[quote="JNF" Skeeter, also glad to see you doing well following treatment in Bloomington. When I was a student at IU, the Proton Lab was very top secret and hidden away from general sight. A lot of...
According to his wife, his PSA had not had much of a climb, and yes, he was getting it regularly checked. He started having a lot of pain in his back and trouble walking, which was the reason for the...
My brother in law was diagnosed with early stage prostate cancer about 5 years ago, treated with conventional photon radiation at a well known and highly thought of hospital in central Florida, where...
Here is another example. Retired Kentucky State Trooper obtains medical degree at age 53....
Title says it all. A friend of mine who has been fighting an advanced case of prostate cancer is now down to trying Pluvicto. His oncologist described it as experimental and that he was the first one...
John, best of luck and good results with your proton therapy. I was treated with proton therapy 12 years ago at IU Health in Bloomington, Ind. I've had great results, with my PSA remaining virtually...
David, Incredibly great to hear from you. That you are alive and still in the fight is both amazing and blessed news. You are a fighter and a tough and brave man. So glad to hear that you are still...
JNF, as an IU alum, I hope you can appreciate when I say (as a devout UK fan) that I have never been treated better in my life than during the time I spent in Bloomington being treated at the proton...
One thing you will notice on this forum is that no one who has actually undergone proton beam radiation has anything but good to say about it. No bad side effects, etc. If one studies the science...
I had my annual physical recently and my primary care doctor (whom I've been with for many, many years) did the usual blood work, including a PSA. Results? 0.01. I do feel good. It's been 9 1/2 years...
Haven't been here in awhile, but can advise that I had Moderna shot#2 on Monday and approximately 24 hours later began feeling achy and very slight fever (99.6). Arm has moderate soreness. Today...
Speaking of immunotheraphy for bladder cancer, an acquaintance of mine (fishing guide at Ky Lake) advised me during a fishing trip a few years ago that he had been diagnosed with bilateral stage 4...
OK, I need to vent somewhere, so I came here. A little history. 7 years ago, our next door neighbor was diagnosed with stage 3 breast cancer. She was a PA, as was her husband. Age 39. 3 children, all...
9 years ago this day, August 16, I made the drive to Bloomington, Indiana to start my treatment journey at the Indiana University Proton Therapy Center. At that time IU was one of only 9 proton...
My PSA remains at 0.01! I am happy. I had external beam proton radiation treatment 8.5 years ago at Indiana University at Bloomington. My PSA fell quickly and has plateaued at 0.01. For me, proton...
I just had a recent PSA test done as part of my yearly physical exam performed by my local family doctor. I am now approximately seven and one-half years post completion of treatment. My PSA had...
I chose proton beam radiation, and for me it was a very successful choice. My psa is now at 0.01, and I have no significant long term side effects. I had to mount an epic fight to approval from my...
Well said. Maybe it really doesn't matter in the overall scheme of life and PCa treatment, but given the choice, I'd much rather be radiated with a proton beam than a photon beam....
That is, if the side effects are equal. Physics will tell you that protons do less damage than photons, regardless of how they are administered. Take a good look at all the areas that protons are...
I have three, but am only able to exercise two of them at present. I grew up on the water, and my father taught me to fish starting at age 4. I have been a fisherman ever since. Unfortunately, about...
To JNF: Actually the IU Proton Center operated for at least a couple of years after I finished my treatment. One thing to note--when the decision to close the facility was made, it was not because of...
I did proton radiation therapy 7 years at Indiana University in Bloomington. My PSA since dropped to 0.02 and has remained there for the past few years. No side effects other than expected short-term...
Haven't been here in awhile, but thought for those considering radiation (of any sort) the results of my 6 year PSA test might be helpful. 0.02 That's right. 0.02 Right where it has been for several...
I would just return to your local urologist for now. Once I finished my proton therapy at IU Health, I never went back for a consult (I did talk to my RO a couple of times on the telephone, but never...
