Don't give in to despair yet! DH had non nerve sparing surgery 1 year and 9 months ago. he used pump and eventually shots. he started getting usable erections with just a pill around 10 months after...
Thanks for the studies to read. I'll have dh read them too. I'll try to persuade him to meet with an MO. Elizabeth Plimack at fox case is only 15 min from our house, shoo hee may bee happy with that....
We met with the RO. He said it's still possible the psa could stay at this level and even drop lower. But in any case he doesn't want to do adt until DHs psa has a doubling time of less than a year,...
NO! don't move to Tibet. You're chances of recovery are good. Even those with poor chances never know. DH had non nerve sparing. And a year and a half later he is getting erections with a pill. A...
Thanks for all your input. TA, Are there any specific MO's you would recommend aside from Howard Scher? I'm not likely to persuade DH to go to NYC under any circumstances. Sophie...
We just got the results of my husband's latest psa test, 0.21. Last October's test, 3 months after SRT, was .16. We meet with his RO next week. We will retest in a couple weeks, but I'm wondering...
Hi ntzguy, your pathology is very similar to my husband's. My husband also had non nerve sparing. His Uro put him on low dose cialis for blood flow 6 weeks after surgery and said he would be on it...
This is so true! even choosing an excellent surgeon doesn't mean that they know much about the long term side effects. I think DH's surgeon did an excellent job with the surgery itself, because...
When I was hospitalized with a nasty infection from a dog bite, The doctor told me to be sure to take probiotics while and after I was on the antibiotics. They have many health benefits beyond...
Make sure you use a good surgeon. My husbands repair has bothered him since it healed.....his rp surgeon sounded really pissed off after rp surgery about how huge a patch was there. She said she...
RP is a major surgery! He could probably still rip the internal stitches that hold his urethra together. I've read 2 weeks for that to be mostly healed. It takes about 2 years to fully heal from this...
mattamix, for some reason I haven't received an email. can you send another?...
generic viagra can be reasonably priced. We're not allowed to mention websites on healing well, but if you would like to know where I've bought it for DH, send me an email. When you take Viagra, or...
We specifically asked dh's MO about venison. He said the concern is if the deer has been eating pesticide treated crops. If not, its fine....
cash, More asian cooking is a good idea. I have a sweet potato noodle dish that I'll try some variations on. I'll skip buffets, as he will only go for the least healthy foods. Dreamer, thanks for the...
Some good ideas to try Dreamer. They sound delicious. Thanks. Some of the problem is that I love salads, vegetables, beans, lentils. For years I don't eat much of the healthy foods I love because I'm...
Cashless, can you share what some of your easy go-to meals are? I think I'm a good cook, and I've cooked some yummy vegetarian meals, but very time I serve my husband he looks so sad as he picks up...
DH would probably rather be dead than have a photo taken of his member. Before RP and ensuing peyronies I thought I liked his extreme modesty. sigh........
From a wife... I've been post menopausal for some years now, and want sex as much or more than ever. In my case it was my husband who was willing to completely give up intercourse when his uro told...
DH lost about 2 inches over the 17 months since surgery. His surgeon insisted he wouldn't lose anything. She also never mentioned lymphedema, or peyronies, all of which DH got. He did do rehab with...
Hey JDill, My husband had both nerves taken along with part of his bladder. but after lots of rehab and sex, he has begun to have reliable erections with the help of a pill, and rehab pumping. I know...
good sex is good. I like to hear this news :) I wish you many more years of good sex....
Mwdav, It can take up to 2 years to start getting erections. Keep up the rehab with a pump to minimize size loss. It took my husband about a year to get erections with a pill, and he has extreme size...
my husband's surgical SEs 4 months to recover from the surgery itself. Mostly continent by 6 months. At a 14 months occasional drips but no pads. Takes 5 mg cialis daily for blood flow. He had non...
Hi Thomas, my husband reluctantly tried trimix, then bimix. It worked extremely well, and he enjoyed the sex, but he hated doing the injection. I've heard many positive comments here about trimix. It...
