After you're finished with the ad hominem attacks, I hope you turn your attention to the suggestions I made for improvement of this forum....
I hope to see many of you on the prostate cancer forum that I am moving to: Because of the new moderator, Pratoman, I no longer feel safe on Healingwell. He arbitrarily erases my posts - some of...
mattamx- It's not moderators (plural) it's one moderator, who has incidentally just taken it upon himself to lock a thread that was critical of his actions. Moderators singly have too much power on...
JNF- On that site, you can click "follow post" to follow a thread (similar to subscribing to a thread on this site) and you can follow a poster by clicking on his name and then clicking "+ follow." I...
Andrew- That's because he didn't delete your posts....
I hope to see many of you on the prostate cancer forum that I am moving to: (url removed - 142) Because of the new moderator, Pratoman, I no longer feel safe on Healingwell. He arbitrarily erases my...
Andrew, I disagree. The forum has changed with the addition of Pratoman as moderator....
There is no such thing with modern linacs. The 6 MV X-rays penetrate deeply into the pelvis and leaves negligible dose at the surface. Skin burns only occur when tumors are close to the skin, as with...
Also- the internet term for taking a thread away from the OPs intension is called "kidnapping a thread." you may like it, but it is widely considered to be bad manners. If you have another topic to...
Mel- Your post is a perfect example of a meta-post -- exactly the kind of thing I think should be outlawed. Your post is unnecessarily argumentative. If you had a problem with it, you should send me...
Compiler- Read what I wrote - it was about meta-posts, and there is no better exemplar. Not testing the mods - just explaining what I mean by a meta-post....
Yes! I very much agree. I call them "meta-posts" -posts not about the topic raised in the original post, but about other's posts instead. This is different from agreeing or disagreeing with sides of...
Thanks for all of your good thoughts and good wishes. I haven't given up on this site completely, but there would have to be changes. I thought I would give myself through Rosh Hashanah to cool down....
It sounds like docetaxel is an appropriate next step. In trials, it added 1 1/2 years to survival of men newly diagnosed with multiple metastases....
Emmylu - I think that is wise of you to not make assumptions. Bone scans pick up arthritis and old injuries. All you can do is wait until after you've seen the radiologist's reports. That will tell...
garyi- Thanks. I'm still available on the other forum. I agree with Mark. Any value this thread might have had has been ruined. Mods - please lock it....
Good memory! But what it found was that the contribution was minuscule. PSA concentrations were <0.01 ng/mL in 42 out of the 44 (95.4%) of the cystoprostatectomy specimens, with a median...
Many of the newer PET indicators are mostly (but not entirely) specific to prostate cancer. That includes Axumin, C-11 Choline, C-11 Acetate, and the PSMA-based ones. NaF(18) is only useful in...
The other sources are much smaller than you imagine. Breast tissue can contribute some. They would only contribute to the third decimal place, adding only a few thousandths of a ng/ml to your uPSA....
Doug- If you had IMPT to the prostate 2 years ago at Scripps and you are in "full remission" (which I assume means low PSA), why are you looking for new diagnostics/therapies? Most DNA tests use...
Stan- As I said before, you have to eliminate alcohol, caffeine and fruit juices for a while. That means you cannot drink 2 beers. At all. You should be restricting fluid intake - drink (slowly) only...
apologies to Farz for kidnapping your thread 142- Why are you getting Prolia, rather than Xgeva, when you have a known spine met? Are you trying to keep the dose low? Celebrex, when added to Zometa...
kit49- All I ever wanted was for you and your husband to have the discussion. What you decide is up to you - all I can do is provide some input for the discussion. The way you wrote that post, you...
You've had two mpMRIs (the last one 2 years ago) already - I assume both of those were negative (Pirads 1 & 2) and gave no guidance as to where to take cores from. The biopsies were negative as well....
Here's a nomogram that gives the probability that SRT will work. I doubt that many men in their database had your specific high risk characteristics, so take it with a grain of salt. "Survival" is...
