I had Cyberknife therapy in Denver CO and would strongly suggest you contact them or Dr Medbury or Katz to discuss this modality before surgery....
Has any of your docs discussed Total Parenteral Nutrition with you? TPN for short- they stick in a needle into a vein and feed you the required nutrition and lipids. It can be done at home and gives...
Most people have been very understanding and helpful. Most of the time they have a friend or relative who has had it and interested in sharing their experience....
Sorry guys I don't know the amount of radiation. I will email dr Simpson and ask...
Had 5 treatments at Colorado Cyberknife Center. Some bowel and urinary side effects which has been explained. Treatment using flomax and advil so far. Most others who have had this say it gets better...
Thanks yes it was quite a journey getting through all of the stuff once diagnosed in April of this year. It becomes your part time (FT) job to learn as much as you can in order to make the best...
Will do. Looks like the proton therapy has worked well for you....
5 treatments at Colorado cyberknife center. Min se felt good all week. Follow up PSA in 3 months. Yay!!...
Thanks Tud that may help I thought I had turned it on...
Private message me for my .2 cents worth....
I went to the Proton Center at MD Anderson for a 2nd opinion and possible treatment earlier this year. I am trying to get Cyberknife treatment for the following reasons: 1. CK doesnt generally...
Thanks guys the MR doesnt sound like any big deal especially after the fiducials. So far my expereince with Colorado CK has been excellent. I would like to get them to open a center in Houston I...
LeftyW- did you see Dr Pugh at MDA? They have a thing for the endorectal coil. I had an MRI done there with it as well...
Strange farmerboy on the taping the legs because what i posted is direct from Colorado CK. I will ask them before I do it....
This is the MRI Colorado CK asked me to have done and sent to them for the CK planning. It is pretty confusing. Just curious if anyone has had this type of MRI...
Anybody have any familiarity with this? "3D acquisition MRI of the prostate, 1.5- 2mm thickness, axial cuts, thru the prostate including the seminal vesicles. Have feet taped together and hands on...
I am in the process of undergoing CK treatment for PCa I chose this over surgery and part of the treatment is placing fiducial markers in the prostate in my case or elsewhere for those who have had...
Hello Mr. Harrington. We could make a copy of the CT on a CD disc and mail it to you or give it to you at our office. The cyberknife procedure makes automatic, continuous corrections for all 6 types...
I have talked with Drs Mederry in OKC, Katz in NY, and Simpson in Boulder. I called the Austin clinic and they said a physician would call me back but nobody ever did so now I have a name to use...
I have requested a copy of the images and plan to get them to 2-3 other MDs who participate on the CK board. 2 responded saying they didnt think this should be that big of a deal. So we shall see. I...
They claim the delivery method wasnt the issue but havent really said what it was. Yes a possible do over later this month. I posted on the CK board and look forward to what the docs over there have...
Went in for the planning CT/MRI and was told 2 of the markers are in the wrong place in the prostate and because of that they cant proceed with the treatment. My options- go back to the Inv Rad to...
Talking about the MP MR which I had done using an endorectal coil. Not a particularly pleasant experience but not terrible. Pretty expensive $6K at MD Anderson mostly covered by insurance. Ok in this...
It does and I feel your pain. IMHO the technology isnt quite there yet to give you and a whole lot of us those kinds of answers w the needed precision to make a clinical decision. Another blog I read...
How old are you? Considering a gs of 6 and relatively low PSA you might want to consider as until if ever things get worse...
Most docs I talked to said GS 7 or higher most likely pushed you into a treatment group and not a candidate for AS. Check out the NCCN guidelines to help you. It depends as well on your age and...
I also chose CK at St Luke's in Houston where I live. BCBS of TX has approved it. I had fiducials placed last Tuesday. They go through the buttocks not rectal or perineum. My butt is still sore but...
I will keep you updated on my progress. I am scheduled for the CT/MR simulation scan next Wednesday. The treatments to follow. The CK at Luke's is being upgraded so a slight delay. Upgrade as much as...
Believe me I was really freaking squirming. Thanks God for conscious sedation otherwise forget it. Thanks I am looking forward to getting the treatments done and celebrate living life again. This...
No seriously through the buttocks and I have the bandages to prove it. Dr Carpenter at Luke's is waiting on a new scanner to do it through the perineum and thinks the incidence of infection is too...
I had abdominal surgery in 2007 and my Uro immediately ruled me out as a candidate for robotic and suggested Open approach which sounded difficult at best. I did a lot of homework and decided to go...
Done at St Luke's in Houston as an outpatient procedure. The Intervent Rad used conscious sedation and local they go through the buttocks to do it which is different than everybody else as far as I...
Never thought to ask that question....
Its starting to be real...
Which doc did you see in Houston? I also live here...
Pre auth for anything outside of the "standard of care" is a MUST. The payers in this country will use every tactic to avoid paying for services even if it helps men avoid painful unnecessary...
I echo much of the above comments. I am going to have SBRT next month (Cyberknife) at St Luke's in Houston. I have talked personally with 5 MDs regarding treatment options and several others via...
I would have a biopsy as well. It isnt one of life's more pleasant experiences but it will help you and your MD decide first of all are you positive for cancer (yes it can come back negative and then...
No it is a different test. It has a pretty long track record for use in breast cancer not so much for prostate....
Does anyone have a familiarity with this test?...
For what it is worth your Uro will most likely want to monitor PSA every 6 mos maybe 12 and if it goes up then do another biopsy. Unfortunately repeat biopsies are the standard of care (I had 2 neg,...
I have been to MD Anderson for a 2nd opinion with Dr Pugh at the Proton Center. I am trying to go the SBRT route vs surgery. I hadnt heard of the multi disciplinary clinic. Dr Pugh thought I was a...
I am looking at Cyberknife therapy. Go to the cyberknife.com site and there is a list of places. And then start making phone calls. Some of the Rad Onc will want to have hormone therapy along with...
It is all about luck or genetics none of which any of us have any say. I personally like Ron Bartlett but Imus is a jerk. Very good at self promotion and making money though...
What treatment is he doing? From what I could tell from his TV/radio show he didnt choose any invasive treatment. Does anyone know?...
Thanks I did post on CK forum...
I am kind of confused... are you saying Cyberknife (SBRT) hasnt shown efficacy when ADT is added but is very effective by itself but if considering proton therapy then ADT+ Proton is effective?...
They didnt say anything about after rad, but it wouldnt surprise me....
Dr Pugh at MDA and Carpenter at St Lukes in Houston both suggested ADT (Lupron + an oral) for 2-3 months then EBRT (Proton or CK). Due to insurance reasons I need to get started asap on the ADT. MRI...
I think Valium or Xanax would be a great idea...