LJK, I recommend you research the CHAARTED and Stampede trials for information on the latest standard of care for those of us in this exclusive club. Also that you find out everything you can on...
Just checking in, it’s been a while, I received most recent PSA yesterday, still undetectable at <0.006. Continued triple ADT with Lupron, Xtandi and Avodart along with Metformin and Estradiol patch...
Thought I'd check in with the G9 club. I think I'm posting in the right place now, gotta get used to this site again. Hadn't been here in a while, I've been spending time on a couple of other sites...
Thanks...
Edit post Thought I'd check in with the G9 club. Hadn't been here in a while, I've been spending time on a couple of other sites and lost track of this one. It still appears that my cancer was beaten...
Thanks wasn’t sure if it was posted in the G9 club, gotta get used to using this site again....
Thought I'd check in with the G9 club. Hadn't been here in a while, I've been spending time on a couple of other sites and lost track of this one. It still appears that my cancer was beaten into a...
Need4, I'd be glad to share some other tips on getting thru chemo with you or your husband. Let me know and we can exchange email addresses or phone numbers. I can also share some things that have...
Sorry to hear about your husbands situation. I recently completed 6 rounds of chemo per CHAARTED in December while still hormone sensitive after being diagnosed in March 2014 with stage 4 mets to...
Hey M, The healing in the bone lesions is tracked through bone scans which I have done every 6 months. I am able to time these so I have them done just before my visits with Snuffy so he can review...
Hey Madagascar, Glad to answer your questions. First you mention that you had your prostate and lymph nodes removed, in that regard we are somewhat similar as well, the difference is that rather than...
I too have advanced PCa (mets to bones and lymph nodes), I was diagnosed in March 2014 and immediately started Lupron and Casodex, later added Avodart (triple blockade). In July 2015 I started seeing...
Dr. Myers has me taking Cabergoline 3 times a week for gynomastia, I also do a lot of exercises for my pectoral muscles (flys, bench press, etc.) keeping your weight down and staying in shape also...
Allen, As you may have read in my other posts, this was a decision that I thought long and hard about. I was given the option by my radonc who explained that he did not recommend surgery due to the...
Teamchris, I'm surprised that they have not wanted to add other HT agents to the Firmagon like Xtandi as mentioned in the other posts or at the very least Casodex. I'm not a doctor but it seems...
Allen, I just returned from VA and my second visit with Dr. Myers. He just returned from the IPCU meeting in Colorado where this was discussed. He added Celebrex to my treatment regimen which...
Lee, I'm a G9 with multiple lymph and bone mets, dx in March 2014 and since then I've taken the kitchen sink approach - triple HT that started with Lupron, Casodex and later Avodart. Added Metformin...
I started seeing Dr. Myers in July and he no longer recommends selenium. He has me on Curcumin, Pomegranite, Reservetrol and Omega 3 supplements. As part of the visit he provided a hand out with...
Bob 656, I won't give advice since I am not a doctor, however glad to share my experience. I too am a Gleason 9 with mets and had my prostate and several pelvic nodes radiated. I did a lot of...
Interesting that you've run into such push back. I requested a script from my GP with a brief explanation of the benefits of it for someone on HT and he prescribed it no problem. My local medonc also...
I started taking back in early August, Dr. Myers prescribed it for me to replace the Casodex that I had been taking since I was DX in March 2014. I also started chemo in late August per CHAARTED...
Hey Jerry, I started seeing Dr. Myers in July, he switched me from Casodex to Xtandi while I am still hormone sensitive. I also started Chemo in late August while still hormone sensitive although I...
I had IMRT in November 2014 and the radiation team placed a lot of emphasis on bowel prep and a full bladder. If bowls weren't empty they would take you off the table and send you off to the rest...
I had IMRT back in November and I had to make sure that my bladder was full and shall we say, my #2 business was taken care of prior to treatment otherwise they would pull me off the table and send...
I agree with Jerry, I would throw all I can at it to stop it in its tracks. I had IMRT last fall and the radiologist liked the fact that I was already on HT so that it had a chance to weaken and...