142- Have you discussed the Guardant 360 test with your oncologist? They are calling it "the liquid biopsy" because it a blood test. Unlike tests of circulating tumor cells that only look for whole...
RandyJoe- Yes, I didn't mean to denigrate the objectives of wives at all, only to point out that their objectives, while usually congruent, aren't always exactly the same. Who wouldn't want a fighter...
The role of cancer stem cells in prostate cancer is still investigational. They have not been found to be part of all prostate tumors; at least, if they are there they are small and not very...
Normal 59- That is exactly right. The part that was edited out explained why I was raising these issues. They bear on how we peers give what we consider to be support. I will repost if the site...
Pratoman, "I’ll try to let you know before I delete anything in your posts, which I don’t make a habit of doing lol." Yet - just a few hours later, that is exactly what you did. I sent you an email....
Here's some info: https://pcnrv.blogspot.com/2016/12/pet-scans-for-prostate-cancer.html ...
Unless you have really great insurance, I doubt they will authorize it. The FDA has not approved it yet. The Axumin scan, which is FDA approved and covered by Medicare, picked up mets in 38% of men...
Moderators should only interpret and adjudicate on the rules that are there - not make up rules of their own. If a moderator doesn't like something I've written, he should contact me and give me the...
PDA- I'm glad you commented because you are bringing up a subject near and dear to me. I think we have a lot of overlap. Earlier, I quoted Joan Didion in the White Album when I wrote "We tell...
Logo and F8- It does make a difference. Male spouses are much more understanding about reticence to dampen libido with ADT, as well as their understanding why ED from treatment vs active surveillance...
There's probably someone at OSHU that offers these therapies. Unfortunately no names come to mind. I know some good doctors in Swedish in Seattle or at UCSF if those are options....
SP- I received pre-authorization from one of the mods....
Your moderators, having reviewed the instant-replay tape and consulted among ourselves, have decided that our previous edit was incorrect for two reasons: First, by removing what the original poster...
The most recent FDA-approvals of new drugs have been Erleada (apalutamide) for non-metastatic CRPC and Xtandi for the same indication. Keytruda was approved for men with a rare genetic abnormalities...
I think one should look at the nomogram that accounts for physiological age before deciding to have treatment. The odds that even an aggressive cancer would kill him are small. So many elderly men...
All grades of prostate cancer are slow growing relative to many other kinds of cancer until they metastasize. But G6 is the slowest, and G10 is the fastest to reach metastatic breakout....
John T Here's the dictionary definition of "loser" - a person or thing that loses or has lost something, especially a game or contest. You can call day "night," but that doesn't make it so. When you...
ANB- I was commenting on hypofractionated IMRT used for primary therapy, not salvage - a different animal. There are clinical trials for hypofractionation and SBRT for salvage RT, but it is still...
You can stop the finasteride - the Firmagon/Lupron depletes your androgens MUCH more powerfully. They also shrink your prostate a LOT better. You can also stop doubling your PSA - all that matters is...
John T Metaphors can be powerful, as many narratives are. In fact, I am saying the opposite of what you contend. I am saying that people with illnesses ought not be judged as winners or losers. If I...
PDA- What does "fought it courageously" mean? What would it imply if he did not fight it courageously? When one has cancer, one can make a decision to treat or not treat (I'm not talking about active...
Pratoman- Even at 0.1, your chances of finding something is slim. Maybe some of the new experimental ligands that bind to other prostate cancer stuff will prove more accurate at lower PSA. Too late...
FWIW, I thought I'd add parts of edited sidebar conversations that I had with one or more of the mods.As I don't have their permission, I'll only present my side. Words are my business, and I know...
I hope you are taking "My advice is to meet with an RO to discuss option 1, and to meet with a medical oncologist to discuss options 2 and 3." It sounds like your MO is concerned about delaying the...
How long ago did he get his diagnosis? You may be rushing things. It may surprise you to learn that men with a small amount of GS 3+4 sometimes qualify for active surveillance. I'm not saying it's...