Thanks much Tall Allen. I am only a Canadian citizen so NIH does not seem to care, although they are strict on trial qualifications. They also paid my travel expenses from Canada. I have the FANTA...
For the interest of readers, early this year I was a trial subject at NIH for the combo of olaparib and MEDI4736 NCT02484404. It initially worked and then stopped working but being at NIH was a great...
Hi: So sorry to hear of your diagnosis. But there is great hope these days with the new medications and treatments. For what it is worth, I had SBRT on 3 bone mets and the prostate in 2011 with no...
Your name "SpecialLady" is well chosen! Houseboy...
Special Lady, You made my Day! I have 2 daughters, one a family doctor and the other a PhD in law. I am certain your Father is as proud of you as I am of my daughters in pursuing Quality of Life for...
Hi Annie: I purchased the C-11 PET Scan with Acetate in Phoenix under Dr. Almeida, at my own cost. I have used it 3 times with mixed results. Hi Beth and Tall Allen: Thanks much for the info. I have...
Tall Allen, can you address my query under "Life After Cabazitaxel", please? Houseboy...
For what it is worth, my signature shows that I had SBRT twice to pelvic area over 4-5 years ago. Both CT and C-11 scans taken since then show no activity in the areas scanned. I certainly have not...
HI Beth: My onc advised me also to try Mitoxantrone. The problem is, however, that being third line chemo, it might disqualify me for any new trials. Instead, I am trying to find out what trials are...
Thanks, Rick. I did try Xtandi after I came off of Zytiga, but it did nothing (cross resistence). My Onc wants to try to re-challenge Zytiga. I think I will go for it. I hope your Jevtana continues...
Hi Beth: Many thanks for the response. I have been following your postings and various treatments. Impressive! My signature does not explain that I have had 4 treatments with Caba and yet progression...
My signature shows my declining choice of options that have kept me alive for more than 5 years with a good life style. I am still without pain and tolerate the chemo very well. However, despite 20...
You will be missed - I always check your responses whenever I tune in to Healingwell. Houseboy...
Hi Rosewood: For what it is worth, I have had SBRT on two occasions 5 years ago to my prostate and 3 bone mets in the pelvic region. Recent C-11 PET/CT scans with Acetate done in AZ show no activity...
Hi SJN: Like Nomar, I have used Dr. Almeida's C11 PET/CT scan with Acetate in Phoenix 3 times now, successfully to point out soft tissue and bone mets undetected by normal CT scans. My Canadian oncs...
For what it is worth, I had my prostate and 3 bone mets taken out by SBRT 5 years ago with no recurrence to prostate or bone. However, my G9 has now spread to the lining of the right lung (pleural...
Many thanks Don, HB...
Hi: Having failed docetaxel and now taking cabazitaxel, I am rapidly approaching the end of my options. Trials are the bright star now but I am excluded from most having had chemo and Zytiga. I have...
Interesting discussion. For what it is worth, I had one session of SBRT to the prostate and other bone mets in 2012 and again for another bone met in 2013. Recent C-11 scan in Phoenix reveals no...
Hi Rosewood, As Nomar mentioned above, I had SBRT to my prostate and 3 bone mets some 5 years ago. Subsequent scans have shown no recurrence in the areas treated and no SEs to date. Good luck,...
Thanks, Allen: I would be very interested in the ARN-509 trial, or any other trial for which I may qualify. I have my name in at NIH volunteering for any trial they originate. Thanks for this,...
Hi Tall Allen: Yes, I have had and continue to have a good result with Taxotere, but I am preparing for the day it fails. Jevtana is a good option, and I thought that Zytiga might also be an option...
Tall Allen: Thanks much for your reply, and I pose extending questions. Given the certain situation of being Zytiga/Xtandi and castrate resistant, and then Taxotere resistant, if one does this test...
I have noted that John Hopkins is now offering to the public a blood test for AR-V7 for mCRCP patients, at a cost of $1000. I understand it might help in deciding whether to take Zytiga or Xtandi....
Thanks much Allen. Since Xtandi did nothing for me, I am going to ask my oncs to try Zytiga again once I fail taxotere. My only detectable met was a right pleural effusion that developed when I was...
Hi Charley: I would be interested as well as to how it is going for you, and how you were selected for the trial. I am currently on Taxotere with success, but looking for the next option. My onc...
