Hugs to you Beth, although I have not posted much, I have been following this thread closely as our journey (unfortunately) seems to be just a few days behind yours and it is so difficult to accept...
Carolyn, thank you! I will show Charlie your note of appreciation-it will mean a lot to him to know your Dave may very well be saved with this med. That was exactly what Charlie had said about the...
Thanks George, Charlie is taking 8mg of dex and CBD brownies have helped as well....
Charlie started having symptoms of increased fatigue, muscle cramps, weakness, flu-like feelings, hoarseness etc (symptoms of hypothyroidism) after about the third round. The symptoms gradually got...
My husband was in a clinical trial of keytruda. We were very hopeful with the great outcomes we had read. It is important to realize that it is difficult to know just what else can be affected by...
Thinking of you and holding you close in prayer. My husband has an awesome hospice care team as well. Dr came on Tuesday late afternoon, sat and visited for over an hour. We have had a nurse visits...
Prayers for both of you! As my husband and I are at the same point as you in this journey I can relate to the feelings you are going thru! I have found comfort in putting my fears and anxieties at...
My husband had the xofigo injections. The injections did not help much in his case-but my husband is one of he I fortunate ones who has not responded well to any of he treatment options. I have heard...
I am so very sorry and you are not alone...my husband was given the same news In January "I'm sorry but we have exhausted all the treatment options and there are no clinical trials available that you...
My husband is half way thru the 6 radium 223 treatments. He has done fairly well-not sure what it is doing if anything. He continues to have pain and feels very weak. It is important to watch lab...
Yes 81GyGuy he is a very caring person...I love him lots and lots!...
Opps this was to go under the thread 'favorite sayings'...
When the urologist gave my husband his grim PCa diagnosis and I had my head down sobbing like a baby he took my chin in his hand, raised my head, looked me in the eye and said "chin up buttercup,...
Yes you are correct I mean to reply here with the above note-sorry and thanks for fixing it....
I'm wondering if your wife might be in denial. We all go thru these steps when faced with life threatening illness. I know Charlie accepted his diagnosis much sooner than I did and I'm sure I wasn't...
Are you taking any other medications? There are many common medications like aspirin, Tylenol, etc that can increase your liver enzymes also alcohol intake and being over weight can increase your...
I will be praying for you to get the new job. We live in Illinois as well and there are issues that have had us thinking it is time to move on. We have lived here all our lives. I have also had a...
Have you checked into SS disability? Stage IV prostate cancer is on the "list" of covered diagnoses and may help with expenses....
To obtain your medical records, call the hospital or clinic where you had your surgery and ask for medical records release department. Tell them you want copies of all the reports and records from...
Sonny before you shaved your head were you having scalp pain? My husband complains that his scalp feels so painful like needle pricks all over. He has used the clippers and trimmed it down as short...
Xtandi or zytiga AFTER chemo? My husband had xtandi before chemo which failed to bring PSA down and has now started on taxotere and zometa. I don't remember for sure but I believe the oncologist...
My husband just started the second half of a clinical trial of pembrolizumab. Anyone else ever been involved with this particular drug or trial? I'm not sure what to think...PSA at the beginning of...
My husband is going into a clinical trial beginning this Thursday and am very interested in what you have to share. Hope I can listen in!...
He definitely needs to get off the Demerol. Morphine or dilaudid may be better choices for his pain. Zofran for possible nausea that may occur. (As a nurse, Morphine & Zofran are my favorite combo...
Interesting that you would post this, my Charlie asked his Dr this past week about taking a break from his treatment as well- lupron and xtandi. The answer was a big No, not a good move! His PSA this...
All I can say is WOW & thank you for sharing. I shared it on Facebook-not an easy thing for me to do but the message is vital to share! Chin up, together we are stronger!...
Awesome! Love the beauty that you capture in your photos-thanks for sharing!...
Done!...
SagoMan, love Galena! We live in Dixon il and one of our favorite motorcycle rides is to the Galena are area....
Great drop in PSA flyboy, I see you are from wisconsin, are you being treat at UW Madison by chance? We are from Illinois and my husband has been going there for the past year now....
Thank you for the info Adjust appreciate your reply. I'm looking forward to getting to MDA and see what they think and will definitely post what we learn from them. I have learned so much from this...
Thanks TallAllen for your reply, I did ask the Dr about the taxotere and this study, he said that Charlie isn't a candidate for that option since he has been on Lupron for a year now. I feel better...
My husband has been on 3-month lupron injections for about a year now. Initial PSA was 292, down to 72 after first injection, then 40, then it was 16, 15 in April and today it was 18. His...
Amazing! Thank you so much for sharing. On our bucket list to travel to Utah, Colorado and/or Montana. :yeah:...
Awesome news!...
Lilibug1, my husband & I started this journey with a urologist in rockford il (we are from Dixon) and after a couple visits and much research, we decided to get another opinion at UW Madison. I...
I can't get it to open to see it:-(...
We are asking that President Obama will allow the White House to be lit blue one day in Sept for prostate cancer awareness as it is done in Oct for breast cancer, please sign our petition to make it...
Would love to meet up with you folks at this conference-sounds very interesting but we have another commit that weekend....
My deepest sympathy and sincere "thank you" for sharing your brother's journey. My husband is also a G9 with bone mets diagnosed a year ago at age 52. We are going to MDAnderson on 08/04 because I...
Wonderful!...
Your writing is very inspiring and has really helped me put some things in perspective as to what may be going thru my hubby's head-he is a very quiet person and keeps so much to himself in a way i...
Charlie had his first PSA on Wed since starting hormone therapy (casodex followed by Lupron injection on 8/6) and it was down from 292 in June to 70! :turn: :turn: :turn: :turn: :turn:...
At age 62, I think I would get another doctor's opinion. The shoulder blade pain may be from bone metastasis but you would need a bone scan to know for sure. Good luck to you & welcome to this forum....
This a great idea, Purgatory and very nice post, HD_Rider...so true how a cancer diagnosis can make you reevaluate what is truly important. I lost my father to lung cancer when he was 52 yo and he...
Happy anniversary to you both, wishing you many more wonderful years!...
Awesome news! So happy that you are doing so well. ((Hugs)) to you and your wife!...
We had a wonderful family-fun weekend bringing about prostate cancer awareness. We did enter the chilifest on Saturday and tied for the People's Choice Award so they tossed a coin and we lost...
I would definitely call the insurance company. Lupron is an expensive injection. We had problems with the insurance not wanting to pay for my husband's Lupron & it was quite the ordeal getting it...
I wish I could be more like "goodlife" but I'm more like "redwing" always thinking what if? Or then What do we do? So many of those monsters go thru my head...Charlie (the one w PCa) has a better...