Do you know why the gleason...
My husband's oncologist has suggested possibly using chemo with hormone therapy when we get to that point. It was suggested that for a certain percentage of patients it has no effect but for a...
My husband is 10 years younger and in the same place. We had our first good news in a while when his PSA (after going from .11 in December to .18 in March), was stable at .17 in June. With one test,...
I think you mean .11 instead of 1.1. I would re-test immediately for piece of mind....
I'd been wondering the same thing and couldn't figure it out. It seems there were some trials using it prior to hormone resistence, but I couldn't find results. Tony - what might long term...
Not a different HT med - but an oncologist suggested to us the possibility of HT drugs with taxotere (sp?)....
May you have a long vacation!...
I know there aren't many on here who have failed SRT, but what is the longest anyone knows someone has lived after failing salvage radiation?...
What has your oncologist presented as the potential options at this point? Has there been any suggestion of chemo with the ht? or any trials?...
I did ask an oncologist about testosterone levels because my husband had not been tested. I asked if it would help to lower it to a smaller amount. His answer was the same thing you are noting that...
At this stage, once you start HT, do you ever go off? Or is it continuous until it doesn't work?...
Do you think standard protocol in your situation is hormone therapy when psa is 1-2? My husband is in a similar situation (not the low T, but the possible failed srt) except that his psa readings are...
I am also interested in the answer to the above as my husband is in a similar situation. His PSA is still lower, but I'm thinking he is only a year behind. the first oncologist we spoke to made it...
Not sure if this will work but http://www.healingwell.com/community/default.aspx?f=35&m=2924515 ...
Thank you for sharing. I get depressed about my husband and it is nice to hear stories like this giving hope. I like the sweet details about his grandkids....
There is no way to know the right answer. My husband, only 41 when diagnosed, only had gleason 6 in one core, and after surgery and salvage radiation, his psa is not zero. I am thankful he didn't do...
6040 poly - My husband is just like yours. "He's very upbeat, positive and going about his everyday life. He's not denying anything, more like ignoring. Except he's going through treatments and doing...
Thanks for your input. I just realized that I put Michael Smith and his name is Matthew Smith. He is at Mass General....
I don't know if this is allowed here, but does anyone have recommendations for medical oncologists who spend most of their time on prostate cancer in Massachusetts. We received two names so far,...
Congratulations and thank you for reporting and providing hope to so many others....
Thank you Chris. I'm really hoping by some miracle it stays low. He's only 43 and we've got young kids. :- (...
Our doctor said doubling time is not really relevant at the really low numbers. Obviously you don't want to see it rising quickly, but the doubling time might look worse than it really is....
one more question - njs - do you or anyone else know good names of medical oncologists (as opposed to radiation oncologists) specializing in prostate cancer at Dana Farber or Mass General?...