My heart is broken in a million pieces. My Brave and Courageous husband lost his battle with Metastatic Prostate Cancer on 3/10/2016. I want to thank all that have posted on this forum. I had gleaned...
Wahoo! So glad to see good reports!...
I'm so glad Gary had a wonderful Birthday!. Every day is a day to be celebrated. Wishing you both many, many more days of JOY and happiness and Peace. Barb...
RETCPO, My Husband did the Budwig diet for about a year, did not see any great response from it. Although there are some miracle stories we have read about. So might be worth a try. One thing you may...
Carol, I am so sorry to hear that Steve has passed and so suddenly. My thoughts and prayers are with you. I pray for peace and strength for you through this time and coming days....
Thank you fella's for the prayers. We will sure take all we can get. My husband has been also doing complimentary treatments during the last two and half years with his Onc.In Germany. He truly feels...
My husband is G-9 with nueroendocrine type prostate cancer. He was originally diagnosed in June 2013 w/ andecarcinoma . See signature of all the hormone blocking drugs he's had. Feb. 2014 scans Mets...
Hi Tommy, I apologize for not responding to this thread sooner. Life's been crazy over here. I'm sorry to read about your Dads diagnosis. I know how hard it is. Yes, my husband too has been diagnosed...
I wanted to "bump" this Topic up. I thought there may be some new Caregivers on now that may need support. As this journey progresses it gets more and more demanding and stressful. With taking care...
Sometimes I wonder if we have over complicated my husbands treatment. Does not seem to be anything out of the ordinary. Seems to add added stress to treatment protocol. I don't know that traveling...
Good morning Beth! I'm glad to see that the bleeding was only due to a fissure. I hope it heals up quickly. I sent you an email with some links to articles on combo chemo treatments. I know it is so...
I'm not real sure why his Onc. Wants to wait. But, maybe to see what next test scans show. My husband will usually have new scans after every 2nd dose of chemo to see how tumours are responding along...
Yes, this is what we've been told also about this strain is low PSA producing. We were told yesterday that normally with his amount of mets it would be in the hundreds. Actually prostate has been...
Drs. Are scratching their heads as what would be next. Line of treatment. Does just anyone on here have their NSE and/or CEA tested? Husband diagnosed June 2013. (See signature), standard hormone...
Allen, I had not heard of them using Estorgen patches. What is the purpose. And effect it is to do? I will bring it up with his Oncologist next week. Thank you so much for the information. Always...
Mickey, my husband has been on the combo Zytiga/Xtandi Prednisone + 3mo. LUPRON shot since Nov. 2014. Not part of a clinical trial. Insurance has covered it. (BCBS). Might be worth looking into.nsure...
This is interesting. Husband was on zytiga, Xtandi and LUPRON. Since November. 14. pSA continued to rise. Scans show tumor progression he was also in a lot of pain. No bone mets. They took him off...
We travel to Germany for complimentary "Alternative" treatment. To give an example of the cost differential. Last year my husband had 6 rounds of chemo. He alternated treatment in U.S. And Germany....
Has any one on here on the forum been treated with the combo of Cabizitaxel/ Carboplatin? Husband received results of latest scans today and tumors have progressed. He has had some back pain,...
We are in Texas. Barb...
I would sure be interested in a getaway like this. We need a break from the roller coaster. Spend some time with others tha understand, what this all involves. Let me know what you havinmind a...
I need some advice, please. My husband who was DX 2 yrs. ago. Was never sick or any health issues. So did not have a regular Dr. He would go to. Until he started having some pain, thought he had a...
Thank you Jerry, I did go back and add the signature. Lupron Jim, Yes, MDA is where his Oncologist is. Kinda frustrated right now. Drove 4 hrs. To E/R at MDA Tues. got out of there about 10:00pm....
Husband DX 2yrs ago. He has had pretty good success in keeping the Cancer from getting the best of him. See signature below. Side effects and symptoms have been pretty much controlled and/or...
