Bumping this one up again for any new people, it helped us a lot. @English Alf did you ever do an updated post on this topic? ~Miki...
I'm so glad you got in touch with Cara and that ya'll feel better after talking to her. She's a big help especially when dealing with what's available in the state, etc. It's a lot to take in I know,...
@three 5's and a Jack what's the nature of the area? As far as medical care?...
@Kit we are in Arkansas also. You didn't say what part? If you don't mind I can email you. Are you using AR Prostate Cancer Foundation and talking to Cara? Please call her at 1-800-338-1383 tell her...
I tried doing a search on this one and all I'm finding is blood in urine months after SRT. Bob finished SRT 21 days ago. Today he started urinating brown/rusty looking blood. Not bright red, no clots...
My husband has a past history of ulcerative colitis. He met w/ his gastro before he started SRT. He just finished 40 treatments at 76 gy. He was on Lialda 4 times a day to lesson inflamation to the...
I did a LOT for my husband post op but truth be told if he HAD to do it himself he could have. Most things you might would need help with (getting up from a sitting or laying position) is something...
I've debated since last night to even participate in this discussion but decided to put my two cents in even though mine will be an unpopular opinion but I'm remembering we are all just sharing...
I'm bumping this thread up for any new people. Really good information in this one. ~Miki...
On second thought I'll just bump the PCa: Really Useful Tips about Da Vinci Surgery and RT made by HW people for HW people for the new people that are here. It has some really good info in it.~Miki...
This is the one started by Prat, that I was remembering but it led me to the other thread that I posted about above. Not sure if this posts a clickable link. Would you like the link to the other...
Hubby was DX @ 53. In 2009 his GP he was using did a PSA (due to ED issues) and it was 1.9, in 2013 I mentioned to his GP (he had changed doctors by that time) ED and frequent urination, he checked...
When they were wanting my mom to gain weight the doctor recommended Ensure. I don't know sugar content etc. in it but it worked. She was drinking 3 a day and eating her meals. If not that maybe some...
I was wondering if it's the drive (2 hours one way in heavy traffic). Here at the house it's a little high (143/93) but not as high as when he's at the doctor. Good to know your experience. Thank you....
Bob's on day 12 of SRT and got his 2nd. Firmagon shot two days ago. He has a history of high blood pressure but in 2014 when he lost 15 lbs. he no longer needed it and hasn't taken any since and has...
Ok, I just went back and read all the posts (after I sent you an email) and this is what was said about the thread in 2014 (142 said) "Some folks at the time decided the information in Casey's thread...
Ok guys, nevermind, I found it...Why does it not surprise me that Pratoman actually started the thread (if he reads this he'll laugh at that). In that thread there's link for another thread called...
I'm looking for the post surgery supply thread. I've typed it in the search engine and have only come up w/ one from 2007 and that's not the one I'm looking for. The one I'm looking for was maybe...
Thanks for responding TA. I've been icing it, it has now turned red (which they also said could happen or maybe it's because I've been putting ice on it). I know some in previous threads had said...
Bob had his marker placement done yesterday. No problems with that. While he was out they gave him his initial Firmagon shots one on each side. I had read here that there can be swelling at injection...
My husband will be starting SRT soon. He will be having marker placement on Monday. I didn't ask why they were using markers. Hubby is having IGRT/IMRT, he'll go back on the 24th for the CT and to...
Thank you Beth, you've been w/ us almost from the beginning. Never knew this road was going to be this long. I thought they'd take it out and we'd be done. You know PC, surprises await around every...
Just a little side note. Went to pick up Bob's Lialda today. Cash pay is $1,250 for a months worth. Thankfully he's already on 100% major medical so it cost us nothing but just a heads up if you ever...
Thank you all for explaining. I understand better now. He will start his Lialda this week, markers and firmagon shot on the 17th, and CT on the 24th (he'll find out his start date also). I'm hoping...
Thanks TA, this was actually one of the articles I had read that you had linked when I was researching. 1. What is the meaning of chronic vs. transient toxcicity? 2.Quoted from article "At the top...
