Outstanding!...
I did my three rounds of Provenge in July/August. Driving home? From the blood sucker appointments, no problem. From the infusion appointments, unless you have a reaction and they have to medicate...
That's great news!...
Ditto on what RobLee said. I, too, had May Surgery and June activation. I have no troubles standing or sitting. I just give it a couple of squeezes ("squish, squish, squish") and off it goes. At...
Thank you for sharing....
Malcolm, for my initial treatment, I went to Hampton Proton Therapy Institute where Dr. Sinesi was my RO. For my recurrence, The RO's I conferred with were Dr. Givens, Dr. Ansel at VCU and Dr. Robert...
Thanks, Allen. That is one of the options we considered after the first recurrence. We were concerned about too much radiation and those side effects. However, I was thinking like you and may need to...
I am 7 years into managing my PCa. Currently, I am post-Salvage Cryo that didn't get the results I had hoped for and the subsequent MRI revealed an Extraprostatic Lesion. Luckily, we've been able to...
Sky, I had Proton Therapy in 2011, then Rotator Cuffs in July and November 2014. Shortly thereafter, the PCa decided to become a part of my life again. The biggest impact the shoulders had was during...
Halbert, sorry about the losses of your Mom and job. 2016 sucked for me, too. I lost my Mom and there were numerous PC developments to deal with. Luckily, for me, 2017 has been better. Hopefully,...
Nice!...
I told you it would be worth the hassles! It will takes a few weeks for you and your bladder to become reacquainted. You'll find it will begin stretching and regaining lost capacity. Then, the time...
I am in a similar situation. I began Firmagon in June2016. Initially, the PSA and T went down, however, by February of this year the PSA was on the rise, but the T was 14. We added Xtandi that month...
That's great news! It takes a while to become reacquainted with your bladder after activation. Week one was a "get to know you" phase." But, it gets better. My bladder is stretching and I am able to...
I received a double dose of Firmagon for the first two months. One dose monthly thereafter. I've found the tenderness at the injection site subsides after a couple of days; the knot takes a couple of...
Sorry to hear about the complications. I began Firmagon in June 0f last year (2016). Then we added Xtandi in February. I began the Xtandi on the same day of the monthly Firmagon injection. This was a...
Ditto on what all of the other guys said!...
That sounds reasonable, "Cyclone". Originally, the plan was for two months of Firmagon, then switch to Lupron. That's when I learned about the initial T flare-up with Lupron. However, at the end of...
Thanks, tarhoosier and TA....
cspivak: Yep, my swag arrive 2 weeks prior to the first appointment. You're right, it had some good stuff in there. Especially, the blanket. The Red Cross folks keep the building very cold. I'd hate...
TA and Fairwind, thanks for the input. I'll run this by them. I was kinda thinking the same thing, since the Firmagon and Xtandi target blocking the Androgen Receptors. Versus, Lupron revving up the...
Hey there Xtandi Vets or knowledgeable members. I am reaching out to get Xtandi/Testosterone level experience. I'm seven years into the PC game; have been on Firmagon since 6/16 and added Xtandi back...
Snowcake, We're so sorry for your loss....
Gear: Thank you. RobLee: You are correct, the AUS went well, too, and I am loving it. You can't put a $ value on being able to stand and pee again. Fairwind: My primary is United Healthcare and my...
I am happy to inform you that week one was rather uneventful. Short Version I completed week one of the Provenge treatment this week. All went well with no side effects. Detailed Version I am on the...
That's great news! Celebrate....
That's a great update!...
Attaboy, shipmate!...
I tested via Color back in February. It turns out that "a pathogenic mutation was identified in the PMS2 gene." "Pathogenic mutations in the PMS2 gene cause Lynch syndrome. This is an inherited...
RobLee, I apologize for dropping the ball on the PM's. You're right. That's not a function here. I am heading out for the day. Lots of action items to knock off. Let me give this some thought. I'll...
GM, it was a busy week for me. Mostly positive news. I'll keep this brief. PROVENGE: I went to the Red Cross in Norfolk for a vein assessment. I have good veins, so, we're going to use the needles in...
So sorry to hear about all of the problems you've encountered. You have a lot of people pulling for you. Tony...
Hang in there, RobLee. You are due for good news. This disease will definitely grind on you. I've been dealing with the ups and downs since 2010. As you know, I'm fortunate enough to be riding one of...
Thanks for the comments, guys. I'm still smiling! One pad for the entire day. Not bad. I walked the dog, worked out at the gym, mowed the yard, cooked dinner and I'm still in the pad I started the...
Well, fellas, I can't stop smiling! :turn: A quick recap to bring you up to date. I had Salvage Cryo in October 2015. It was the entire gland type. The incontinence didn't immediately set in. But, by...
Thanks for the update. I had my AUS implanted on 5/5 and am scheduled to activate it next Tuesday, 6/20. I feel very blessed and fortunate because I've had no problems whatsoever. The stitches have...
Thanks, Curious George. It sounds like you had a tough time with the process. Thanks for sharing your experience with Provenge. Hopefully, mine will be less "eventful." Tony...
Thanks for this valuable feedback, gents. I will scratch this from my worry list. Since I am 200 miles from Duke, I will go to the nearby Red Cross for the 3-hour blood draw on Monday's, then drive...
Thanks, I don't look forward to 3 hours with needles in each arm. However, as I have learned, "it is what it is." Tony...
Attaboy, Beachbum! So Happy For You!...
I just got the word from Duke that my insurance providers approved the Provenge treatments. Hopefully, we'll get rolling in a couple of weeks. They have asked if I want to use a port/catheter. Any...
cvc, I wouldn't say it's crazy. Maybe ill-advised. I was 55 when my PC was discovered. My PSA at the time was .95. The biopsy was triggered because of a rough surface on the prostate during the...
the second time is a charm! hang in there Rob!...
Is this thread still active? If so, please add me to the club. We are shooting for a June/July 2017 date to begin PROVENGE. Thanks, Tony...
Hang in there, RobLee. I've got a feeling you are going to catch a break soon! Tony...
John, that's so good to hear! I hope you're celebrating this weekend. I'm a big fan of Xtandi, too. We're celebrating in Virginia Beach, too. I began Degarelix solo in June 2016 and added Xtandi 3...
That's great news! Best wishes for continued progress towards undetectable!!!...
That's great news! I'm not far behind you, my AUS surgery was 5/5 and all is going very smoothly. Last week, I was back in the gym on the treadmill for some serious 30 minute walks and I began light...
I'll be the contrarian. I say it is better to have a biopsy with negative findings than to have PCa and discover it too late. That's my thinking....