Tall Allen, unfortunately my husband received the call that he did NOT test positive for the PDL-1. So therefore can not participate in the trial. They invited him to another Phase I Trial, with...
Hi Jerry , Leukine came up in my research for a next step for my husband. We are waiting on whether he qualifies for a Anti-PDL-1 clinical trial. Also, tests for mutation to see if some other "Target...
I've been reading with curiosity about Leukine. Any one have experience with this for Metastatic Prostate cancer? Last info I saw on this sight was from 2012....
Quincy, I'm sorry to hear about your PsA climbing. I know we are all hoping and praying that each treatment we are offered is going to be the one that will work on our cancer. Each one of us is...
MyMan, yes, it was his Onc. Who referred him to the Clinical trial Dept. to see if he qualified for this trial. Apparently he had heard of some interesting results in Prostate Cancer at a recent...
Myman, we just returned from MDAnderson in Houston. They have recommended my husband for the trial with anti PDL-1 immunotherapy. We are still trying to get our arms around it. First they have to...
Barb, I replied on the other thread. I agree with Gunner34, about the port. It makes things so much easier. My husband had it put in for the third round. ( he was very apprehensive , thought it was...
His chemo treatment rounds were every three weeks. The actual administration of the meds would take about 3-4 hrs. Side effects were not too bad. He would get sleepy during treatment. I think they...
I'm just now getting back on this thread. We met with the Radiation Onco. In July. After reviewing new scans. They have declined radiation treatment. His pelvic mets responded pretty good to the...
Thank you Compiler. We had only planned on flying in the day before and leaving the following day. Do you think thats typical for the first visit? I would not think there would be any followup tests...
Have finally convinced my husband to get another opinion on his treatment plan. He has an appt. With Dr. lam mid November. Can I please get some suggestions for accommodations while we're there. Only...
I thought I saw this subject mentioned before on the forum. But could not find anything in "Search". Has anyone had success in receiving Social Security Disability Benefits and Medicare with McPca?...
Hi Restofmine, so sorry you are here as one of the G-9rs. I know you are going through the shock and fear of the diagnosis. So much information to absorb and research. My husband was diagnosed last...
Glad I saw this post, I am going to try my darnedest to get my husband and myself to the conference. I definitely think he would glean some excellent information from the speakers and break out...
Thank you Michael60 for your encouragement also....
Thank you for the information Tall Allen, I will pull up the article you posted. His Dr's are out of MD Anderson in Houston. He is waiting for appt. Date with a Radiation Onco. I will have him look...
It's been a while since I've posted here regarding my husband. I have been staying in touch with reading post to glean lots of good information. We are getting ready for a New Chapter in my husbands...
What type of Chemo are you starting tomorrow? You have been so strong and always full of good information. Best of everything to ya....
I know this is an old thread, but Husband recently diagnosed with Nueroendocrine Prostate cancer after almost a year of treating. Seems as if this test was done earlier we might be further along in...
My husband began Zytiga/prednisone end of Jan. Due to continued rise in PSA. He began having symptoms of pain and VERY frequent urination. Scans end of Feb. Showed mets on ribs, sacroiliac . Also...
Oncas, have your Drs. Suggested any chemotherapy Options?...
My husband has been diagnosed with a secondary Anaplastic small cell Metastasis. They recommended immediatly starting on a "Cocktail" of Taxatore and Carboplatin. He is continuing the Zytiga and...
MsWW, I'm thinking it may be a combination. The Oncologist said that one cancer produces PSA but other does not. The matastisis to the lymph system up through his chest and neck area is rare for Pca....
Thank you everyone, Yes, he is realizing that chemo is the best option, and with how bad he's feeling knows that he can not put it off. We definitely will be seeking a second opinion. Jim, we started...
This is just happening so much faster than we thought .weird that "Chemo will make him feel better", how long will it take to relieve the symptoms?...
We met with my husbands Oncologist Tues. to go over results of Cat Scans from last week. We were very disappointed in the results. Having some difficulty in understanding results. I think we are...