This works. https://youtu.be/fojsNTnw4QQ ...
You asked for it. It's me in the space suit. Also singing and playing guitars. https://www.youtube.com/watch?v=fojsNTnw4Q ...
From everything I know, I would say surgery is actually your best option at such a young age. I had my surgery last May at the age of 62, and had zero side effects. I did have ED prior to the...
Am I "undetectable" or not? As I previously reported, in July my PSA test came back at .01 instead of <.01 and it freaked me out. Same result in August. Those 2 tests were done on a different machine...
It is 0.01 The nurse always calls me to fill me in on the results and they will probably call me tomorrow. But all my <.01 results are from a different method than the latest result I got today. So...
Since my salvage radiation which ended in January, all my PSA results have come back at <.01. These tests were all done using "Assay Method: Chemiluminescence using Siemens Vista analyzer." I just...
So far so good. I’ve been on Zytiga for 6 months, which I don’t love, but so far PSA is still undetectable, and all numbers in metabolic panels and such are consistently normal. So I’m tolerating...
Or you could stick around and offer help and advice to others who have had a similar experience as you. It's kind of a two way street, you can seek help and comfort, but you can also give it. ;)...
Just booked my flights! Learning that Todd was going to be in attendance put me over the edge. I'll bring my Geetar! Bonus that I get to spend a few days with my baby sis in NOLA! Mic...
I was having a heck of a time with hot flashes, especially at night. It was really interfering with my sleep. I mentioned it to my RO and he said that the anti-depressant Effexor has been shown to...
Nope. I have a whole different team now....
I know that it is up to us to be our own advocate, but there are things that happened on my journey that really make me mad. At least some of it was my own damn fault. I am upset with my original...
I thought my ears were burning a bit. Just crazy all the recent advancements in treatment! And yes, my RO, and my MO both agreed that I could be on Zytiga only, instead of Zytiga & Lupron. I am also...
You know how when you buy those small size candies, like Milky Ways, or Reese's Cups for Halloween, and they are called 'fun size.' I guess now I have a 'fun size' penis. I have ED 100% at this...
Well... 'Cheap Radio' ain't winning any Grammys for their version of your song. ;)...
Firstly... If I ever do not respond to you it's because most of the time I can't figure out what in the hell it is you are trying to say. Regardless, I enjoy reading your ramblings. You are a hard...
Do you know if they gave you a 6 month Lupron shot? Maybe they are keeping you on Zytiga until they figure your Lupron shot wears off.[/quote] I know for a fact it was a 3 month shot. They told me...
You are correct! Somehow forgot to add that! RT started 12/8....
Just to document this… They are taking me off Lupron so I will only be taking the 500mg/day of Zytiga with 5mg Prednisone. I would have had to get another Lupron injection on 1/29 but now I won’t...
So they told me today that they will take me off Lupron and I will only be on the daily 500mg of Zytiga. I guess this is a good thing....
Genre is Lounge Lizard! I thought everyone would get the reference! https://www.youtube.com/watch?v=JFyuOEovTOE Yeah, I saw that the sig has a character limit but I'm under it. And I see the whole...
Just got my first PSA after starting on the 'triple threat' Lupron, Zytiga, & RT and it's <.01!!! So I wanted to document that in this thread....
I updated my sig to document this but it didn't 'take' for this post. Here's my new sig: DOB 9/14/58 Dx 2/19/14 PSA 2.85 Biopsy results: G6, <5% - 1/10 cores AS Lite from 2014 until 2020 (There's a...
Since I'm a songwriter I thought I'd express myself this way. Just got my PSA results and here's what it said.... Undetectable, sung to the tune of Unforgettable by Nat King Cole. Undetectable -...
Thank God for modern medicine Mr. Cyclone!!! So awesome....
I'm getting co-pay assistance so I am paying $10/month. On my plan, without the co-pay assistance, it would be $160/mo. Also, the co-pay assistance I get is only good if it comes from a certain...
Just started with the Abiraterone Acetate this morning. The Med Onc has me on what I understand is a lower dose (500mg/day), so I am hoping that means a lower risk of the nastier possible side...
I start my RT on 12/8 and if all goes as planned I will be done 1/24/22. 34 treatments. Just got my tattoos today. I've never had a tattoo but I figured that would be easier than getting re-marked...
Hey Cyclone, that's a good run! Keep it going. As far as I know I just have that one hot lymph node according to the PSMA PET scan, but I know that there are likely little cancer meanies swimming...
Good to hear! I just found out my Zytiga dosage will just be the 500mg/day instead of 1000, so hopefully the SEs won't be too bad from that. My Lupron is one shot every 3 months. It's been 3.5 weeks...
First shot of Lupron on 10/29/21. So far just minor hot flashes, nothing too intolerable. Will start Zytiga (generic) within the next week, and RT beginning in January. Was hoping to avoid the long...
Thank you all for this thread, just got done reading every post! I had my first shot of Lupron on 10/29/21 and had labs done yesterday to see if I'm good to go on Zytiga. Labs came back all normal so...
Thanks all. Great info as usual....
Hey all! Had my first Lupron shot yesterday so I guess I'm just waiting for the man-boobs to come in. ;) Having a consult with my RO Friday to find out about my radiation treatment, and the main...
It came from the clinic that does the scans at the University of Minnesota. When I was not sure if the insurance was going to approve it, I asked them how much it would be out of pocket, and that...
1st Lupron injection on Friday....
I heard that this will be approved next year: https://www.cancer.gov/news-events/cancer-currents-blog/2021/prostate-cancer-psma-radiopharmaceutical-vision ...
So... relatively good news from my scan... Only one node lit up and it is in my pelvic area. So nothing in bones and nothing distant. Going in ASAP for my first dose of Lupron and will get the...
Michael was a friend and he was a very sweet man. I just finished texting with his widow and although she knew this was coming, it is still so tragic. I don't feel it's right for me to post any of...
Been staying off the forum because I don't want to dwell on this shit and just try to live my life. I got very bad news after my RALP. Three months out my PSA was 1.4. Got approved for the new PSMA...
I will pass this along. Thank you!...
I was just going to post about this. Michael is a friend of mine and this is just devastating. I'm also good friends with his wife Jennifer. This is so heartbreaking, He is a really, really good guy,...
I think you are right and kinda why I posted this. The majority of men will recover their continence pretty quickly, and if not pretty quickly, in a reasonable amount of time. I believe I had an...
Had a rough couple weeks just being tired, and dealing with abdominal pain and constipation, but it seems I am almost back to normal. I am pretty close to 100% continent, not wearing a pad at all...
Finding it extremely surprising that I am just about 100% continent right off the bat. Is this unusual or have my expectations been overly influenced by reading this forum? Whatever the case one of...
Hmmm. Interesting. I really have no clue but if anyone has a specific question you can formulate for my uro I will certainly ask. I’m also not averse to getting s second opinion from John Hopkins....
Also... Nobody commented on my ability to stop and start urine streams. I have a pad on and despite a little leakage due to coughing, or standing up/shifting positions, I am able to 'hold it' and my...
Sorry for being a whiny b****. Apologies to Mr. Duck. For the record, I did send a question to my uro concerning guidance on Adjuvant RT, or possible other treatments, regardless of 3 month post-op...
I agree, and I appreciate that, with the exception of the first reply, which the user edited. It hit me the wrong way. Mr. Duck apologized and I accept that apology. Sorry if I am too sensitive...
If you notice, Mr. Duck edited his comment before he even saw my response. I know that because as soon as I posted my reply I saw his comment had changed. He knew it was a tad harsh before I said...