Hello Gunner, Your medical team has pulled out the stops to get this done. I'm not sure mine would. I get the feeling it would be Lupron, Taxotere, and wait. By chance are you being treated in the...
Hello John, Based on the 0.0 you are on your way to being cured. ART is a 15 minute daily nap for 8 weeks, really. Most of us experience loose bowl in weeks 5-6 out of a 8 week cycle. No sun-burn,...
La Salle, I wouldn't jump to injections too soon but it is very important keep the blood flowing down there with oral meds, VED, or injections. Otherwise he will experience permanent and significant...
With surgery once you recover continence and from ED it is very unusual to relapse. Old age is another topic... After "shopping" around So NH and the Boston area I selected Dr Peter Chang and Dr A...
I would get it. You're there and they are going to stick you anyway. The incremental cost of an added test is low. That way if the later test was much higher, possibly due to an error, you would know...
I would get it. You're there and they are going to stick you anyway. The incremental cost of an added test is low. That way if the later test was much higher possibly due to an error, you would know...
I have seen a surgery time for Dr Patel of around 1 hour 40 minutes for a couple of RALPs on the forums. A typical time is closer to 2 hours and 20 or more. Just a guess but a very high number of...
Sophie, By chance did he start Hormone Therapy (aka HT, ADT, Lupron, etc) a couple of weeks ago? If so it would explain the fatigue. HT causes more fatigue the SRT and is often started before SRT....
PS - I see you are on HT for 3 years. I have read several studies where they suggest HT for 18-24 months post IMRT. My MO wants me on Lupron for 18 months total which is 13 months post IMRT. HT will...
Hello Jerry, I hear you. Either on this forum or on cancerforums dot net I have written of the same symptom of "dis-interest". They list fatigue and loss of libido but from reading other posts I...
While .09 looks a little scary it is still in the noise. I would wait to see the next result before doing anything. It may well drop. What is the doctor saying? I understand wanting to be prepared...
Hello Wilderness, I understand you are in here in the NE also. We rented the Deerfield Fair grounds two summers in a row a year and two ago to test some equipment. If you recall a low flying Cessna I...
My worst to date was the bladder spasm as I came to after my RALP, like a bucket of hot coals in my gut. They gave me an injection and it stopped instantly. Imagine that out hiking a day from no...
You need to calm down and take a real view. Everyday for 8 weeks I get a CT scan before getting a X-ray blast 120 times more intense than a CT. Many have been through this for even longer. This is on...
ferrtx, See Does nerve-sparing radical prostatectomy increase the risk of positive surgical margins and biochemical progression? http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2943681/ Conclusion NSRP...
Teenie - You wrote "Is it like you can leak a little pee or is it you just uncontrollably pee yourself? " Right after the catheter is removed there is very little control, yes you just uncontrollably...
I have a nice head of hair graying only around the edges, and 4/5 G9 PC. So my odds are improved long term? really? The fact they admit they did not have sufficient men with severe baldness to assess...
halbert, Exactly 8 weeks after my RALP I flew from Boston to Denver and spent a week outside on a wind farm installing equipment. In the past I could never go before boarding and between the seat...
To each his own... RALP one night in the hospital, a week till you can drive and a good BM, 2-3 before returning to a desk job, 1-3 months of slipping a Depends into your jockeys, 1 to 6 months...
Sounds good, I'm in. G4/5 positive everything except mets. T3bm0n1 RALP, Now HT and SRT....
Didn't you mean "isn't a cancer test"?...
In the medical studies they use the term two ways, each paper uses a different acronym, thankfully they define it in the paper. The most common are: CSS for cancer specific survivability (the...
I have stumbled across some version of the comment "the 5 year survival rate of metastatic PC is 28%, the 28% tend to be thin and have a diet of mostly nuts and veggies" in a couple nih.gov prostate...
start of rant/ Research is expensive and every patient treated is a data point in that research. I'm not referring to trials but actual practice. While the "thumb scanner" moved up the diagnosis 5...
First welcome to the site. There are a lot of great guys here that have been through it all. It's unusual but I can still feel the biopsy, its been over a year and after a RP. Blood in the urine was...
