OK, so when I read the posting title "EXPIRATION DATE" I thought you meant MY expiration date!!!! ;) Bob...
So that's what they mean when they call it a LAB test!!!!! Bob...
Add a 'b' to my pT3, if you would. Still kickin' it! Bob...
Jd, It sounds like UCLA is opting for a very conservative treatment plan, one that is not attempting a cure, but only to slow things down. In your message, it sounds like they are planning casodex,...
...Wonkwang University ?????? ROTFL Bob...
Todd, As I approached my 3 year mark on Lupron, after initial radiation, second radiation when a met was found, Provenge treatment, and months of undetectable PSA, I asked my Medical Oncologist about...
Thanks, Redwing! Bob...
JNF, You mentioned reports posted by Redwing on T recovery times - any chance of a link to them? I've been on Lupron holiday for a little over 6 months (after 36 months on), and my T level is...
Island, If you are speaking of active surveillance - it looks like you are on the right track! If you are going to just do nothing - quite risky in the long run. Bob...
I'm in! pT3BN1M0 at diagnosis, single met found 18 months later... No surgery. After primary radiation, then radiation to L2 Met, Provenge, and all wrapped in 36 months of Lupron, complete...
goatts, It can be done! I was on Lupron for 36 months, and am currently on Lupron Holiday. Whatever increases your survival percentages, go for it. Bob...
I agree with radiation - It's worked for me on mets to L2 (so far...) Bob...
Mr Magoo, There is hope! This disease can, many times, be managed for a L_O_O_O_N_G time if you are aggressive in treatments. We don't use the see-you-are-eee word, we speak of Durable Remission,...
Castrate level is considered PSA below 50. On Lupron, my T was in the single digits. Bob...
An amazing piece of writing!I especially like the imagery about 'Durable', and the requirement to check back with the conductor at regular intervals to see if you must re-board the train. Bob...
Three years on Lupron for me, started first intermittent cycle 5 weeks ago. Yes, there is quite a loss of body hair (none left in underarm area, chest quite bare, arms & legs left with soft, fine...
LupronJim, Glad to hear that you're tolerating the Provenge & SBRT therapies so well. Here's hoping that the abscopal effect is activated for you! Bob...
Boogee, Like Lupron Jim, I am ogliometestatic. I had a single met show up at L2 with rapidly rising PSA, rad onc hit it hard and I have been <0.02 for the last 20 months. But, this met qualified me...
After my diagnosis, my wife said, "You're not going to tell them at work, are you?" I replied that I could not see how trying to keep something like this a secret was going to work in my favor. When...
Thanks for the response, Chuck. Unfortunately, mine has been confirmed as Psoriasis - we looked into the nail fungus issue years ago, and even tried fungal treatments without success. On the good...
Thanks for all the well wishes! now, the waiting begins... Bob...
Jerry, Back in March 2013, after a sudden rise in PSA, found a single vertebral met. This was treated with spot radiation, and it appears to have been knocked back quite effectively. Since this was...
I just re-ordered generic sildenafil (suhagra) from an offshore pharmacy. cutting 100 mg pills in half for 50 mg daily use, my order will last about 300 days, with a total cost, including shipping,...
After a full 36 months on Lupron, and 20 months of PSA <0.02, my MedOnc has recommended intermittent androgen suppression (of course, I did inquire about it 4 months ago...). My next Lupron injection...
I personally like the sound of the phrase "Durable Remission" - sounds nice and solid! Bob...
I agree with LupronJim's recommendation - If you are considering Provenge, all you will have to do is get one more rising PSA, which can be as little as 14 days after the last one. Then you will meet...
Hope, Good to see you back. Everyone deserves to have a life away from the HW site. I appreciate your response to my situation. I've been trying to find others who have had superior responses to...
"stayin' alive, stayin' alive" Now I can't get that song out of my head! Bob...
Ms WW, Similar does not do it justice - we appear to be on parallel tracks! I'm pleased to see that your husband has achieved such a low nadir, and has maintained it for so long! Has there been any...
Redwing, I was told the same thing when I started, that I'd be looking at 24 months of ADT with my IMRT, then we'd stop the Lupron and see where the PSA leveled out. Over the next 6 months, this...
Still seeing PSA at <0.02 (16 months so far), so I'm planning to have another serious discussion with my Med Onc at the end of September, which will be a total of 3 years on Lupron, and will be 17...
Tony, I'm willing to be interviewed, also. T3BN1M0 at initial diagnosis. IMRT treatment, PSA dropped to <0.01, then started a rapid climb. Diagnosed metastatic castrate resistant after a bout with...
My HMO posts the lab results immediately on their website. Yesterday I went in for a PSA blood draw at 10:30 AM, and had the results on-line before 6 PM. Previous Med Onc had set it up to not post...
I've been dealing with Psoriasis for over 10 years. The plaque portions I can deal with, but my nail beds are a mess. Previously, I was able to reverse this, and return my nails to excellent by use...
Peter, Great Story! (Carcinoma Angels). It speaks to me in the way that we're stuck with this disease for life. Bob...
Zometa was recommended as soon as vertebral bone met (with compressive fracture) was confirmed - I started within a few weeks. It has worked well - spot radiation knocked the PC out, and the bone has...
Megace has worked extremely well for me - hot flashes reduced to occasional nuisance ones at night, none during the day. I tried to go without once, but the hot flashes came back with a vengeance...
Sent email Bob...
dse9999, From another T3B, welcome to the club that nobody wants to join! We're all supportive here. Your initial diagnosis sounds very similar to mine 33 months ago, and my PSA was 52. To give you...
Hopeneverdie, I've been following your posts for quite some time, and appreciate the vast amount of info you have put forward. Your posts, and my MedOnc's promotion of the treatment, helped me to...
good survey to participate in! Bob...
Jerry L You wrote that you have not been able to get Provenge because of your current progress. Have you, in the past, met the requirements for Provenge: ie. Metestatic PC with 3 rising PSA's (or...
email me directly Bob...
After you get checked out by your doctor re possible infection, you might try ice packs. I had a lot of discomfort at the end of radiation treatment, and the ice packs really helped (just make sure...
Megace has been working quite well for me for the last 2+ years - it hasn't stopped the night sweats completely, but the daytime flashes are almost non-existent. It works for some, but not for...
Todd, None of us would put up with this lack of service at a restaurant! We're the patrons, and deserve better service than this. Complain away, loudly and repeatedly, to customer service. Bob...
Congratulations to all the vacationeers! Hope to join you in the near future. I'm just watching the calendar. Bob...
JerryL, If I remember correctly, Lupron initially. Not sure if there were other meds used - I'll have to ask him when I see him in a couple of weeks. Bob...
ChrisR, The difference is, I personally know a PC patient who was involved in a phase 2 trial of ipilimumab - he started out with PSA over 2000 at diagnosis, widespread mets. Then trial meds....
Here's a current article on Ipilimumab trial: http://medicalxpress.com/news/2014-01-clinical-trials-prostate-cancer-drug.html#inlRlv Bob...