I've had hypothyroidism since 2005. It's been regulated for many years. TSH is very low, almost classified as hyperthyroidism, but I function best that way. I work out 3-4 times a week. 3 sessions...
He's not in hospice, he wanted to go home, so my mum is taking care of him. Also, some nurses come twice a day to help him get on/off his compression stockings...
All I can say, again, is that I'm sorry. It is correct that PSA has a "connection to the development of the disease," although it is meaningless to compare absolute values of PSA for various...
Thanks, but on the other answers here psa still seems to have a connection to the development of the disease? I don't know what's correct here but his history is quite unusual. A normal person would...
Last time he took CT and MRI and they showed no further progression. Yes, he has lost lots of weight the last years. He's not in pain because of some pain killers....
I'm sorry, I meant that when the PSA passed 1500-2000 they were not sure they could use it to measure the development of the disease anymore because the values indicated a big development while the...
His psa was 2570 in january and 4100 in the beginning of may. His psa has never been an indicator of his physical condition. CT and scans have always shown no progression while his psa has been very...
Actually I don't want to know, I Just hope that he will live for a while. That's why I wanted to hear other stories. Where's the link to the statistics you refer to?...
My dad has had pc with mets since 2005. He's tried everything and was supposed to have a break from Jevtana until august. But his condition is poor. He has pleural effusion and struggle with his...
What other reasons can cause memory loss? His scans show no mets to other parts of the body than the spine...
My father use Jevtana. He's on his 6th treatment round. He's had prostate cancer with mets to the back since 2005 and have had several rounds with taxotere earlier. After he started Jevtana he...
Thanks. I guess you meant that PSA is "not so much an reliable indicator" , not "unreliable"?...
Is ALP a more correct marker in metastatic prostate cancer than PSA? What is ALP used for? My dad has a very high PSA at 3900, but the ALP value has decreased from 167 to 119 after 3-4 cycles with...
76. He had had both Zytiga and Xtandi. I looked at his chemo history now (back to 2005) and every time he had started chemo his PSA has increased before it has started decreasing again after about 2...
My dad started Jevtana chemo 3 weeks ago. He has only had 1 treatment yet. His PSA has increased from 1900 to 2100. Before that His PSA increased 800 in 3-4 weeks. I guess this is an improvement?...
My dad has had PC since 2005. I think it got HRPC around 2010. He has tried docetaxel several times, Zytiga, Xofigo, Xtandi etc. His PSA has now risen from 374 in april to 1900 now. He has'nt any...
My dad has had 4 rounds with Taxotere over the last 11 years. He has had several side effects, mostly low appetite and weight loss. But this time he has had almost none side effects. The appetite is...
Look at this interesting link, true story http://www.yananow.org/display_story.php?id=1348...
When you participate in a trial, do you have to get treated at the same hospital, or can you get the infusions /take the blood tests etc at a different hospital closer to where you live?...
Thanks. It's a bit far away, and you never know if you'll get chemo or zytiga. I'll mention it for my dad though so he can mention it to his doctor....
unfortunately they've closed the trial for now. I think they're supposed to go for Taxotere again, since his results have been good earlier. I have no idea if he can have both xtandi and Zytiga...
Thank you. I forgot to tell that we live in Norway, and everything is financed through the public health system, he has the right to choose hospital, but not a particular doctor, I guess. He's also...
And by the way, he's had chemo 3 times, 1 time in 2005, 2011 and 2014, also before zytiga, xtandi and xofigo...
Only taxotere. The hospital doesn't offer cabazitaxel here, only in clinical trials. He took mri 1 month ago. He has bone metastases to the spine and back only. PSA is now 515 (315 one month ago)....
My dad has tried chemo, zytiga, xtandi and xofigo with very good results, but the PSA has started rising after the last xofigo treatment, so he's probably back on chemo soon. Does anyone have...
OK, I'll check it out But one more question. My dads first treatment is on thursday next week, and the next one excactly 4 weeks after. My parents are celebrating their 70th and 75th birthday in...
Noone?...
My dad is starting on Xofigo now. 6 injections over 6 months right? We heard that we can't trust the PSA during treatment, but does that mean that they have no idea whether it's working or not? And...
My dad has been on chemo, Zytiga and Xtandi earlier and is now about to try Xofigo. Anyone with experience from that treatment? How long can it keep the PSA in check/extend life? I guess it will...
My dad started Xtandi 1st of february. His PSA went down immediately from 100 to 60 and further down to 50 and has been stable since that. I was wondering if anyone else has good experience with...
My dad started coughing in desember 2014, and was in and out of the doctor's office several times. He took x-ray, CT etc. but they didn't find anything unusual. After a while he got more and more...
Is it possible that the side effects decreases with time? I read an article about tolerance to medicine, and that the body can get used to the medicine with time and that the side effects also...
So you're still on xtandi? It seems from your signature that you've been on xtandi again since october with great luck?...
Thanks. My dad has had good effect of hormone therapy earlier. His orchiectomi kept the cancer in check for 6 years, and Zytiga for 16 months. Would it be an option to start Zytiga again instead? He...
My dad started Xtandi 1 month ago, and he's struggling with extreme fatigue and loss of appetite. He also has some pain in his arm that came along with Xtandi. Is there anything we can do at all? I...
Often The endpoint in a trial is OS. Let's say OS is 7 months. Does it mean that the persons attending in the trial don't move to a different treatment when it fails? What if they move over to a new...
My dad had great response on Zytiga, he was on it for 16 months. Then he probably doesn't have the AR-V7 variant right?...
Can Zytiga work several times? I also know that Xtandi can work after Zytiga, but why is it that the doctors wanna wait as long as possible after Zytiga treatment before they start xtandi because of...
Now he uses only prednisolone and Taxotere, but I think he's starting Zometa soon...
My dad's going through chemo every week now. He started in the end of april and will keep going until the end of july. He is really exhausted and is sleeping all the time. Food doesn't taste anything...
How fast is ut normal to see a decrease in PSA when you're on chemo? Isn't it normal with PSA increase in the beginning? my dad measured his PSA after 1 treatment and it had increased a little bit....
Which is the best of Zometa and Xgeva? Is it higher chance to develop liver metastases when you're on Xgeva? (I just read about a man who used Xgeva and he got low calsium, phosphate and magnesium...
Is it possible to get no response from xtandi and good response from zytiga, or the opposite?...
Thanks :) I was just wondering, but I'm not that worried, because my dad has been lucky all the way. He has responded well to all therapies. If he had followed the prognosis he should have been dead...
I'm looking at this trial: http://prostatecancerinfolink.net/2012/07/17/does-abiraterone-acetate-resistance-induce-cross-resistance-to-docetaxel-based-chemotherapy/ When they speak of PFS at 4.6...
I'm a bit confused about the definition of hrpca. I though that hrpca means that the cancer grows despite blockade of androgens? (low testosterone levels). But why do they say that the cancer is...
Hm ok :( I was sure I read an article about a man who switched between different antiandrogens, maybe I misunderstood. But what about trying a different steroid like dexamethasone or hydrocortisone?...
Ok I have tried to update his history in the signature as good as I remember. He has also had zometa....
Oh, I'm sorry :( But what about other antiandrogens than Casodex? Can he try that? There are several available in Norway (Bicalutamide, Flutamide) I don't think Ketokonazole is available here, only...
I'm sorry , I forgot to say that he had an orchiectomy in 2005. After that, he has only tried Casodex. Still any point in taking Lupron, Zoladex, Ketoconazole etc?...