Redwing, this brought a big happy smile to my face! Hope things continue to look up in that department! Back to the other issue, For others thinking about an antidepressant, I'll put in another...
Fairwind, DH was dreading ADT as much and probably more than anyone could, and was so relieved when the RO said no need, that he didn't question it. A year ago when DH met with the UroOnc after his...
Andrew, thanks for the reassurance. I will have some wine, and try to put cancer out of my mind for the next 8 months! JNF, Our RO is part of a team at Fox Chase Cancer center including an MO and UO....
4 months after STR finished DH has a psa of .16. We're very happy about that! The radiologist says next psa test in 8 months and then yearly after that. With DH's extensive G9 disease I'm a little...
Hi kukujajoo! Good to hear from you. I hope you're health issues settle down. Good grief, you need a break....
If your prescription plan doesn't pay for it there are online pharmacies which are less expensive. Just ask here and I or others will be happy to email u where we get ours...
Yay!! that's wonderful news. Sophie...
Ha, I hate it when i almost fall in at night due to the seat being up. DH was always so good about keeping the seat down. I believe he was sitting usually. Certainly the bathroom stays too clean for...
DH was non nerve spared. He also had about an inch of bladder removed. We didn't expect him to ever get a natural erection again. But late this summer, 9 months post op, there were some signs of...
Hi sweetietea, I think surgery day is much harder on the wife! After all, the man is out of it. We get to stew and worry all day. It was one of the worst days of my life. The surgeon told me going in...
We just got the results from DH's first psa test after srt. Before srt 0.33. Today (3 months after finishing srt) 0.16! I'm very happy that it's gone down! All month I've been sick with anxiety about...
thanks teddydog. he has repeated refused to go to a doctor....
DH saw his uro who felt his flaccid penis and said she didn't know anything about peyronies, but that he doesn't have it and he doesn't need to go to a doctor for it. So he refuses to go to a doctor...
Sixpacks, So very sorry to hear about your wife. And now your diagnosis on top. My husband is g9 with most cores positive. Prostate cancer treatment has come a long way in the last couple years. We...
I think egg whites are okay. It is the yolk that's bad. We eat Bobs red mill scottish oatmeal with chopped walnuts and dates (all organic) usually. Whole grain toast with avocado. Occasionally some...
Aww I somehow just deleted a very long response before I sent it! And I'm a slow writer :( I'll try again tomorrow when I have a computer instead of just my phone...
81GYGY, thanks, this forum with all the wonderful giving members has kept me somewhat sane in a life turned upside down. As I explain below, it is my husbands privacy which holds me back (sometimes)...
I apologize for deleting my earlier post. I realized it was more than my dh would want me to say. I forget sometimes how public this forum is. Sophie...
Oh no, so sorry to hear this! I will be praying for a safe and successful surgery. Sophie...
Peanut, Welcome, and sorry you need to be here. I don't know whether my husband made the right decision about his treatment. I wish he'd gotten another opinion because the SE's of surgery have so...
DH uses a VED so I hope that helps. I don't have much confidence in his UO. If she says it's not peyronies DH won't go to another doctor until it gets much worse. Maybe it's not and he will...
Bluebird you are right. Dr Mulhall will see him as a patient but it will be a long time before he can see him. A patient with a peyronies diagnosis is seen much sooner. I plan to call and make an...
Thanks Gedman, I've tried to make appointment with Dr Mulhall, but he won't take DH without a diagnosis by another doctor. Getting a diagnosis is going to be difficult if we can't get into see a...
Hi Grant, Welcome, and sorry you need to be here. My husband was diagnosed with G9 prostate cancer 10 months ago, RP then radiation. Complete ED. I've suffered from severe depression and anxiety for...
Does anyone know of a top notch peyronies doc near Philadelphia? I know Dr. Mulhall at Sloan Kettering is one of the best. I not sure that I can get DH to go to NYC. Thanks for any advice. Sophie...