Thanks for your replies. Todd, you and I corresponed and even talked on the phone wayyyyy back - not long after you had Provenge. I was hoping they'd consider Hubby for it back then. His then doctor...
Hello again! I had stopped checking in here because for quite a few years hubby's PSA had been undetectable. he had some bone pain and occassional bouts of fatigue, but otherwise was doing well. He...
Didn't read all the posts- the ones I did listed lots of my favorites. For the past 8 years or so hubby and I have been taking overnight trips to see all the ageing rockers (mostly from the 70s)...
Thanks for the quick replies. He has been on Lupron for a very long time. The doctor is probably not prescribing the zytiga because my husband has extreme difficulty tolerating any medication that...
Hi! It's been a while since I posted or even read posts here. Hubby was doing so well and his PSA remained undetectable once he got established with an oncologist who started him on Cassodex and...
My husband is a G9 who had surgery then had to add additional treatments- Lupron shots and now Cassodex and Prolia. He does not have 'visible' mets, but does have significant bone pain (even prior to...
My husband has been using CBD (hemp) patches for several months now. His PSA has dropped back to undetectable and he has added CBD mints (2 a day). His oncologist is so pleased- Hubby had started the...
Mr. Bill, He has been on Prolia for about 18 months now. I’m not sure how the doc ‘knows’ the cataract is the result of the Prolia (and I guess the Lupron), but hubby indicated the doc was very...
Peter- Thanks, but we have only been to the movies once in 41 years- and that was for the very first Star Trek movie . He can't stand movie theatres for some reason. But we have a great DVD/BlueRay...
My husband's vision had been worsening for several months. He saw his ophthalmologist today. He has a cataract in his left eye- caused by the Prolia shots that he has to take to deal with the bone...
Just thought I'd share..... Hubby has had terrible bone pain- some from the osteopenia caused by many years on Lupron and from the Prolia shots to treat that and from some suspected micro-mets. He...
I don't remember who said it, I think one of the Indian philosphers.... "When you stop growing,that is the moment you start dying."...
Thank you for sharing your news David. I'm so sad to hear that your troubles have multiplied. You remain in my thoughts and prayers. For the festive drink suggested above try this- (we had it at our...
David, I'm glad you checked in. Don't worry about sharing 'bad' news.... we'd rather hear than not. Finally got hubby to an oncologist. He's now on Cassodex as well as the Lupron. PSA is now up to...
The last I remember seeing, David was possibly going for some in-patient treatment for his double depression. He had said that if he did that, he'd be gone for 6-8 weeks. It has been at least that...
Hubby saw the oncologist today. His PSA is up again (has gone up (doubled) every 4 months for more than a year now). This time it didn't quite double. It is now 0.1 I know that is very low still, but...
Beth, This is a difficult part- learning to cope with his absence. Thoughts and prayers will continue - as will you....
First, I want to thank you for sharing. Many of us are facing what you are dealing with in the not too distant future, and your sharing gives us insights and helps us make at least some mental...
Thank you for sharing your journey. Due to being a caregiver for my parents (father passed 7 years ago), and mother-in-law, I have chosen to become familiar with some end-of-life issues. I have even...
Hubby did get cleared by dentist- had a 'residual' wisdom tooth removed several weeks ago. He's very, very, very worried about more bone pain, but doesn't want to risk fractures. Thus- fingers...
Hubby gets his first Prolia shot for osteoporosis tomorrow. He is really dreading the (possible) side effects. He already has bad bone pain from the Lupron injections and osteoporosis (uro never...
No- uro didn't, but the new medical oncologist insisted we consult with one prior to starting treatment. We went but already knew we would probably not consider radiation. Hubby had to have 3...
Sorry- Forgot to include signature. He is 5 years post diagnosis and Da Vinci surgery. Gleason 9 Been on Lupron/Eligard since just after surgery. PSA had dropped to 0.00 and stayed there for about 3...
We saw the new oncologist for hubby's PSA report and Lupron shot. He gave us a full update and reviewed all our recent treatment decisions. Bad news- PSA doubled (again) since last one in Jan.- now...
David- So sorry that you are not getting positive results from the new meds and that treatments and diagnoses have taken so long. Prayers continue. Like you I mostly read posts now, rather than...
