Dan's widow Jean has worked hard to keep Dan's legacy alive. She keeps his website up to date. She also has a website for caregivers calls "Don't Lose Heart." It is for all caregivers. Listen to the...
Sal, You took the words right out of my mouth. It has been hard to write. Since Bob passed on April 7th, I have kept to myself pretty much all of the time. First to just catch up with sleep. I...
Hi, Have they done spot radiation? (Not sure if that is the correct term)., but it is external radiation. What pain killer and how much are they giving him? Hang in there. Susan...
Thank you so much for your kind words. Mostly just putting one foot in front of the other. I found this poem that Bob wrote to me a while back. In my dreams, you share my hammock. Under a dark and...
Thank you all for your kind words and support. I am at peace with the fact that he is out of pain. The last two weeks have been very rough. I knew by last Friday that he was slipping away. This is...
My partner Bob passed away yesterday. He had been fighting this illness for 6 years, but realize now after looking at medical records that he probably had it 10 years before we joined forces. He was...
Hi Beth, Thanks for your suggestions. Bob is on Fentanyl, and several other painkillers. He is starting Xofigo tomorrow, as well as spot radiation on this lower back and knees. I hope it helps....
Casper, It's early in the morning. So forgive me if I go off on a tangent. I could hear the pain in your voice regarding the feelings you have about what your wife might be dealing with. I can only...
Sorry for having not checked in in quite awhile. Bob just got out of the hospital yesterday after going 6 days ago. His pain was off the charts, and he was incoherent. It appears that the Zytiga...
I decided to wait to read the thread on depression, although I would be lying if I said I wasn't down. I can so relate to avoidance on "end of life" planning. And yet, it seems like the responsible...
Hi Tedsnal, Sorry to hear about what's going on with your guy. This roller coaster ride gets very heavy sometimes. I, too have been low lately, If not outright depressed. My guy's numbers went up...
Hello folks, I can not remember the last time I have been on the board. I have been very ill over the last six months myself, and just recently felt well enough to do more than lurk. My husband has...
Hello Strangers It has been a long time since I have posted. I have been very sick with a major infection from anti-biotics which gave me C-diff. Fortunately my hubby has been on the upswing recently...
To add to Todd's message.. my sweetheart has gone back and forth with numbers at high as 800. He is presently into his second month on Zytiga and his numbers are down 600 pts. He recently put in 7...
Dave, Thanks for your reply. One day at a time is the mantra. We started counseling last week just to give us guidance. This disease is a tricky thing. As Bob has gotten better, and less on the pain...
Update on my husband Bob: Well, it's nice to give a somewhat good report. Zytiga and radiation seem to have provided Bob some needed relief! He is walking much better, in considerably less pain, and...
We were able to get 100% coverage through the Patient Access Foundation. (Our Cancer Center did the legwork to get it after Social Security never got back to us for support). Susan...
Well, good news to report. After on month of Zytiga, my partner's PSA is down 300 points! Not much time to celebrate though, as he has been falling a lot lately, the last time, 1 hour after we got...
So sad to hear. My thoughts and prayers are with you, Chris and Bob. Susan...
Would any of the caregivers be interested in seeing if we could have a chat session on this board? It seems like things are getting heavy for some of us, and I know it would be nice to have a "real...
An, I can so relate. Along with my husband dealing with this horrible disease, my mother is in the hospital too far for me to go to, as I can't leave home. Can I suggest a website that has been...
Bob started his Zytiga four days ago. With the Prednisone. Also just finished a ten day course of Radiation. Had our first troubling experience with the place we have been dealing with. Honestly, I...
Norm, If there is one thing that I am learning is to find out as much information as you can about where you are with your disease. These guys have you covered on the positive points of getting a...
PAN just approved co-pay assistance for my partner's Zytiga. He starts today. Susan...
Thank you Peter and everyone. It does make a difference to know that others who are going through this battle have us in your thoughts, as you all are in ours. My prayers are with Zimac and her Bob....
