My heart is heavy for all of you ladies dealing with such burdens. Please know I am praying for all of you and hoping for some good news to come your way. I don't post on here much anymore since I am...
Great news!! It is about time you guys got a break. Enjoy the trip! Barb...
Sal, I am so sorry to read this! My heart and prayers go out to you and your family. May you have peace knowing you both fought bravely and you were with him the entire time. Please take care of...
Happy Anniversary! May you have many more together!! Barb...
Oh Dixie, Thank you so much for sharing such a difficult, but redeeming story. I do truly believe God is the only one who can heal John, as well as our marriage...if He chooses to do so. I know He...
Thanks everyone! I appreciate all the support. Found out this morning that his ex joined him on his little vacation to Florida!! Guess I shouldn't be surprised. It is just getting uglier by the...
You guys are awesome and just what I needed. I have gone into momma bear mode to protect my family! His ex has been an issue our entire life, but it wasn't a few months ago when I think it turned...
Good Morning ladies, I want you to know you are all my heroes! We all have to give up so much for those we love and cancer is an evil opponent. It has taken its toll at my house. I mentioned a few...
Great news!!!...
Lisa, You might ask about adding carboplatin to the taxotere mix. Our medonc seemed to think because of the short time before becoming castate resistant, that he may have the brca gene. Our insurance...
Sue, I am so sorry to see this news! My heart and prayers are going out to both you and Dave. Stay strong! Barb...
Wow smo1, I had never heard of a reaction like that in anyone else. Although, the doc said it wasn't completely uncommon. He has only been on the Zytiga about 3 weeks and his blood levels this week...
Hey Beth, The side effects he had from the chemo cocktail included nose bleeds that wouldn't stop and he had huge chemo burns on his hands. It was as if the chemo was burning him from the inside out....
We saw the doc today and he agreed it is depression and needed some meds. John seems to see depression as a sign of weakness and that it couldn't possibly describe him. I got the meds filled, but I...
Thank you everyone for responding, it really means a lot to me. I think the hardest thing for me to hear was that he has no feelings for our kids. It really scared me! I actually asked him if he...
Thank you Susan! I emailed his doc this morning with what has been going on, so that is why we are actually going tomorrow. John did not fight me on this appointment, so I think somewhere down deep...
How do you ladies deal with the depression that many of these drugs our husbands are on cause? My husband is in a very bad place right now. He told me this weekend that he feels like a shell of a...
Good morning! I don't post on here often, but I do stop by regularly to keep up with everyone. I so appreciate everyone and the support found on this board. There are days when I just want to curl up...
For those of you on Zytiga, do you take prednisone once or twice a day? The Zytiga website shows 5mg twice a day, but our doc prescribed 10mg once a day. Not sure if it makes a difference or not, but...
They are treating it as if it is a neuroendocrine form since it is so aggressive. The doc felt like Taxotere by itself would not do the job. Thankfully the alk phos is down in the normal range. He...
For those of you who have done chemo, what was your experience with your PSA dropping? Was it dramatic and fairly quick, or was it more of a steady decline? My husband started weekly infusions of...
Chask- I am glad to hear your daughter does not have any bone mets. (Keep looking at the positive!) I am the same age as your daughter and so I know how difficult telling the kids will be, but kids...
Thank you everyone for the replies. I do appreciate them. Jesse decided he did not want to die in the hospital, so he is now home with hospice care. They are praying for a peaceful passing. Chask- I...
When my 45 year old husband was diagnosed last March with Stage 4 pc, of course we went through all the emotions that everyone on this board has gone through. However, we then decided to look out for...
You must have seen the same doc at Emory that we did :) John tried it for a while, but it didn't seem to do anything for him. Hope all is well with you and Paul! Take Care, Barb...
My husband's PSA was 1200 at diagnosis and very healthy as well. Sorry that you have to be here, but I am sure you will find a great deal of useful information....
Thank you Cyclone, I do appreciate the encouragement. My hubby is doing weekly treatments for 3 weeks and then a week off, so we are at the infusion center 3 weeks out of 4 and it is definitely...
He is doing pretty good actually. There was a rough patch after the 2nd treatment with a bad bout of diarrhea. So we did not do the 3rd weeks treatment and it took about a week to clear up. They have...
Hey Lisa, I have been thinking about you guys. How is Frank doing with the treatment? Hopefully he is tolerating it well. This bill was from Dec 9. I guess since it goes through the hospital, it...
My husband started a Taxotere/Carboplatin mix in December. Just received the first statement from the hospital and I think they may now need to cover my heart attack! The charges were over $45,000!!!...
Great news, so glad to hear it! Merry Christmas! Barb...
My husband was diagnosed this spring at age 45 with a PSA of 1200. He reached a low of 5 before it started shooting up again. Best of luck in this journey. Barb...
Lisa, Watch out for when the steroids wear off, he will crash! Usually about day 3. Merry Christmas to you both as well. Barb...
Glad to hear all went well. John just had surgery this morning to have a port installed. Still waiting for him to wake up. Hopefully it will make the weekly treatments easier....
Good Grief! Sorry it is so stressful. Hang in there!...
Hey Lisa Just checking in to see how things went today. Hope it went as planned! Barb...
HI Lisa, Good luck to Frank tomorrow! We just finished John's 2nd treatment today and thankfully it was pretty uneventful. As for Zytiga, I believe because John has some visceral mets, it wasn't a...
Thanks Cyclone! I had seen that info before, but forgot about it. Will definitely ask next week. Take Care, Barb...
Any advice on how to prevent neuropathy while on chemo? My husband just started Taxotere and Carboplatin this week and is already having some weird feelings in his fingers and toes. He is already on...
Hi Lisa, It sure looks like our hubbies are continuing on the same path. John's PSA only reached a low of 5 before it started rising in August. We ended up switching oncologist and he suggested...
winmui, My husband was diagnosed in March with a PSA of 1200 and alk phos over 800. Lupron and Casodex brought the psa down to 5, but it started rising again in September and is now up over 19. He...
Thanks everyone for the advice and info. The doc said in cases like my husband, young men with aggressive cancers, taxotere doesn't typically work well enough by itself. He prefers to add both...
Hi Barb, We were just told today my husband needs the taxotere/carboplatin combo. How were the side effects for your hubby? My hubby is pretty stressed out over the whole thing and I haven't seen...
Hmm, the newly update part of my signature did not show up: Oct PSA 6.6 Oct 24 PSA 9 Nov 7 PSA 16.9...
Has anyone used a combination of both taxotere and carboplatin together? ADT has only worked about 4 months for my husband and is now rapidly doubling. We spoke to a new oncologist who feels that we...
Such great news!!! Glad things are finally turning around for you guys. Barb...
When dealing with cancer that has metastasized, is there much difference between a pet scan and ct scan or bone scan? I have had several friends say we should be getting pet scans, but our oncologist...
Thanks! The doc wasn't too concerned at this point. They have switched from Quest to LabCorp, so he is thinking the change may partly be due to that. He will retest in another 3 weeks and go from...
Oh no!!...
He is on the 3 month Lupron and also added Xgeva in about 2 months ago....