Thanks for the reply Tall - I really just can't believe that it came this fast. The weekend of July 16 I had a normal erection with Levitra. I was thinking I should get my testosterone checked. They...
I have not posted here for a while. About 7 months ago I completed salvage RT 3.5 years after RP for Gleason 3+4 BCR. Had no side effects during XRT except minimal rectal sx. After RP I was able to...
Unfortunately I suffered BCR 3 years after RP. I was a G7 (3+4) with "neg margins" . I waited until .2 as I had some rises and falls of the PSA that were somewhat atypical. Regardless I have only 5...
Honestly, you have nothing because you essentially had nothing. Your small PSA must have a non-malignant reason likely benign tissue. I have a 0.05 PSA 29months after prostatecomy and it is...
Way to go! great results....
Active surveillance. Don't panic. You have minimal disease. I had a prostatectomy and I am continent and have reasonable sexual function with 20 mg Levitra. My PSA is <.1. I am considered a success...
I was also a 3+4 G7 and my PSA went up at 21 months to .08. I was very worried but my subsequent PSA values were .07 and now .05. I think it may be prostate tissue left. "Worried Guy" has often...
Ged, this is the time that I started seeing big changes - about 16 months. At 14 months I saw my surgeon and was complaining about ED and his physician assistant told me not to expect much after one...
I say get an ultra sensitive now and then follow with ultra sensitive at same lab going forward. I had a G3+4 with low volume and negative margins/prostate contained. I thought I was home free. At 21...
I think that omega-3 use is questionable. I don't take it. I think your surgeon is concerned because you were a g9. The psa does seem quite low however. Watch it very carefully....
Great post BigAL. I just freaked when I heard cancer - I was only 52. My urologist told me surgery was the only real choice due to age. I had a friend who had RRP and he talked me into it as well....
Agree - the lymph node changes the interpretation of any increase. Kind of a strange finding - I wonder if there is a way to get a second pathologist to look at that lymph node since that is going to...
Blue bird - I think that your husband is doing well. He has very similar stats to me. I think that .03 is very low and in general I think that some psa starts to come back from retained prostate...
Luther, hang in there. I think a lot of us have psa levels that are below.1. worried guy has posted that the Sieman's test runs high. Maybe you should check and see which psa test you are getting....
I just received a reassuring PSA value which I reported in another discussion. I was convinced that I was having a BCR earlier this year and now feel somewhat reassured. I have worried about BCR...
Just got my new PSA and it was down at .05. I was so relieved. I was depressed when my PSA shot up 21 months out from RRP to .08 as I had good path and contained disease. I was very concerned about...
HD - interesting approach. I am in a similar situation but with neg margins. I had RP 4/12 and all was well until Jan 2014 when my PSA hit .1 on standard test. I immediately repeated it with...
I used Cialis pre-op and daily post op for about 18 months. This was to increase flow but did not lead to an erection for the most part. At 18 months as I recovered I went to on-demand ED drugs and I...
I am two and one half years out and can get 95% erection with Levitra. You, at your age will likely recover completely but it is not assured. I was very despondent over the ED which was severe for...
David - your experience with RP was very good and I am glad for that. However, being sexually fit one month after surgery is unusual. I have recovered more than two years later to the point where I...
I must say that you have very minimal disease by history. This is no solace for you I am sure, but I think that your stats are the "best" that I have seen to eventually have a BCR. I still think that...
Carpe - Still surprised at your situation. G6 with low PSA and neg margins/organ contained and now .2 psa in 2.5 years. Were your doctors surprised? I asked you what your tumor volume was and you...
Agree. I would get another PSA as well....
I would likely get the more sensitive PSA and get a sense of the true value. If you are less than .2 (?standard test rounds up) I would wait and get second opinion. You have a verified G6 which is...
your situation is weird. You have benign prostate at margin which means the surgeon cut through the prostate. You would seem to clearly have retained prostate. Your data suggests you should not have...
Carpe - what was your stage. Did you have extraprostatic extension. If you have EPE , even with negative margins my understanding is that the increase will be taken more seriously. I am in a similar...