Finally some great news to report! We got Bob's Zytiga covered! He starts tomorrow! A foundation which right now I can't remember their name is covering it 100%. The Cancer Center we are going to...
Not sure why, but I have been feeling despondent these last few days. Which is strange, because although we are in the new normal, things are pretty stable right now. Bob's weight is continuing to...
He sounds like he was an amazing man. I know he is missed and well honored. Susan...
David, Several things. I am sad that you are going through so much pain. My partner is too. We have never had any real consistent pain control for him, so it frustrating. We both get some relief, (...
Yes, give the antibiotics time to work. Dehydration, and UTI's can cause that much confusion. A mental health consult sounds like a good idea too. An anti-depressant might help. Susan...
Cathy, I have been down with a vicious flu this week, so I have been delayed in a response. So sorry that you guys are having a tough time. I look at the list of treatments that your guy has gone...
Is he on any pain meds? Could be a complication form that? Also, an UTI or dehydration can cause confusion. Susan...
David, Have you tried acupuncture at all for pain? Susan...
Hi Pat, Well Bob got home on Thursday. Happy to have him home, but it has been somewhat of struggle. Trying to get his pain under control. They are shifting him on to a Fentanyl patch, which has been...
Thanks Susan Truer words can not be spoken. Just when I think it can not get worse, it does. Onthe other hand, we are closer than ever, and he appreciates my support. That is golden. I just wish the...
I have been following the board, but haven't felt like writing, as we have been knee-deep in the hoopla. Probably a bad choice of words, since my DH had surgery on March 3rd, where they inserted two...
Pat, So sorry to hear about Mark's passing. I have been caught up in the drama out here, so I have not been on the board for awhile. My heart aches for you and your family. Take care. Susan...
Dreamer 44, My heart is with you and Mark. We have had some drama over the last week, so I have not been on the boards. He knows he is loved, and that will ease his way, I hope. I will update from...
Sorry to hear about your husbands facial numbness (my everything). The constant onslaught if new symptoms and daily emergencies are taking their toll on both my partner and I. His balance is...
The depends are working.We are meeting with the P.T. tomorrow. Things are settling down. My guy's pain is more under control. Hopefully we will both sleep tonights. Thank you for being there (here)....
Kak. Thanks for the quick reply. Were the depends helpful? Do I also need pads for the bed. Thankfully I think he is getting it cause he stopped and used the urinal by the bed. I will get depends in...
Ladies, I need practical help. My guy went into the hospital after a fall. We are now home and he is incontinent as well as very unsteady on his feet. He is going through 3 pairs of underwear in...
Thanks Gizzy! You made my day! A quiet day at home for the Valentine's Day holiday. Moving ahead on things to make my sweetie comfortable. Not sure if he even knows that it is today. That is ok...
Well, I guess I am not there yet ladies. I am feeling so impatient with him during times when I now I shouldn't be. He is so confused, and I find myself being short with him. I don't really know why....
Just catching up with most recent posts. My guy fell on Sunday night, and ended up going to the ER, as they thought he had a cervical fracture. My beloved has a hard head, so thankfully no fractures,...
Well Dream 44, You really have captured a lot of what I am dealing with, and feeling. My guy is still getting treatment, but is having a lot of pain, and fluid in his legs. He is also dealing with...
Pat, Thanks for your kind words. I am thinking of you and your honey tonight, as I attempt to find some ballast in all of this. My guy woke up from what I thought was a fall free day, only to see...
Thanks so much for your responses. I have been remiss in including some of the facts and figures of Bob's numbers. Some where along the line, I lost track of it, but that is another story. He...
I have been off the boards lately. Trying to keep up with the ever increasing needs of my honey. He is decompensating at a quick pace, which is now leading me to get home health care. We are going to...
I am finding myself on the site more the last weeks. I am feeling some frustration with the what seems a long time with getting back to the Doctor about a surgical consult for Bob's hip. He is being...