I had a consult with Dr. Menon last week. If I choose surgery, he's probably going to be my choice. He's currently recruiting patients for an FDA HIFU trial. Some pretty restrictive requirements to...
Had my consult with the urologist today. He is comfortable delaying treatment for a while and going on AS. 6 mo. PSAs, 12 mo. Bx. I updated my signature. Much thinking to do and discussions with dear...
JNF, I thought any RT made salvage surgery much more difficult. Not that I think it will be necessary, just thinking 2 steps ahead for planning options. Also, I think the RT secondary cancer risk is...
JackH, why do you conclude very low risk if the mpMRI indicates PI-RADS 4, and one path report indicates G(3+4)? What makes you discount those?...
Time for an update. Here's my situation: I'm 47 April 2015 PSA 2.22 (first one, ok, a little high, check again next year) August 2016 PSA 4.56 (this is the alarm bell that set everything in motion)...
HitchHiker, How are things going for you, coming up on your 1 yr. anniversary? HDR BT is probably my top choice at the moment, I hope to have a plan by the end of this month. It may be AS, but if...
Boon1 - very good point, and something I have thought about. The assumption is that JHU and Bostwick read PCa, and only PCa, and so their readings should be weighted higher than a lab that reads all...
I just got the second opinion on the pathology slides from Johns Hopkins U. Still one core of 12 PCa, BUT changed from G7 (3+4) 20% to G6 (3+3) 10% of core. So, it looks a lot more favorable for AS....
TA, Thanks again for all the time and info you put into this forum, it is greatly appreciated! Martinez did order the mpMRI, I'll have to get clarification at my appointment next week as to why he...
Wolfster - I sent you a friend request on inspire.com Tall Allen - thanks for the input. I'm finding that conflicting information is the norm rather than the exception with regard to PCa. I've been...
Good guess Chris...
Good point - added to plan....
Jim (Tudpock18), Your story is inspiring. I saw an RO yesterday who specializes in seed implants, and he also recommended that I get the mpMRI for planning purposes, whether it be surgery or BT. I...
Hey Rob72. I admire your conviction and clarity in selecting your treatment! I wish I had that ability to pick a treatment option and go for it. I hope to decide by early January. I'll be thinking of...
I've been told by 2 RO's that a 3Tesla multi-parametric MRI can detect lesions that are G7 or higher. They can then use that to do a targeted Bx. I am scheduled for that MRI in January. The RO says...
Hi Rob72. I've found this site to be very helpful! I have a slightly different diagnosis but am also in my 40's. Pretty disturbing news for me. How did you decide on surgery over RT? I am in the...
Ditto that. Similar progression for me. Alarming the first time, for sure, but totally normal....
Forgot to include step 0. - send slides to Epstein at JHU for confirmation/second opinion. Just edited my post. RT is in my list of possible solutions. At this point, nothing has been ruled out....
Anyone out there have experience with Dr. Jeff O'Connor at St. Johns Providence in Novi, MI? Was recommended for RALP. Says he does 8 a week....
Hi guys. Here's my current thought on my action plan. Can you set me straight where I have gone wrong, or add to it? Thanks again, this site has really helped me think through this! Since I am...
Wolfster, I am VERY interested in learning more about FLA. I thought it was still experimental. Hoping this might be an option for me. Encouraging, but not getting my hopes up just yet. Hoping...
Paxton, my take on the side effects is that RT has the short term and unknown long term risk of tissue damage or secondary cancer. Rectal damage, rectal cancer being the big ones, urinary tract...
oops, I missed that I have to check the box to add my signature. Let's try this again:...
Well, here we go. I'm a new member of the club. I've been obsessively pouring over the Forum, and figure I might as well get started on posting. So far, reading the forum has been a wealth of...