Interesting subject as I am to start statins tomorrow (simvastin I think)....
I don't know too much about these things but I just want to say good luck and I hope you find a medicine or trial medicine that helps Dave....
I was hoping it was the lowest they could measure. Thankyou for all the positive replies....
It does not say zero on my latest PSA test it says <0.03. What can I read into that figure (eg.detectable?)? What does this mean for me? I'm still on HT, had an RP, and finished IMRT just over 2...
I'm not at the stage of requiring Chemo yet but I am researching it. So far it appears to me that the treatment is purely palliative so I am curious if anyone has a chemotherapy success story....
Hi kukukajoo, sorry I haven't replied earlier. I get the triptorelin injections every 3 months so i'm due my next one next week. The side effects include short term Memory Loss (which isn't common...
Hi kukukajoo, sorry I haven't replied earlier. I get the triptorelin injections every 3 months soi due my next one next week. The side effects include short term Memory Loss (which isn't common and...
I've been using this for a couple of months. The problem is that the erection becomes unusable after about 5 minutes no matter which size ring I use, which of course if very frustrating. I'll ask for...
I haven't been on for a while, not a lot has been happening in recent weeks regarding treatment. Anyway my latest PSA level was 0.15 after 2 months of HT, that seems low considering I was 33.9 to...
I do not have a copy of the surgeon report (although I did ask for it). I'll see what they say tomorrow and let you know....
I'll need to ring the hospital in the morning. I just wasn't sure whether it was usual or not. The surgeon did say it had spread to the rectum but not whether he cut into it out not....
I stopped having blood in the urine after 4 weeks but the back end is still bleeding a lot when I go to the toilet (5 wks). Is this normal? How long will it take (ball park figure) to go away?...
Any suggestions now that I'm a month post RP? I'm assuming I'm not allowed to do the usual abs type exercises (eg. sit-ups). Are there any youtube videos that may be helpful?...
Hi Bob. This will be my next big decision. RT in a couple of months or SRT later on. I saw the radiation oncologist today, he was all for the adjuvant radiation. It's certainly been an interesting...
It's of definite interest for me to bookmark Alf. The information may come in handy in the near future....
Thanks John, that's clarified things for me. Tony the similarities are exceptionally close. I will be sure to check out those links/documents. The fact we're so similar and you're doing well several...
Thanks for the replies. I'll chase up my appointment with the RO. I was told on Monday they had sent him an email last week and would resend it that day. I'll print out that diagram. It should help...
It confirms Gleason 7 (4+3). The Lymph nodes came back negative. That's the good news. The confusing part is the surgeon telling me after the operation of extensive cancer in the rectal wall (really...
Considering I've just had a RP and got told their is cancer left behind on the bladder and rectal walls I found this interesting. The next step for me is RT. This makes me think I should hold off...
Gedman I had my catheter removed earlier today and that is the exact phrase I used ("I finally feel human again"). It must have been noticable as others have stated how much better looking I am...
I sent you an email Ziggy. Just noticed you are actually in the US...
Hi Ziggy, I was just about to email you. Thankyou very much for the information. I now just need to look up all those 'big' words. Hope you're keeping as well as can be expected....
I only got this detailed information today. The surgeon did not perform a full PLND because of the likelihood of residual tumour (in the rectum I assume). Neither did he remove the seminal vesicles...
So cancer has spread to the rectum. Why should I be worried? What problems/symptoms will it cause (currently none)? What can be done about it? I can't seem to find info on it. Googling 'prostate...
http://toddseals63.blogspot.co.uk/2014/05/stand-your-ground.html?m=1 Some interesting reading on Todds blog although I have not long started. This one so far has caught my interest....
I will have a look. Thanks....
i have no idea how long i have left but it would be nice to think PCa could be cured by then. Sadly I cannot see it happening in time for me, maybe if I had got this in my sixties rather than...
When I was cT3b I found advice and inspirtation in others on here, and much-sought after information from many studies. Post op T4N1Mx seems harder to find those studies and those members with the...
It's a pity this forum will lose one of it's most productive members just as I'm starting out on the journey. However you have made your decision and I for one wish you 'all the best' and good luck...
Good on you. I'm a Scot living in England. I'm only 10 days post op but I've invited some friends, people I've known since my schooldays, round for a little party. Might as well 'get busy living'. I...
Good luck, I would not wish this on anyone. Hopefully after the biopsy result you can just go out with your family, relax, and celebrate....
I didn't get an ointment or any advice from them regarding this particular matter but I'd imagine keeping the area clean and lubricated will help. I'll soon find out....
Ok. Thanks for that Patrick....
I've had the catheter in for over a week now. Mostly it's been fine. I've looked on here for advice and found out I should have been keeping the tube near the entrance lubricated with something. No...
Hi Peter. I had a 6 inch open incision with around 24 staples. I've been itchy around them for a couple of days. Glad they're coming out on Friday....
Thanks for that post Peter. I have just started researching today, feeling a little better, and if I find anything of interest I will of course post it. Posts like yours make me feel a little better....
At what stage should we be demanding docetaxel?Are the extra side effects worth it?...
I have been home since the beginning of the weekend. Physically I am starting to feel a lot better. My discharge now from the hospital says: During the surgery it was noted that the prostate Ca was...
He said another MRI scan but when I reminded him I was claustrophobic and could not go right in (unless under) he said they may do a CT scan instead....
I've been put on bicludamide tablets, have the clips out Friday, then I have an injection called triptorelin, before I get another scan and see an oncologist to assess the next step (eg. RT). No idea...
A truly heartbreaking story. I have a had a bad day but your story had reminded me that my wife is suffering every bit as much as me all the way through this. You show that we are all in this...
... and thanks for that post Peter. It makes me think the RP may not have been in vain after all....
Thankyou for all the kind replies. I've had many visitors today to help me through it. Todd 1963 thanks for telling me of your fight and showing me I may have some time yet. Overthepond, I am in the...
Has anyone got anything to cheer me up? Someone with similar that's doing well would be an inspiration....
The next morning now and the surgeon told me he removed my prostate and nerves before he realised I had extensive cancer in the bladder, and particularly the rectum. Scans showed T3b but now it's in...
I hadn't heard of it. The lack of side effects is significant. Unfortunately (for me with SVI) it looks as though the cancer may need to be organ confined. Very interesting though....
I am getting used to terms such as cancer specific survival rate and I believe they count 15 years remission as the closest thing to a cure. Even then of course finding that data is not easy. Taking...
Why are these so hard to find and why are doctors so reluctant to give you the low-down on cures (eg."You have a 10% chance of a cure based on others in your position")? Do these stats exist? For...
Hope he's fine today. I have my Prostatecomy next Wednesday. Good luck....
A DRE showed 2 nodules. Would that be something to do with it? I'm assuming here that nodules mean its "sticking its head out of the window". Edit: Thanks Tony....