Do you have any idea on obtaining the Gallium PSMA PET CT scan Either by joining a trial or by paying out out of pocket?...
Are they only available as trais in the states?...
Does anyone know if the Gallium PSMA PET CT scan is now available in the states? I want to determine if I am a candidate for the treatment but wanting to get the scan here in the states. C.G....
I am trying to determine if there are PSMA/ct scans available as standard care in the USA. Has anyone had PSMA/ct scans in the US?...
Where is the PSMA test available in the US? I am still looking into going to have the Lu-177 Treatment In Germany, but they would like to see the scans before I travel there....
I have been looking into going to Germany for LU177-PSMA treatment. Has anyone here traveled from the USA to get the treatment? How did the process work? Who was your main contact there? I have many...
Thank you all for your responses. I am looking at many different option now. I will bring them up to Dr. Megan Caram At the University of Michigan Next week....
Allen, Thanks for the input. I will be going to the U of M next Tuesday. I will bring up the trials and treatments mentioned. I still remain hopeful. CADguy...
Hello, After being on Docetaxel since April with some success. I got the results from my latest scan from earlier this week and I find out that I now have "enumerable liver and spleen mets" the...
T.A., Thanks for the input. Cyclone, Hey there. I'm glad to see you are doing well. Its been an awful roller coaster ride with the PSA readings that is for sure. My emotions go up and down inversely...
Hello all, I have now been on Docetaxel chemo since march of 2016. I have had some success with the chemo lowering my PSA and minimizing or even eliminating the effects of the many mets to my bones....
My question is: If you never got a response from Zytiga lets say, is it possible that Docetaxel can "morph" the cancer cells to make Xtandi effective post chemo?...
Hello all, Last winter after failing Zytiga, I was offered the BAT trial for MCRPC though the University of Michigan. I met with Dr. Megan Caram. She described the trial as consisting of a...
Hi, I am considering going to Germany to get the LU177-anti PSMA injections. I have read that there are four hospitals in Germany that will administer the treatment. I am looking for anyone that has...
Hah! Yeah I am thinking of the other Prostvac....
Actually, I am trying to get access to Prostvac. I am not eligible for any trials using it at this time. C.G....
Hello all, Simply put....I am wondering if any of you have been able to get access to non FDA approved drugs or treatments via "compassionate use"? If so, how was the experience and how exactly did...
Prostvac....I think I am ready for it. I know there are several ongoing trials. Is there any chance of getting it through "compassionate use"?...
It looks like VAL201 is showing good early results. http://www.iii.co.uk/225676/valirx-successful-first-results-val201-clinical-trial...
I understand that they claim the chemicals supposedly washout in 11-16 hours, but then how does that account for accumulating toxins that we hear so much about? What am I missing here? Cyclone, I am...
From everything I read it takes 21 days for it to "washout" of your system. Why else would they pick 21 days in between infusions? Is 21 a magic number? I am having SEs. Not every day, but several....
--------------- Yes, I know about drinking plenty of water and all of that....
Mary, Hello there. I was Dx'd back on 12.22.14 with stage 4, metastatic, G10, PCa. My URO. got me started on Firmagon when I got the results of my biopsy. I went hormone resistant after only 5 months...
Hello all, I am getting prepared to go on Docetaxel. I stopped the Zytiga I was on....I never got any benefit from it. Now I am reading that there is a cross resistance between the two, if you take...
I was upset to see that I only got 5 months of "use" of ADT. The main issue that we all share is that we all know that just around the corner there will be another treatment that will provide an...
Teamchris, Take heart, I became castrate resistant after only 5 months of ADT. I was was very upset to see my PSA start to rise again. I am sure you husband is experiencing similar distress at this...
Beth, That is the best news I have heard all week! Seeing those numbers put a genuine smile on my face. Here is to more good news for you and Gary! C.G....
Howdy all, I have been eating a mostly vegan diet since my PSA began to rise again back in May. I have to say that I feel pretty good on the diet. I am not an activist about it though. When I was...
That is really good to hear! It is nice to hear that the Xtandi is working the second time around. Happy Holidays! C.G....
Cyclone, I echo your sentiments. Can you Imagine the dedication and single mindedness it would take to work on a single drug for 17 years? I commend the good Dr. and her team, regardless. We will...
Todd, Sorry to hear that. You and you family will be in my prayers. Remember the good times. CADguy...
Hey there Cyclone, I hope you are doing well. Thanks for dropping a line. As I recall from your previous posts that you had a fast response from Zytiga. Is that correct? How are you doing with it...
Fairwind, Back in 2010 I decided that I needed to buy some health insurance because I work as an independent contractor. I really didn't want to shell out the money for it every month. I was in...
10, How long did it take you to get the 10 point drop? You had a RALP I see from your signature. Where did you get that done and what Dr. ordered it, If I could be so bold? I have been asking about...
Thanks Fairwind, I am getting that sickening feeling in the pit of my gut telling me that my Onc. does not know when I should be getting a response from the Zytiga. I swear she acted like she was...
Hello everyone, I am on my fourth week of taking Zytiga. I met with my onc. today and I have had a doubling of PSA since I started. Is there any possibility of a delayed response to Zytiga, or is it...
Luv, I did the Provenge treatment back in September. I also I had a port installed. What I would do for showers is; place some double sided tape a few inches all around the port. Then take some...
That is a good question. Where can you get tested? I guess I will be searching on the net for that one....
Hello all, I am curious if any of you have been involved in the trial of the ovarian cancer medicine Olaparib used for treatment of PCa. Have any of you been prescribed the drug off label for PCa?...
Cyclone, It is good to see you are doing well. We are actually getting snow here today in northern Ohio. This after having most of the month being unseasonably warm in this area. I asked my Dr. if my...
Hello all, I have made some adjustments to my Zytiga dosing in accordance to some of the suggestions made to my initial post. I thank you all for your help. I am taking the Zytiga one pill at a time...
Hello all, I am on my third week of taking Zytiga with Prednisone and I am now experiencing some serious fatigue. I have experienced some mild nausea soon after taking the four 250mg pills in the AM,...
Cyclone, Thanks, I am doing well enough. I knew that Xofigo was spelled with an "X", I must have had a Firmagon moment! I just got started with Zytiga with Prednisone, and I am doing very well on...
Hello all, I am curious about Xofigo. I am looking for anyone that might have recently undergone Xofigo treatment and how it all went. Thanks, C.G....
Beth, Before my Dx I was feeling ill. I had some bone pain do to the many mets I had at the time. For the longest time I knew that something was not right with me, but just what it was I did not...
Beth, That is just great to hear. I send my prayers to you and Gary for many more positive results. C.G....
Cyclone, Sorry to hear about your loss. Once again we are reminded of how unsure and transitory everything is. Since my Dx I find that the little things have become so much more important to me. I...
Cyclone, I am very happy to see that you are doing well. I just finished my Provenge treatment and preparing for Zytiga. I am looking for a lab that can provide that test in my area. I too am going...
Hello all, Would anyone know of an Onc. specializing in PCa at the University of Michigan that they would recommend? Thanks, C.G....
Hello all, I got my 3rd and final infusion of Provenge yesterday at the Hickman center in Sylvainia OH. I did feel some mild chills at the very end of the infusion, but after I got up and walked...