Hedging my bets while worrying about the sugar and associated calories I take 3oz of pomegranate juice a day with my most protein rich, lowest fat meal which is lunch. Using a FITBIT I watch it all...
The comment "most people won't tell you because all they do is parrot what was told " was a snipe and Halbert got whacked for taking exception to it?? I sought out RALP and had to bypass several...
"Waiting on pins and needles" Well not much longer to wait, there will be plenty of them come Monday. :smile: I wonder about my self but I have pleasant thoughts about my experience. Comfortable bed,...
Good going halbert, sound like a text book case. I won't be long before you are out this way but I have to tell you its snowing pretty good at the moment. I think my calendar isn't set right or I...
Hi Wilderness, I can only pass along my experience and what my doctors have me doing. They are inline with multiple papers from nih.gov on early start which helps my confidence. As a 4/5 G9 with...
I hope your drain is ok. Pop prostate drain into the search box at the top of the page for some good related reading. The drain, I almost forgo about that part. Only one mention here recently,...
At only 3 weeks post catheter it is normal to occasionally saturate a pad. That being said there should still be some control at this point like being able to stop and start a stream over the toilet....
So far Lupron for 4 months is not bad, just a quick hot flash once or twice a day. SRT has just started. Several nih.gov papers show a 20% advantage with the combo for G9. A 5% improvement doesn't...
Even with the Lupron HT I really do not feel fatigue most of the time. Like others it is hard to describe. The transition from idle to cruise is sometimes a problem. Jumping out of a chair to run...
I'm sure with billions in the bank Steve gave it a good shot. It's true pancreatic cancer is more aggressive than PC. Many of the "scientifically proven medical treatments" are derived from tree bark...
As a G9 and having a Doc that didn't spare anything including a bit of the badder I'm going for the implant. Reading the forums recovery is very painful making most guys sorry they volunteered for...
Hello dirtyodwyer Welcome to the club of the ultimate vasectomy. The prostate surrounds the urethra as to goes from the bladder to the penis. During surgery they cut the urethra, remove the prostate,...
If you go to nih.gov and search prostate salvage you find numerous recent papers suggesting having SRT sooner than later (.1 versus .2 or higher) appears to have an advantage. My PSA went from <.01...
I'm sorry to hear your PSA is no longer zero. I believe there is a lot of room for optimism given the long time to reoccurrence and the low PSA value. It's not like you have Mets all over the place....
One thing to watch out for is not using it or alternatives such as injections or pills. If ignored for too long it will atrophy and the length you lose will never return. You'll end up with a extra...
You are where I was at after 4 weeks. At 8 weeks I had switched to medium pads and could wear one all day. By 3 months I was finished. A 32oz Dunkin Donuts iced decaf was part of my day. You write...
Hello Kathy, I'm 4/5 G9 with seminal duct, near lymph nodes, positive margins and bladder neck involvement all found at pathology after my RALP. They scored me t3bn1m0 for stage 3, near lymph nodes...
Hello Joey, In your shoes I would ask the following: For the surgeon: - Am I a candidate for active surveillance? If so you would you do an MRI to be sure, with only 7 cores a higher grade cancer...
During my DRE the urologist felt hardness and promptly said based on years of experience he was confident it was cancer. A week later I had a positive biopsy and only then a CT and bone scan. My PSA...
When I had my biopsy each of the 12 shots caused a really sharp pain. The uro said he only saw that a few times and each time it turned out to be a high grade PC but there is no basis for concern...
Hello Jane, Your offer is very kind. I plan to drive some days, there is a Boston Express Coach from near me to South Station several times a day, and I can get the train in Lowell, Fitchburg, or...
Hello Pratoman, While my surgery went very well the one thing that bothered me for maybe 6 months was a feeling my colon had a kink or possibly a pocket near the end. You are right, it is hard to...
Through reading I decided on surgery: rational or not I wanted it out under a microscope. I decided on Da Vinci for a quick recovery and a very low probability of transfusion when compared with open...
halbert, My wife and I are in New Hampshire just over the Mass line, 60 miles N of Boston. In a week I'll be in Boston for daily RT till late May. Let me know when you are headed out....
Hi halbert, Your are right about major medical centers. The team I interviewed at BIDMC committed to being the guys with the knife and they were. They were very open about numbers, successes, and...