Bird8 thank you very much, I like this article. I have had genetic testing so am aware of where I fit at the moment but my sample was from the surgery, and I have not had ADT yet. The samples that...
Thank you very much for this article as this is a very relevant subject for me because I am at the point that I will have to start deciding what to do next as I am in BCR. So far my oncologist at...
Just an update. Have not been here for a long time because things were good. Last year PSA started to increase and is now at 0.24, doubling in a little over 6 months. The RO who did the adjuvant...
Your state of anxiety over the ultrasensitive test results is the reason why some doctors, including mine at JH, recommend not using the test. They claim that there is a lot of statistical noise in...
I think that the numbers work out as follows. If you have a 66% chance of being organ confined then you have a 100-66 = 34% chance of being not organ confined. Then from those men it looks like 34%...
Sorry to disagree but as far as I can tell there is no way to decide objectively who has the right answer when it comes to Gleason score. These are subjective judgments by experts. You could have a...
Sheepguy, exactly my point. I forgot to mention that they updated the Gleason scoring system in 2005 so long range studies that follow men for 15 to 20 years would also likely be affected by this...
This topic is of great interest to me as I was upgraded by JH from Gleason 8 to Gleason 4+5. The original classification was done by a pathology lab that I don't know much about except that it is a...
Waiting for scans is very hard, I remember that as one of the worst times. Your PSA is high but there are some other features that might not be so bad in your case. I think that you need more...
Prato, I guess I also fit your profile, G9 with ECE. My 3 month Post surgery PSA was < 0.1 and my JH surgeon was happy with that but suggested a consult with an RO. He was all for adjuvant radiation,...
Welcome from me also, another G9. Did they know that your seminal vesicles were involved before surgery? In my case I had a bit of a fight because I wanted to go with surgery (surgeon agreed) and the...
You may be thinking conditional probability but the nomograms are not, at least not as you first gave the numbers, 98% at 7 years and 93% at 10 because the man who did not make it to 7 will not make...
Doug, I played with the nomograms a bit before my surgery and noticed that the JH Partin one was based on data where only 3% were G 8-10. A bit dissapointing for sure. The tables must be a bit more...
They compute the probabilities by following a set of patients over time. So at 7 years 98% are still OK but by 10 years only 93% are....
Bucky, the "low detectable unstable" group most likely consists of a wide variety of people some maybe at the low end above 0.03 but possibly many more at the high end just below 0.2. It is hard to...
This is what I was getting at in the other thread - the one on usefulness of SRT. The ultra-sensitive PSA test is identifying men who are not "zero" PSA and those are then encouraged to do SRT. Many...
Thought that I would add my few bits as this is of great interest to me. First, the size of the sample of the new study is a bit small as are most. When you divide the sample into subgroups by the...
Doug, the reason that I brought up the survivor story is that your first post surgery PSA was bigger than 1, similar to the story, he had 1.8. I think that would mean that one needs a more systemic...
Doug, I have also been away for awhile, in my case having adjuvant radiation. I have two more treatments to go. It has not been too bad, I have even been able to keep up my bicycling to work. But...
Bob, it looks like you were considering ADT only and then decided on ADT + SRT. What finally convinced you? I am having similar thoughts being a Gleason 9. Mostly I am wondering if the potential...
DYank thank you for the suggestion. I am trying to find someone in the Maryland part of the area so that I can minimize my travel time. It may end up impossible to avoid being stuck in traffic....
I had my six month post op PSA test, this time the more sensitive one. It came back at 0.08. Given my Gleason score and EPE I am again thinking that I should probably have additional treatment. I had...
Lion, I faced the same decision with similar stats last December. My first uro said to do the triple play, then second opinions at JH one said surgery and one said radiation. I was not told to do HT...
LupronJim, that's interesting, I'll get the newsletter. I have read some of the back issues and found a lot of useful information. It makes you wonder how accurate some of the long term stats are if...
As is probably true with many here, a lot of my post treatment anxiety is due to my high Gleason score. I started out as a 4+4 and was turned into 4+5 by a respected second opinion. Even though this...
Thanks again for the support. As far as ED I have thought about the various pills until I saw that one potential side effect is ringing in the ears. I have that already from my younger days and could...
Hi all, I appreciate all of the comments and advice, it is definitely good to feel part of a "club". Trying to make these decisions is stressful to say the least. I have not considered HT or the MRI...
I have been reading the forum for a while, finding it very helpful and informative. It is a great source of support and information. I thought that I would now ask a question on a topic that I have...