I started chemo back in late August, had 2 treatments so far. I too had a cruise planned for later this month but chose to postpone until after treatment just in case I needed medical attention...
CLCDR, I agree with what Allen says here, early chemo is most effective to those who have extensive mets. I am currently going thru chemo per the CHAARTED Trial and while it is tolerable, it is no...
I had IMRT to my prostate and pelvic nodes in the fall, I did not have markers, my treatment was mapped out using CT scans prior to starting. I always had to have a full bladder and empty bowels or I...
Jerry, Yes, high volume bone mets to my spine, pelvis, ribs, sternum and pelvic nodes. This is in my profile - not sure why my signature is not popping up under my posts. One note - part of my...
I was resistant to using chemo early on despite my diagnosis, for all the obvious reasons but after studying the ongoing research from the Chaarted Trial and others I opted to start chemo 17 months...
Hey Almost a 10, I too just finished my first round of chemo (Taxotere), mine was just over a week ago. I decided to go forward with chemo while I am still responding to first line HT despite having...
Houseboy, I'm getting Taxotere treatments every three weeks for a total of six sessions, this is per the Charted trial....
I had my first Taxotere treatment 5 days ago. Hoping to gain the benefits found in the Charter Trial while I was still responding to first line hormonal therapy which I started in March 2014. Day of...
Just checking in with the Crew, I'm just coming up on a year and a half since being diagnosed. PSA still at <0.1. I went to see Snuffy Myers this past week for the first time. I had an excellent, eye...
I had IMRT to my prostate and some lymph nodes and while the radonc liked the idea of being on HT to weaken and shrink cancer before radiation he never tried to prescribe anything regarding HT, he...
I have bone mets and based on the pain that I had for 3-4 days after my first Lupron shot I'd have to say that it definitely stimulated my cancer. I started Lupron and Casodex immediately upon...
TonyPal, I would go ahead and get one done. I had a rising PSA and had two 12 core biopsies, in subsequent years due to a PSA over 4, both came back negative so I chalked it up to something else -...
@ Tall Allen - how is the coverage? Do you find that they recognize and are willing to pay for the latest PCa drugs and treatments? This is a great post, I'm learning a lot. Right now I'm doing good...
Thanks Allen, good info Ed...
I asked my medonc about getting on Tamoxofen and he was reluctant to prescribe it because it could cause heart disease in men. Is this correct or is he misinformed? I appreciate any links you guys...
I started taking Metformin after watching a Snuffy video where he recommended it. My local medonc agreed. Seems like a no brainer, it's cheap, well tolerated and helps keep weight in check when on...
Hey Gerry, Thanks for posting, your history gives us 9's a lot of hope. Glad to see another 9 who had RT early on. My disease is a little more advanced than yours but at the suggestion of my radonc I...
Thanks for the post and the hope, I too plan on defeating the odds and being around for years to come. Ed...
Good Luck, I hope you're able to hold on to that screen name for a long, long, time. Ed...
Hey Todd, I'm in the same boat although I haven't been on ADT as long as you, my medonc says I can take a holiday if I like but I am reluctant, I think it is too soon, my radonc tells me that things...
I was treated with IMRT 6 months after diagnosis, I had been on Lupron and Casodex during this time. I had RT to my prostate and the pelvic nodes that my radiologist felt he could hit without...
Hey geop, Congrats on the results, like you I get monthly blood work too even after being undetectable for several months now. We have similar DX, my medonc wants to keep tabs on any changes so we...
I like it, good blog, I share your feelings. As a woman that I work with who is fighting metastatic breast cancer puts it - "I'm living with cancer not dying from it" Ed...
I've been on Lupron for 13 months now. I take 4,000 IU of D-3 plus 1000 mg Calcium and another 200 is included in my multi vitamin. I always make certain to take these with food for better...
Hey goats, I've been on Lupron for a year now, and I agree with DonJ that fatigue has gotten worse the longer I've been on it. But it hasn't stopped me from exercising daily - brisk walks,...