I knew some people didn't have to have markers but I didn't know it was because of a more up to date machine. We are at the most advanced place in our state. There are very few places that even offer...
Bob is preparing for SRT (marker implants scheduled for the 17th). The more I read on SRT the more confused I get. I've been researching since 2014, maybe my brain is fried and that's why I'm not...
This has always been the first place I come for any questions. On this roller coaster of PC I'm glad I found this place first. The knowledge and support offered here is above any other group I have...
Quick update because it's been a horrible day. PSA went from .18 to .26 in three months. Doctor wants to do scans and start radiation. The Hepcidin test came back negative (which is good) so probably...
I know I have been MIA for a while. Been having my own health issues and the constant worry/research about PC threw me into a place mentally that I had to get out of so I mostly stayed away from...
Updates, questions and flabbergasted at a doctor's visit. Bob saw a radiation oncologist in Little Rock (4 hours away round trip). We both really liked him and he's very knowledgeable any question or...
Bob's going to meet with the radiation oncologist on Wed. and just get some information. I am also going to contact MD ANDERSON again and see if he can get in there or at least do a phone consult...
Results are in. PSA .13 Doctor is setting him up with an appointment for a radiologist oncologist. If it moves at all on July test he will start SRT (If Bob decides to do it). Now here's another...
To answer Michael's question, Bob has a history of ulcerative colitis which we have discussed in another thread so side effects to the colon have been a worry, however, his biggest concern is the...
Ya'll aren't even going to believe how today's doctor visit went, what a mess. I will post all details of the craziness when I get home and can concentrate on what I am typing. Just a little info,...
It's been a while since I've posted. Most days we go along with our lives and pretend that PC does not exist in our lives UNTIL PSA time. Another PSA test tomorrow. Hubby's PSA has been rising...
My husband, Bob(stats in profile), is facing the same decision. At 14 months post RP, PSA is up to .11 They are recommending SRT. I have done all the research and shared with him (he's not a computer...
Thank you for responding and for giving me some suggestions. Yes we have insurance but we have a 7,000 dollar out of pocket before insurance will pay a dime. As I said because we are lower income...
I won't give background story but looking at signature and previous post will catch you up. Here's the situation. We are looking for a better/more experienced cancer facility near Arkansas. So far we...
For member that sent me an email regarding Dr. Mooney, I don't want to use your real name here and I do not know your user name. I found your email and have sent you a reply back. Sorry I am just now...
@GCC interesting that you should mention your surgeon talking about the trend of going up to at least .2 then going back down. For the past year that hubby's PSA has been rising his doc. has been...
@Prat yeah, but you were in on my phone calls list because you were giving me info I needed for doctors so you count!!!~Miki...
@Bozolidat everything you said in your responses is spot on to what I'm thinking so I wouldn't pretend it's from someone else. No need. I agree. Can HT ever be curative or is it always suppression?...
@Prat since he's had the prolaris and w/ the rising PSA I don't know if additional testing on the surgical slides would be any more beneficial than the information than we have now. @John_TX just got...
I'm off to the SRT threads. They just called with Bob's PSA, it's .1 He will see an oncologist in Jan. about starting radiation. Devastated!...
It's been a while since I posted because I just needed a break. I took the break and pretended for a while that prostate cancer doesn't exist. Well, one trip to the urologist will slap you in the...
Same day results this time. Doc knew I was ticked. Up from .06 to .07 in two months. Still not concerned because under .1 Suggests prolaris test to see if it shows aggressive cancer to determine to...
Bob wasn't due for next PSA until Oct. 15 but going in early because we're losing insurance Oct. 1. Hoping we don't see another rise but w/ two consecutive rises I am not very hopeful. He'll be...
Hi Tom, As you can see my husband's stats are almost the same as yours (see signature). Both of his uro's advised against scans because of his low Gleason and PSA saying they probably wouldn't see...
Sometimes people just need a break. I'm not here as much as I used to be but I still check in every now and then. I still suggest this forum to anyone who doesn't know of it because I think it's the...