Dear Beth, I am so sorry. There are no words. Just know that many are thinking of you and your family. Thank you for sharing this journey. Angie...
Beth, I want to thank you so much for your posts in this thread. As I mentioned in a post on the Gleason 9 thread (and to which you very kindly responded) I am holding out hope for the clinical trial...
Sue, in answer to your question about PSA, yes they check his psa about once a month. It was about 180 at diagnosis and since then has gotten as low as .9 with his initial run with lupron, and has...
SMO1 and Celebrate Life, thank you for your replies. Yes the dates for cytoxan are a typo. It should say 2016. Answering your question about who makes the decisions about treatment, my husband's...
My husband is about to start a clinical trial for a BET inhibitor. He has not had zytiga, but had 4+months of xtandi with significant reduction of psa at the beginning and then a slow increase. I am...
I haven't posted anything in quite a while, but my husband is about to start a clinical trial at MDA in Houston and I thought I'd share the info. If there is a better place within the forum to post...
My husband had his primary 'debulked' in November 2014 at MDA. He was diagnosed in Nov 2013 with G9, mets to the bones, psa at 176. After he had a great initial response to lupron, he was put on the...
Sorry Beth and Tarhoosier - I must not have clicked on the 'notify me of posts' on this thread so I am just today seeing your responses. My husband has not been diagnosed with neuroendocrine to my...
My husband will start chemo with Cabazitaxel and Carboplatin on Tuesday Jan 19. He has not had any chemo before now and is not considered neuroendocrine at this point. He has mets in his bones only...
Gunner34 - just saw your reply after I posted to LupronJim. Thanks for writing back. I am intrigued by what you said about your aggressive cancer in the prostate was not responding but in the bones...
LupronJim - Many thanks for your reply. I have been reading these forums for quite a while and have seen many of your posts. Although you are a bit older than my husband (he is 53) your case seems...
Alephnull, Thank you so much for your reply. After many years overseas in the oil industry we were relocated back to Houston in summer of 2012. Thankfully that puts us in close reach to MD Anderson...
I am new to this form and new to prostate cancer. My husband was diagnosed in November 2013 - gleason 9, bone mets and initial PSA of 179. He is 53 years old. What a shocker and we are still...