Djin, since I am not in a formal Active Surveillance program I do not have a specific protocol, max PSA or PSA progression. If there is a spike another MRI or biopsy would be in order. On my MRI's I...
Jim, I'll try to answer all your questions. I never had Dr. Epstein read the original biopsy results. I did have it sent to Robert Wood Johnson cancer center in NJ which agreed it was a G6. My last...
Djin, I do not have a max psa value that would lead to treatment. A sudden increase in psa would promp me to have another biopsy or MRI. I had one core G6 in 2012, my immediate reaction was...
Just hit the 8 year mark on Active Surveillance. It has been a mentally changed ride. You can see my signature for my statistics....
My psa has been rising for 7 years now, have had 3 negative mri’s and 4 negative biopsies. Go figure. Check out my signature....
ASAdvocate, My prostate is fairly small at about 30 cc. I have been above the .15 value for the last 6 years. It is very concerning. Everything is pointing to treat except my biopsy and MRI results....
Thank you everyone for your replies, a lot of good food for thought. I was seeing a great Dr. at MSKCC who did two MRI guided biopsy's in 2014 and 2016. He couldn't explain the high PSA but wasn't to...
Hard to believe it have been seven years from when I was first diagnosed with PCa. I have had a total of 5 biopsies with only one core of G6 found back in 2012. From my signature you can see my PSA...
Is anyone on an active surveillance program in New Jersey. I am looking for a new Urologist/oncologist. My current Dr. at Robert Wood Johnson won’t fight my insurance company for a MRI guided biopsy....
Anyone know of an Active Surveillance program in New Jersey? Can no longer go to MSKCC in NYC due to a change in insurance and they do not have one in NJ....
Thank you to all who responded. I have a questions for Ezhoe, from your signature can you explain why you started HT before surgery or radiation?...
I have been on Active Surveillance for 6 years. My recent PSI was 11 and my new Dr. prescribed a MRI guided biopsy. My insurance company denied the MRI since I was already diagnosed with PCa. Do I...
I am going for a prostate MRI in a few weeks and when I made an appointment they told me to have an enema the morning of. I had a few MRI's in the past, none required an enema. Has any had this...
Knocker, I have been on AS for over 6 years, diagnosed in 2012 at age 52 . Also being treated and MSKCC. A lot has changed over the last 6 years with science and the treatment of PC. 6 years ago AS...
Congratulations and to many years on AS....
Balingwine, and group, would one of the genetic tests be beneficial? Like Polaris?...
JayMot, thank you for your reply. Do you know if any of the 3 sites have a Prostate Cancer (Urology) group?...
I have to change my insurance plan and I cannot go out of state any more. I have been going to Memorial Sloan Kettering in NYC and have been in there AS program. Can anyone recommend a facility in NJ...
Hope4, I had two MRI's at MSKCC on 2/14 and 8/16. The last was scheduled because the rise in PSA and the Dr. wanted to do a MRI guided biopsy. No cancer was found from the biopsy. since then PSA...
Hope4, being an AS patient at MSKCC for over 5 years I thought I would chime in. It seems MSKCC is very Pro AS. They say they have over 600 AS patients. There AS program consists of PSA every 6 mo....
Congradulations...
I agree with hrpufnstuf, Tall Allen and ASAdvocate....
Glad you didn't rush into anything. Do your research and feel comfortable with your treatment decision. When I was diagnosed my Dr. suggested surgery or radiation. That was 5 years ago, Still on AS....
Cannot say it any better then Woody "Positive thoughts and prayers coming your way."...
Thank you for all the comments and things to think about. I have a Dr. appointment on Friday for by biannually PSA and DRE. Based on my PSA velocity I am anticipating my PSA will be over 10. I will...
TA to answer you questions, How big is your prostate? 30 cc Any evidence of chronic or acute inflammation mentioned in your biopsy reports? No Any evidence of urinary retention? No I look into the...
I will be on AS for five years at the end of the month. Had one core positive, Gleason 6 on my first biopsy in 2012. From my signature you can see the results of my next three biopsies that were all...
CaliJR, if both biopsies missed the lesions and the lesions were farther than the needles can penetrate, how did they determine you had PC? Was there a third biopsy you didn't mention?...
Compiler, I think you are correct. I have been on this site for over four years while on AS and have noticed there are very few on this site who are following AS. I would have thought the number of...
That's great news. Always nice to hear good news from old familiar club members....
Fairwind, Quoting my Dr. at MSKCC " your prostate is small at 30 mm, you had four biopsy's , 48 samples, the last two biopsy's were MRI guided, I don't think it is the cancer that is causing the high...
Does anyone know if the Genetic test sample has to be from one of the cancerous cores taken from the biopsy or can it come from one of the none cancerous core samples? I had a biopsy in August and...
Robert, Sorry to see you here but this sight is very helpful. I have been on AS coming on five years in March. I am being seen by Dr. Behfar Ehdia at Memorial Slaon Kettering. He is very pro AS. If...
Zzart, I am not sure if anyone mentioned but you can have the one positive core gene tested for aggressiveness. You can Google "Polaris prostate cancer gene test" for more information....
Joey, I have been on AS for 4 years now. Four years ago it was not recommended for someone who was only 52 years old. My Dr. is at Memorial Sloan Kettering. There AS program consists of a MRI every...
how may days should I expect to be out of work. I am in sales so I am either in my car or at a desk....
I know this is off topic for this forum but I thought I would take advantage of this mostly male audience. Any of you that have or had a hernia what advice can you give me. I need to decide if I want...
For 2-3 years before being diagnosed my Dr. told me I was vitamin D insufficient (22 ng/ml) and should take 2000 iu. I was curious if there is a correlation....
hrpufnstuf, with only one core positive on two biopsies did you consider Active Surveillance? I see your psa was high around 11, was this a slow, gradual increase?...
RickTrin, If you look at my signature our stats are very similar. My Dr. at Sloan Kettering doesn't put much weight on my rising PSA. Said it can be caused by multiple biopsies. He says since my...
I am just amazed at how much more Active Surveillance is now accepted then 3 1/2 years ago when I was diagnosed. Also over the last 3 1/2 years MPMRI's are more prevalent along with Genetic testing...
I would look into the MRI guided biopsy. It is a lot more accurate targeting an area that looks suspicious. I would also see with your Dr. if pushing the biopsy out 6 months would be OK to let your...
Buddy, What side effects do you have after about 2 1/2 years now....
That is great news Buddy!!...
Just want to thank everyone for your insightful perspectives....
I have been on Active Surveillance since Feb. 2012. See my signature for details. For the last year and a half under the care of Dr.Behfar Ehdaie at Memorial Sloan Kettering. Two weeks ago I had a 3T...
Homebrewer, I was 52 when diagnosed and have been on AS for about 3 1/2 years. I have been encouraged to stay on AS by my Oncologist at Memorial Sloan Kettering. As long as he is comfortable with it...
Tony, You might want to find a Urologist who would prescribe a 3T multi parameter MRI. From the MRI results they can then do a MRI guided biopsy only if warranted....
habhammer, Did you mention what your PSA history is? I was in the same position as you are in 2012. I started to do my research and before I new it 3 months went by, then 6 months then 12 months. I...
GeetarMan, With your stats I would think you have no or a insignificant amount of PC. You know what they say, 50% of 50 year olds have PCa and most of these men are walking around not being aware...