Thank you VinceinMT and Noggin for your responses. Glad the AUS is working well for you both. I'll ask the surgeon about the 50% odds and let everyone know what I find out....
First, I'm grateful to be alive after fighting a stage 4 Gleason 9 Ps cancer since 2011. After a radical prostatectomy and 40 greys of radiation it has left me incontenance. I'm tired of wearing...
Todd, congrats on your 17 year anniversary from a fellow Provence alumni. I am at year 12 of my anniversary. Not too shabby for a Gleason 9 stage 4 patient. I hope our posts give HOPE to all that are...
I had four treatments of Provenge back in 2011. I was a stage 4 after surgery and still alive. I was a participant in a clinical trial and glad I participated....
[i]I'm a G9, stage 4 patient that has dodged the dreaded disease from coming back. Can't live the low quality of life with low t=T so I get 12 testopell pellets put in my hip every four months so I...
Tony, After my diagnosis and before surgery, (not knowing that the cancer had hit a lymph node) the OncUro told me about a trial study for a new drug called Provenge. It was a very small study...
I am alive five years after being diagnosed with late stage 3 PCa before surgery and was promoted to Stage 4 during and post surgery. Thankfully for a wise Oncologist who had dedicated his life to...
I celebrate 5 years of wonderful life and have no second thoughts about being a Provenge alumni. Not bad for a Stage 4 PCa patient. I was in Dendreon's Phase 3 trial study of about 40 men who were...
Todd glad you are doing well. /We Provenge Alums need to stay around for many years to prove it really has made a difference in our lives. Keep up the great work....
I want to offer hope to those with Gleason 8/9 and 10 by sharing that I was given five years at the time of dx. In a matter of months, I will be at the five year mark and hopefully will still be...
Redheadskier, When I mentioned the three treatments, it was not the three you mentioned. Provenge protocol is to administer their product on three occasions (treatments). Once approved for Provenge,...
Redheadskier and Frank, I am a G9 and stage 4 PCa patient and I send my best wishes to you and Frank. I was one of the first Provenge alumni on HW and would really encourage you to do all you can for...
HopefulG9, Your HW name is so important, Hopeful is a great start down the prostate cancer road. I am truly sorry about this diagnosis, but I too am a G9 and was dx in January, 2010 and currently...
Welcome aboard Mate, Sorry you have found us. But if you have PCa, this is an amazing brotherhood and sisterhood of amazing people that are so unselfish with their cancer knowledge and validation of...
I am AB+, maybe that is one reason why I am still alive when everything points to being on the other side. Very interesting....
Thanks for the great entertainment....
Way to go buddy. I am so happy for you and your sweetheart of the great news and success that you are finding with Zytiga. This news has to give so many on HW hope that they can have success with...
Fauntleroy, Congrats on your great progress and good test results. Enjoy every day as a true bonus day, because each one if for all us dealing with this nasty cancer....
gunfighter, The frustration has completely abated since what was done was done with good intentions and since I am not perfect and make mistakes, I just wanted him to learn so he never made the same...
Squirm, Grab your brother by his sideburns and make him go get his PSA tested and do it every year. Denial and avoidance just can make his cancer worse. I am a huge advocate for early PSA tests...
Sure was, My dad and his two brothers had it. I had an older brother that was dx with it ten years ago, before I was blessed, then I made my other three older brothers get biopsied and sure enough...
Thanks Hope for your detailed response. I sincerely appreciate it....
Let me respond to a few questions that came from my earlier post; Warmpusscat After my dx and planning for the RRP, my UO was participating with Dendreon in a study and had been for a couple of...
I had two Provenge Treatments in March, 2010 and the third treatment in April, 2010. I was randomly selected for a fourth treatment which I received n July, 2010 (post RRP). My last recent PSA test...
JerryL, Yes, you can put me on the list that you inquired about....
Isn't it great that we are still alive and can still participate in the forum! Wahooooo. Keep it up Todd. In mores way than one can imagine:)...
lowandslow. Azsunshine2012 is correct about the saturation but one small clarification. The studies have shown that saturation occurs when your Testosterone is at 70. That isn't much when average...
Barb1, Hormone deprivation is really nasty on the body and the mind. By drying up his testosterone, it dries up his energy, sense of well being, drive, etc. I read on another PCa forum that American...
Todd, I am on my way up to Washington with a Wendy's triple cheeseburger, Biggie size fries, a chocolate shake and an apple pie, that is just for starts. The next course will be lots of pasta, fresh...
Happy New Year Buddy. I'm headed over to read your current post. I hope January is a wonderful month for you....
A standing ovation is due to celebrate your great result. Congratulations. Go celebrate your good fortune....
Congrats 49packard. Here is to a very Happy New Year at your home and with your kids, grandkids and now great grandkids. That is really awesome. Provenge is a wonderful step for those of us who have...
:turn: While we are fighting this nasty prostate cancer we made it to another Christmas. Thanks to all the great men and women that devote their life to research, developing great surgical skills,...
Hi, before my Lupron injection in January of this year, I had a serious accident and had to have my last two vertebras fused and had serious damage to my right hip. One of the side effects for Lupron...
Hopefully you received some clarity and direction at the doctor's office. Best wishes....
kwidd, Congrats on your first product infusion. You are getting it at exactly the location I received it four years ago. They are true pros at HCI. Hopefully you won't experience any side effects. I...
Hi Todd, Can you respond to Barb1's post/question regarding Provenge. I can't remember if you were BCR before you received the product. Merry Christmas and way to go to excel through one more year....
Barb1, I am so sorry to hear that your husband is BCR. I am a G9 as well and I am a Provenge alumni. However I was selected to participate in a small study and received three treatments before...
TC, Merry Christmas to you and your beautiful family. Thank you for all the hundreds (thousands?) of hours you have donated in being a moderator, researching PCa and sharing all that knowledge with...
Thursday will be a piece of cake compared to the Leukapheresis. One thing I learned is that they will have to give you benadril thirty minutes before they start infusing the product. After my visit...
6040, Now it is our turn to check in with you and see how you are doing and if you felt any hope from your first post with the responses received and the help from the women to exchange emails, phone...
Im a pro at these, had three treatments before surgery and one post surgery. The medical folks will take great care of you, asking you what movie you would like to watch, they will even itch a nose...
6040poly, I send my love and best wishes to you and your husband. Let me welcome you to the forum that nobody wants to be on or have to deal with prostate cancer. I am a Gleason 9 and in a few weeks...
Congratulations from another fellow G9. That insures Happy Holidays. Cheers...
I started with ADT in January and was on Lupron and Cassadex for six months which ended end of june but I know it takes months for the Lupron to vacate the premise. I also had eight weeks of...
An, Congratulations to you and Paul on that PSA level. I so hope they can resolve what is causing his neck swelling and that you both will be able to go on that wonderful trip. Best wishes and I am...
Tough decision. I would lean into the camp of waiting for a few months and see what the PSA is doing. i have heard from many, that while their first test showed positive for PSA it did decline over...
Clanda, Hindsight is so wonderful to validate a very tough decision for most PCa patients and even for U.O. surgeons and R.O.s as well. I bet you are sleeping better knowing you absolutley made the...