Actually his PSA is now 0.04. Both oncologists are are concerned that not only is his PSA no longer 0.00 as it has been for over 3 years, but the doubling time is relatively short. The only reason it...
Yes, talked with doc about those. Auximin ruled out for now as his PSA is still too low for it yet. Doc felt C11 best now based on his symptoms. We'd have to travel for any of them so hubby not...
Hubby has been getting HDT from the urologist who did his prostsectomy for about 5 years (high risk G9). His PSA started going up again last year (It is still low, but we don't like the trend and the...
The problem is his PSA has risen almost every test he's had ( every 4 months ) for the past year and a half. He is high risk (G9. And known lymph nodes mets immediately after surgery). I read several...
Hubby finally went to an Oncologist. We really like him and hubby is changing his HDT shots to this new doctor and will not be seeing his urologist anymore. The new doc feels that hubby is definitely...
Thanks for sharing Todd. Hubby FINALLY agreed to see an Oncologist I've been wanting him to do so from the beginning, but his PSA started rising this past year and he finally agreed). We met with him...
David, Glad things went so well and hope it bodes well for all future treatments. Prayers continue....
David- prayers continue. Keep us posted. I've not been able to post much due to severe asthma flare. Wound up in the hospital for 5 days. But I keep you, your wife and your docs in my prayers....
Boloidat- no problem with your response, just trying to clarify. The statement about how long before having to change therapy was also from the doc- not PA's opinion....
Hubby's previous enzyme numbers were AST/SGOT 121 Alkaline Phosphate 105 ALT/SGPT 65 most recent - AST 63 ALT 53 didn't get the Alkaline Phosphate from PA. Waiting for them to post the practice's...
He was simply relaying what the urologist (and hubby's PCP) had ordered because doctor was out of town. He's been having high enzyme reading for a while and just 'fired' his liver specialist due to...
Hubby just heard from his doctor's office about his most recent PSA. It is up again. Still low, but up for the third time in a row. It is now 0.04 (it has gone up 0.01 each time). I know that is not...
Call his Primary Care Doctor EARLY tomorrow! Lupron can cause serious[u][i][b] liver complications. We are in the process of monitoring my husband's liver functions because his PCP noted a rise in...
David, it is so good to hear from you. Sorry things are still moving so slowly and that you've had more 'complications' in all areas. Know that you and your family remain in our thoughts and prayers....
The CT scan got scheduled today=== able to get it Monday!!! Unfortunately he has started having (and passing) kidney stones. Painful, but so far no blockages....
Fairwind- - I won't even mention that option. He has lost enough as it is. We will look at other things. It is also possible (maybe even probable) that his cancer is becoming / has become 'castrate...
Compiler- no cassodex, just the Lupron (switched to Eligard earlier this year). Urologist didn't want to believe Lupron/Eligard could cause liver problems, but it is not only documented in medical...
Hubby just saw the specialist about his liver (primary doc had referred him because he's had high liver enzymes on two tests more than a month apart). As I suspected the specialist says it's liver...
Hubby just checked his doctor's patient website. His liver ultrasound results were in.... normal. So it looks like we are dealing with side effects from the Lupron and Eligard. He's to have the...
David- so sad to hear about this. Prayers continue for you and your wife (and for the kids who may have to evauate). I just posted an update about hubby's liver issues, if you are interested. Keep...
UPDATE Hubby is scheduled for his liver ultrasound on Friday morning. We did get the rest of the bloodwork back- it is not hepatitis. Also, finally got through to his urologist-- he had been on ER...
NO, hubby has not been on casodex. After reading lots of 'stuff' on line, we are thinking it may be side effect of Eligard. Hoping so, and hoping that it has been caught early, it is easy to stop and...
Hubby has been having more and worse bone pain since the doctor switched him off Lupron and onto Eligard. Yesterday he was in bad pain and suddenly the left side of his jaw swelled up. So he FINALLY...
David, Glad to hear that this doc is off to a good start. I think you are referring to multiple myeloma (not multiple melanoma). It is a kind of blood cancer (mostly in the plasma cells). It can...
David, so glad to hear from you again. You have been and continue to be in my thoughts and prayers. I'm sorry life has continued to throw you so many curve balls. Hoping things straighten out more...