Frank's Radiation Oncologist administered the Xofigo....
FWIW, my husband developed osteonecrosis of the jaw after about 2.5 years on Zometa. His medical oncologist and his dentist had several conversations and it was decided that Frank had been on Zometa...
I would like to suggest "When Breath Becomes Air" by Paul Kalanithi. He was a Stanford neurosurgeon who died of lung cancer and wrote this memoir shortly before he died....
Allen, Frank thought the Etoposide was a walk in the park......
Well, my husband Frank did three cycles of BAT in Oct., Nov. and Dec. 2016. His oncologist followed the protocol of a trial that is being done at University of Washington, Seattle and the Seattle...
Having watched my husband undergo many different treatments for his cancer, I have found myself pondering the question "What would I do differently if it was me or would I keep pursuing each...
IMO, doctors that specialize in the tougher diseases come from a different place than, let's say, the family practitioner. While a family practitioner might have a long history with an individual, a...
Did you find the book worthwhile? Are you glad you read it? Do you think my comment that some topics were "a bit difficult" was accurate? In our society, we generally consider discussions of...
I would love to participate and I already have the book on my e-reader! redheadskier...
My husband's oncologist is now recommending that Frank start BAT, bipolar androgen therapy. The regimen would be intramuscular injections of 400 mgs of Testosterone cypionate on Day 1 combined with...
I would also like to add a huge Thank You to Tall Allen!! Allen, you are one of the rocks in my world... Lisa...
Is it possible to go to your local DMV and get a Washington State ID card? I think you could walk out with it same day... Lisa...
Smart a**....
Oh, Moon...just got back home after a quick visit with our son and I'm devastated and sick at heart to read that Don has passed. Your true soul mate and companion. I'm so sorry, my friend. Tears and...
Cathy, I'm so sorry to read this...but I'm glad he is no longer suffering such horrible pain. The pain, I think, is what my hubby is most afraid of. You fought long and hard with him, too. Be gentle...
Moonlit, I assume Don is back home today? having enjoyed his little batty break. My wish is that you got a chance to take a few deep breaths and center yourself while he was in hospital. I worry that...
Well, I hope the radiation dose gives Don some relief. And, palliative care can ACTUALLY get off their collective ***** and do their job for you both!! There has got to be some tricks of the trade...
Welcome, mrs. george and Cincy... Moon, How did the radiation to the neck lymph go? Lisa...
Moon, I can hear the sadness you feel coming through your post. I'm so sorry that you and Don are suffering. And Cathy and her hubby, too. I, in no way, think it is selfish to long to go on a...
Beth, As I've noticed you mention beer on several threads....I hope you cracked one! Logo, thanks. I most certainly enjoy your posts. Lisa...
Moonlit, The inhumanity of what you and Don experience with the medical system is mind-blowing. I hope you can find some quality care to resolve this paralysis. I didn't even know this was a...
Seals and Croft "Diamond Girl" and/or "Summer Breeze" Crosby, Stills, Nash and Young "Deja Vu" Jefferson Airplane "The Worst of Jefferson Airplane" Deja Vu all over again!!...
Those are some very impressive numbers!! Lisa...
I think there's been a mistake...exact same numbers are questionable. Glad you've done retest. Lisa...
Frank brought some very, very lightweight sun blocking pants and t-shirts. He would unzip the pant legs for snorkeling, swimming etc. and zip them back on as soon as he was out of the water. The...
CLDCR, In February 2015, my husband and I traveled to Tahiti, Bora Bora, New Zealand and Australia after his #3 cycle of docetaxel. His PSA was responding to the chemo and there being no time like...
DeannaKay, I saw your other thread but I thought I would also post here so all the ladies will know that Dave passed on October 2nd. My heart is so heavy for you. Please take comfort that you were...
Congratulations!! Now I want to know what the old title was...lol...
Deanna, I'm so sad to read this...please take care of yourself now. Lisa...
Redwing, Why don't you put off this decision until after you stop ADT next spring? and then see how you are recovering? Your confidence in your driving skills etc. might just return along with the...
My husband went from 125 down to 111 after starting ADT. With considerable effort on both our parts, he is now 122. I was worried that docetaxel regime would cause even more weight loss but was able...
Woot!! Woot!! Frank and Lisa...
http://prostatecancerinfolink.net/2014/11/18/should-we-debulk-the-primary-tumor-in-some-men-with-metastatic-prostate-cancer/ Sorry it's not a working link but the info might be of interest to some of...
TeamChris, It sounds like you and your husband are starting with the right treatments for his diagnosis. Has he had a bone density test? It is recommended that men that are undergoing ADT also add a...
Deanna, I'm so sorry to read this...you must be exhausted. Hoping that the addition of hospice can lighten your load just a bit so you can focus on other aspects of your relationship with your...
I totally agree with the posters. Continue to write on this forum if you are so inclined. You are part of this brotherhood and our concern for you supersedes the type of cancer... What a curve ball...
Carol, So very sad to read of Steve's passing. I will pray for your strength as you requested. Oh, how unexpected, I'm sure you are in shock. Lots of love and tender thoughts are being sent your way...
Frank's PSA rose from 1.5 to 2.0 in 26 days...Xtandi is his next step. Lisa...
Deannakay, My Frank is with the Palliative Care program at our local Hospice. What I truly appreciate is the counselor that comes to the house to spend time with him every couple of weeks. I think he...
Frank would take all sorts of things to occupy himself with during chemotherapy. Then, he would nap the whole time! Have an easy SPA day...Lisa...
Sue, Words aren't enough for how sorry I am to read this about Dave. I think we all knew it was coming but were also praying for a miracle. I know he took a piece of your heart with him. Love and...
So sorry to read this Sue. My thoughts are with you and Dave. Lisa...
So, Frank's tooth broke off at the gum-line on Sunday night. He saw our dentist today and there are two ways to deal with it. An extraction of the tooth which would involve an oral surgeon or a root...
Frank also uses metoclopramide 5 mg twice daily, plus senna. Sometimes we bring out the Big gun by adding Miralax or Phillips Milk of Magnesia...but just very occasionally as he goes from constipated...
Echoing what the other ladies have said, how are you and your hubby doing? Were the doctors able to reduce the inflammation in his spine? Please let us know and join all the women over on...
OK, here is the recipe I've used for a smoothie that Frank actually will drink willingly because it tastes so good. Into a blender add 1 cup orange juice, 1 cup milk, 1 teaspoon vanilla, 1/2 cup...
Thanks Beth. Frank is spending the greater part of his days resting on the couch in our family room. He is awake about 4-5 hours/day. He says he likes listening to the sounds I make moving around the...
Moonlit, The nutritionist at the Cancer Care Center has told Frank that it is his "job" to eat and when I remind him of that, for some reason, it really helps him eat/drink the nutrition he needs....
Todd and family, Your mom would be most welcome on caregiver's corner...I hope she introduces herself soon. I'm sorry to read of your dad's cancer and can remember what it feels like when someone...
You are going to love Alaska....Frank and I spent 8 days there last summer and just returned from 12 day cruise last week. Fly-fishing for salmon, zip-lining, ATVing, river float and glaciers, eagles...