Thank you all so much for your lovely messages...
Thank you everyone DonJ - what a lovely message. on the day before my Dad passed away, he seemed to be 'awake' for the first time since the previous Saturday. Up until this point he had been...
Hi Just thought I would let you know that, sadly, my Dad passed away last Thursday, 4th June. We are all devastated. I know I had been updating you on his health and the last time I was on I had...
Was Dave having these symptoms 2 years ago Sue or was he asymptomatic at that time? Michael, beautifully written, and from the heart. I loved the image that 'ride into the sunset on my own terms'...
Thank you so much for your messages of support. It can be very hard, having no one to talk to. Friends will ask "how is your Dad?" but it can be very hard to give a brief summary, so you end up...
Hi My Dad started Xtandi at the end of Feb - PSA was 126. Within ten days it halved to 63, another 20 days and it was down to 27 (end March). However, since then, it has has only dropped 4 to 23,...
Thank you Jim - really touched by your message. Sue, yes I fully understand. My Dad is 63 and his daily routine sounds almost identical to your Daves. I know my parents lives are a far cry from what...
Thank you ladies, I understand now. I did realise each person would be different but I have a bit more insight as to why now. Sal, I'm so sorry to hear about your husband, i'm sending you both...
Hi Has anyone ever had a blood transfusion during their cancer treatment?if so, can you help me as I have a couple of questions? I've been trying to find the answers online but can't see to locate...
Hi Susan My Dad is on 3 x iron tablets per day but haemaglobin still dropping. His B12 result is within range, and strangely his iron level is too. His Folate is low, ferritin high, transferrin low....
Thank you Michael...
Hi Just thought I would post an update on my Dad as I was very grateful for your responses on my first, and so far only post, dated 9th April 2015. Sadly, Dad continues to go downhill. In the last...
Thank you all for your responses. Susan - I wondered more about the back pain as My Dad has excessive shoulder pain, which is why and also can't get two areas of discomfort. He also can't get...
Hi Susan and Beth, thank you so much for your kind words. Susan, When you say your husband developed back pain, can you tell me a bit about this and where the pain was located? My Dad is suffering...
Thank you for your input Don, I am so pleased to hear that the drug(s) are working well for you, and it's also very informative to know that the drug is capable of working without causing all the...
Tall Allen, I just had a look at the Xofigo website, it says it can only be used in men with no known visceral metastases, I assume this would be out for my Dad anyway, due to the fact he has...
Sorry, I meant Tall Allen, not Tall Alien!!! That's what I get for reading/replying from my iPhone! Sorry!...
Hi Jim & Marie - thank you for your response. Can I ask, did Jim stop taking the Enza due to how he was feeling or was it purely a trial for 3 months then stop? No, they haven't proposed anything...
Hi Sam44 I'm originally from the Glasgiw area but live down south now. In the UK, there is a two week charter that doctors must adhere to if cancer is suspected, so I would imagine you will here...
Hi I'm new here and looking for anyone with experience of Xtandi/Enzalutamide. My Dad started taking this drug in Feb 2015. His health was declining before he started - he had had a huge spread in 17...