This is an old message but I want to revive it and pay it some due. I had RRP 4/12 and just passed the two year mark. I was Gleason 7 (3+4) Stage T2c (organ confined). My volume was 10% and my pre-op...
It really matters if you had positive margins/ EPE/etc. Also pre-op PSA and tumor volume are important to determine the significance of your numbers....
At two years I am 100% with Levitra 20mg. I had almost nothing for 15 months. It may well two years. I was your age so you can expect eventual good results. It is very frustrating and I questioned my...
I was very impatient with erections just like you. At fifteen months I was taking nightly Ciailis 5mg and I began noticing semi-erections in the morning. At two years now I am 100% with Levitra 20mg....
Tough question. I am twenty months out and am in the zero club. I am continent but I must admit that I just don't feel like I did prior to surgery. I often have vague urgency and am always conscious...
I will echo what has been said. I am 19 months out and getting a fair erection (good enough for intercourse) with Levitra 20mg. I had essentially nothing except fullness for about a year. At 14...
I do still take it and I think it helps. It costs $130 a month - if it doesn't help I don't think that it hurts - it is indicated for ED in patients who have not had RRP. Also - I think its worth...
Bluebird - when you describe your husband you are describing me. At one year I had nighttime fullness and I could stimulate something and thats it. At fourteen months I saw my urologist and voiced...
I do this and have generally started peeing sitting down unless I have only a urinal available. The milking is just reassurance against any annoying mini-leak. HCV...
thanks Purg. I was less than .1 at 15 months. I did the ultrasensitive at 9 months and it was <.01 but I could not take the psychological pressure of repeated ultrasensitive tests. I figure I want...
I had RRP in Philadelphia 4/24/12 for G7(3+4). PSA was 3.5 and all margins negative. I felt good about my results and controlled the incontinence 4-5 months out. My main issue of concern was ED. I...
Thanks for your response guys. Seem like a lot of people read my post but little feedback. I realize its not what people want to hear but its real and important. I proceeded with my surgery due to...
I have not posted for a while. I wanted to post an update as I always found it interesting when I was just out of surgery to hear what I had to look forward to down the road. I apologize in advance...
I had the same issue and my urologist also made it sound like it was rare. It got worse as the day went along and would relieve when I laid down. I think at one point he called it suture line...
I will throw in my two cents. I had stats similar to you and came out with negative margins. Continence was nea complete for me at 4-5 months and it still gets better daily. I know almost feel...
I was a G6 going in and a G3+4 out. Only 10% with all margins neg. I consider this pretty minimal disease, but a year later I am impotent at age 53. I feel that this is overtreatment and knowing how...
It's OK to second guess. This is a one shot deal and you want to make sure you make the best choice. I never considered anything except surgery and one year out I am not happy with my results...
I wish I had taken the time to consider all alternatives to treatment. I was so shocked with the cancer diagnosis I wanted surgery ASAP. After a year of impotence I am convinced that RRP is not a...
BillinChicago I tried Cialis 10mg on Friday and 10mg on Saturday last weekend. Saturday night I got a significant partial erection but not for penetration. It made my whole week. Keep it up - I am...
I agree with golfnooch and other posters above. I find it very hard to accept a permanent ED problem for elective surgery for early G6 disease. I don't know if any treatment is better but I often...
DavidG - I am taking Cialis 5mg eight night. I thought that I might be able to get by on pills but last Saturday I tried Levitra 20mg in the evening and I had little results. Its so frustrating that...
Bill - I am glad to here of your zero! My surgery was at the same time as yours and I have often followed your posts. Like you I am continent (at about 4 months). I still feel "funny" at times and...
Margins are not seen at biopsy so "spread" cannot be noted. Margins are examined when the whole prostate is removed. So you would never really have positive margins on biopsy. Your extension is very...
I'd be happy with only one year. In two weeks I am one year out. I am continent with undectable PSA but ED is still a major problem,. I did not believe I would be in this position. I am gettin some...