I take a probiotic called "Pearls". it seems to help....
Themacs, I will indeed wish you luck! I had proton as my initial treatment, and it has worked well so far. I actually know a couple of folks who have had proton, or a combination of proton/photon as...
Tell your RO what is going on, but I really wouldn't worry about it at the moment. During treatment you can have all sorts of weird urinary/bowel problems that usually go away quickly once treatment...
I had proton beam therapy (a form of EBRT) almost 4 years ago. My PSA steadily dropped after treatment to its current level of 0.03. I had some minor SEs during treatment but none that continued on a...
Boogee, I had proton beam therapy approximately 4 yrs ago and I am very satisfied with my results. I am currently at a psa nadir of 0.03 and virtually no SEs. The supposed advantage of proton is less...
As a long time Raiders fan, this is heart breaking news for me. He was 69, and died of colon cancer. I know this has nothing to do with PCa, but I just had to post this somewhere....
David, Sorry to read of your continuing bad news. Thinking about your situation, I almost hate to bring this up, but, have you considered the possibility of proton beam radiation to re-irradiate the...
My RO at IU Health was a woman, Dr. Teresa Oldham, who specializes in prostate cancer (and yes, she did a DRE on me just like my other, male docs did!). I really liked her. Seemed extremely...
We have one in Elizabethtown, Ky at Hardin Memorial Hospital. Dr. Allison Cardin. Impressive academic credentials. Trained exclusively on the DaVinci Robot. She's been here for several years now. Not...
A nadir of 0.1 is a fantastic result. Be glad....
I would predict that these are "temporary" SEs from the treatment. I put "temporary" in quotes because everyone is different in how fast or completely they recover from those SEs. But they are SEs...
I thought I had reached my nadir at 0.05, but my latest psa result is back: 0.03! Now almost 4 years after treatment and still no SEs. A satisfied customer....
I'm puzzled by your response. Are you saying that utilizing private donations to help lower the cost of health care is a BAD thing? Many private universities and medical facilities routinely receive...
One of the often quoted arguments against the use of proton beam therapy for treatment of prostate cancer is that it costs more, in some cases a lot more. The Mayo Clinic is getting ready to open its...
You also have to consider that under the broad heading of External Beam lies a myriad set of treatment options. The more modern treatments (proton, cyberknife, imrt/igrt) are a far cry from the...
My insurance (Humana) initially refused to cover my proton radiation treatment but I was successful on appeal in getting their decision reversed. Can't imagine an insurance company denying any of the...
Unless this is a new policy by MD Anderson, I believe they will treat all grades of prostate cancer, as a G6 friend of mine went there for his treatment a couple of years ago....
That is an excellent result. Congrats!...
Just a thought. Might want to reconsider the proton treatment. I had it almost 4 years ago. Current PSA has nadired at 0.05 and no flow problems, no catherization after or during treatment. I also...
I like to believe there is a heaven in one form or another. Who knows what that form may really be. At the same time, I take comfort in Mark Knopfler's haunting song "Our Shangi-La."...
Duke is very much surgery oriented for PCa. If surgery is the route you are interested in pursuing, I can't imagine many places much better. As Dwayne said, world class....
John, on your original post I did not see your signature and thus did not realize you have already had your prostate removed. You are correct in that I still have my prostate. Proton can be used for...
I had proton beam therapy treatment 3 1/2 years ago. Current PSA is 0.05 and no significant SEs. If you can afford the time required for treatment (mine was 44 days over 9 weeks) and have access to a...
Longtime Raiders fan here, both the good times and the bad. Marv Hubbard was a real warrior as a player and I have no doubt he was a warrior as he fought the good fight with PCa. RIP....
From one proton guy to another, your results are terrific. Here's to many more low psa's!...
A perfect example of why AS should be seriously considered by anyone diagnosed as a Gleason 6. Although I am very satisfied with the results of my proton treatment, were I diagnosed today I would...