Many thanks Allen. I really appreciate (as I am sure we all do ) your dedication to research on PCa and its therapies. Many would never be aware of these jewels of knowledge if it were not for you....
Hi Tall Allen: You wrote: "Another potential benefit seen in a recent study is that it may, in some cases, restore sensitivity to Xtandi and/or Zytiga after the cancer has become resistant to those."...
Hi Cyclone and Ed-bar: I am a G9 at 76 who, after 4 years of treatment (see summary below), had to go to Taxotere to reduce my rapidly increasing PSA. I have had 5 infusions so far and have had much...
Hi: As a G9, I have had SBRT twice, once in 2011 to zap my prostate, and mets located in the left acetabulum and right trocanter (femur), and again in 2012 to zap a met in my left ischism. I have had...
Hi Dave: I have had SBRT twice in 2011 and 2012 quite successfully to both prostate bed and pelvic bone mets with no SEs. Subsequent recent scans show no new activity in these areas. Hope my...
Great post, Devastated, for those initially diagnosed with aggressive PCa. I am a G9 diagnosed at the outset as Stage 4 with pelvic mets. That is the BAD news. The GOOD news is that I am still alive...
Hi Carol: You can see from my signature that I started Xtandi after 2 years of Zytiga. However, after 45 days PSA kept rising rapidly so I shifted to Taxotere, with the option to go back on Xtandi...
I like the new name, Jim (as if I could pronounce it). Does this mean you will not revert to Lupron after your vacation? You have had a good run for a G9. I am still taking the equivalent called...
Hey Joey: Just to support the above, I have had SBRT twice (to the prostate and 3 bone mets indifferent areas) and I have had clean bone scans since (the oldest now 3.5 years). Houseboy...
Hey Lupron Jim: I would be glad to give you my email address if I knew how to do that on this site. Dr. Andrew Loblaw is leading the oligometastic and SBRT studies at Sunnybrook. My rad onc is Dr....
Thanks again robertC. Unfortunately, these trials either do not apply to my situation or I would be excluded (I have been on Zytiga). If you learn of more, I would much appreciate a heads-up! Houseboy...
Many thanks, RobertC. I will immediately check them out. Houseboy...
As Tall Allen recommends, Dr. Loblaw at Sunnybrook is top notch. I am a patient of one of his ROs. I had radiation at Sunnybrook and my story is told in PAACT magazine, Issue VOLUME 29, NUMBER 2 •...
Hi robertC: Thanks for this posting. The trial results sound encouraging. I may have qualified for it but I understand the recruitment closed in December, 2014. Are you aware of any other trials...
As with Lupron Jim, I also have had the C11 PET/CT scan with Acetate with Dr. Almeida in Phoenix, TWICE! My story is found in the PAACT magazine VOLUME 29, NUMBER 2 • Summer 2013. The first time the...
So sorry to hear of your worry, but it is good that you are doing your own research and inquiries so that you are better able to discuss your situation with your doctor. As all above have cautioned,...
Jerry L. and Don: Many thanks. Found it but it disqualifies those on Zytiga. If you spot any that are chemo naive and PSA progression, I would appreciate a heads-up. Houseboy "This Disease is Going...
Hi Don or Jim: Do you have an URL for the NIH trial of which you speak? I am obviously in need of a trial with Xtandi. Houseboy...
Hi Again Jim: Further to my recent post, MRI was negative, as were the bone and CT scans taken in 2014, including the C-11 PET/CT scan with acetate taken in December. My onc and Dr. Myers agree that...
Aloha Lupron Jim: So sorry I have been silent for a while. First off, my story was published in PAACT, VOLUME 29, NUMBER 2 • Summer 2013. The URL is...
Jerry L. Hi again. I am on Metformin under Dr. Myers as well. He did not prescribe any statins with it, but he did prescribe 4 pills a day for a total of 2000 mg. What dosage are you taking? Are you...
So sorry, Zufus. The number of replies to your posting demonstrates how well respected you are from your contributions in the past. I am sure you will find a way to keep on going forward! Houseboy...
Hi Compiler: Being an SBRT guy, I am wondering why Dr. Lam indicated SBRT was not appropriate for your situation. Was it because he is suggesting radiation of the entire pelvic node system rather...
Jerry L. - great news. But I am a bit confused, your 2 spots show evidence of where the cancer was but not where the cancer is - am I correct? Are we talking about healing of the bone to where the...